Polymyalgia rheumatica

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is polymyalgia rheumatica?

Polymyalgia rheumatica, also known as rhizomelic pseudo polyarthritis, is an inflammatory disorder that is characterized by a history of neck, shoulder and/or hip stiffness and pain in patients age 50 years or older.

Common symptoms reported by people with polymyalgia rheumatica

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with polymyalgia rheumatica

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
38
Tried for
polymyalgia rheumatica (38) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Panafcortelone)
Type
Prescription Drug
How many have tried
4
Tried for
polymyalgia rheumatica (4) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
3
Tried for
Pain (3)
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
3
Tried for
Pain (3)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2) Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(BuTrans Transdermal Patch)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Hysingla ER)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
2
Tried for
polymyalgia rheumatica (2)
Check to add this treatment to your profile
Treatment name(s)

(Percocet)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (1) polymyalgia rheumatica (1)

Data from patients with polymyalgia rheumatica, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with polymyalgia rheumatica

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Perceived effectiveness
for polymyalgia rheumatica (23 evaluations)
Side effects
Weight gain Bruise easily 29 more
Total evaluations
24
Tried for
polymyalgia rheumatica (38) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Panafcortelone)
Perceived effectiveness
for polymyalgia rheumatica (2 evaluations)
Side effects
Change in hair texture Chronic fatigue 12 more
Total evaluations
2
Tried for
polymyalgia rheumatica (4) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Tylenol)
Perceived effectiveness
for Pain (4 evaluations)
Side effects
Total evaluations
4
Tried for
Pain (3)
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Pain (3)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
Cognitive impairment Kidney disease
Total evaluations
2
Tried for
Pain (2) Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(BuTrans Transdermal Patch)
Perceived effectiveness
for Pain (10 evaluations)
Side effects
Grogginess Pain worsened
Total evaluations
10
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Celebrex)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Hysingla ER)
Perceived effectiveness
for Pain (12 evaluations)
Side effects
Lethargy
Total evaluations
12
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
No evaluations
Side effects
Elevated liver enzymes
Total evaluations
1
Tried for
polymyalgia rheumatica (2)
Check to add this treatment to your profile
Treatment name(s)

(Percocet)
Perceived effectiveness
for polymyalgia rheumatica (1 evaluation)
Side effects
Constipation
Total evaluations
1
Tried for
Pain (1) polymyalgia rheumatica (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with polymyalgia rheumatica, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has polymyalgia rheumatica on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 4
30s 10
40s 22
50s 69
60s 129
70+ 96
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 6
30-39 years 8
40-49 years 29
50-59 years 66
60-69 years 35
70+ years 12

Sex

Distribution of sex

83% Female
17% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 188
Not Diagnosed 16

These charts show data from polymyalgia rheumatica patients who have completed their condition history
Last updated: