Natural killer cell deficiency syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is natural killer cell deficiency syndrome?

Natural killer (NK) cell deficiency syndromes are rare disorders in which either the number, function, or both of NK cells is abnormal, in the absence of any other condition known to affect NK cells. It is characterized by severe, recurrent, or atypical herpes infections.

Common symptoms reported by people with natural killer cell deficiency syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with natural killer cell deficiency syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with natural killer cell deficiency syndrome, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with natural killer cell deficiency syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with natural killer cell deficiency syndrome, who reported starting treatments within the last 5 years.
Last updated:

Who has natural killer cell deficiency syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 2
30s 4
40s 6
50s 5
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 15

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4
Not Diagnosed 0

These charts show data from natural killer cell deficiency syndrome patients who have completed their condition history
Last updated: