Morgellons Disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is Morgellons Disease?

Morgellons is a skin disorder characterized by rashes or sores and a variety of skin sensations including a crawling, itching, stinging or biting feeling felt under the skin. It is described as an unexplained dermopathy by Centers for Disease Control that is currently being investigated.

What is it like to have Morgellons Disease?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat Morgellons Disease and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Adapine, Deptran, Silenor) 2 more
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(GNC Odorless Garlic, Garlic Extract, Garlic Oil) 6 more
Type
Supplement
How many have tried
1
Tried for
Morgellons Disease (1)
Treatment name(s)

(Anexsia, Lorcet 10/650, Lorcet Plus) 13 more
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Akamin, Dynacin, Minocin) 1 more
Type
Prescription Drug
How many have tried
1
Tried for
Morgellons Disease (1)
Treatment name(s)

(Lyrica, Maxgalin, Provelyn)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(CO Temazepam, Normison, Restoril) 2 more
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1)
Treatment name(s)

(Effexor, Effexor XR, Novo-Venlafaxine XR) 9 more
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)

Data from patients with Morgellons Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for Morgellons Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Treatment name(s)

(Adapine, Deptran, Silenor) 2 more
Perceived effectiveness
No evaluations
Side effects
Nightmares Weight gain
How many evaluations
1
Tried for
Pain (1)
Treatment name(s)

(GNC Odorless Garlic, Garlic Extract, Garlic Oil) 6 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Morgellons Disease (1)
Treatment name(s)

(Anexsia, Lorcet 10/650, Lorcet Plus) 13 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (1)
Treatment name(s)

(Akamin, Dynacin, Minocin) 1 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Morgellons Disease (1)
Treatment name(s)

(Lyrica, Maxgalin, Provelyn)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (1)
Treatment name(s)

(CO Temazepam, Normison, Restoril) 2 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Insomnia (1)
Treatment name(s)

(Effexor, Effexor XR, Novo-Venlafaxine XR) 9 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Depressed mood (1)

Data from patients with Morgellons Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Morgellons Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 5
30s 6
40s 5
50s 7
60s 2
70+ 1

Gender

Distribution of females vs. males

81% Females
19% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 3
30-39 years 2
40-49 years 4
50-59 years 2
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4
Not Diagnosed 9

These charts show data from Morgellons Disease patients who have completed their condition history
Last updated: