Morgellons Disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Morgellons Disease?

Morgellons is a skin disorder characterized by rashes or sores and a variety of skin sensations including a crawling, itching, stinging or biting feeling felt under the skin. It is described as an unexplained dermopathy by Centers for Disease Control that is currently being investigated.

Common symptoms reported by people with Morgellons Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Morgellons Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinequan)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Garlic Oil)
Type
Supplement
How many have tried
1
Tried for
Morgellons Disease (1)
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Minocin)
Type
Prescription Drug
How many have tried
1
Tried for
Morgellons Disease (1)
Check to add this treatment to your profile
Treatment name(s)

(Restoril)
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)

Data from patients with Morgellons Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Morgellons Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinequan)
Perceived effectiveness
No evaluations
Side effects
Nightmares Weight gain
How many evaluations
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Garlic Oil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Morgellons Disease (1)
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Minocin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Morgellons Disease (1)
Check to add this treatment to your profile
Treatment name(s)

(Restoril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Effexor XR)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Depressed mood (1)

Data from patients with Morgellons Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Morgellons Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 5
30s 6
40s 9
50s 14
60s 3
70+ 1

Sex

Distribution of sex

87% Female
13% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 3
30-39 years 3
40-49 years 6
50-59 years 3
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5
Not Diagnosed 12

These charts show data from Morgellons Disease patients who have completed their condition history
Last updated: