Morgellons disease

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What is Morgellons disease?

Morgellons is a skin disorder characterized by rashes or sores and a variety of skin sensations including a crawling, itching, stinging or biting feeling felt under the skin. Current research has indicated that the disease may be related to Borrelia, a spirochetal bacterium, infections of the skin.

Common symptoms reported by people with Morgellons disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Morgellons disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Other
How many have tried
1
Tried for
Morgellons disease (1)
Treatment name(s)

(R-lipoic Acid)
Type
Supplement
How many have tried
1
Tried for
Morgellons disease (1)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Cinnamon Extract)
Type
Supplement
How many have tried
1
Tried for
fatigue (1) Morgellons disease (1)
Treatment name(s)

(Virgin Coconut Oil)
Type
Supplement
How many have tried
1
Tried for
Morgellons disease (1)
Treatment name(s)

(CoQ10 Soft Gels)
Type
Supplement
How many have tried
1
Tried for
Morgellons disease (1)
Type
Supplement
How many have tried
1
Tried for
Morgellons disease (1)
Type
Complementary and Alternative Medicine
How many have tried
1
Tried for
Morgellons disease (1)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
Morgellons disease (1)

Data from patients with Morgellons disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Morgellons disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for Morgellons disease (2 evaluations)
Side effects
Total evaluations
2
Tried for
Morgellons disease (1)
Treatment name(s)

(R-lipoic Acid)
Perceived effectiveness
for Morgellons disease (1 evaluation)
Side effects
vomiting
Total evaluations
1
Tried for
Morgellons disease (1)
Treatment name(s)

(Adderall)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(BuSpar)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Cinnamon Extract)
Perceived effectiveness
No evaluations
Side effects
upset stomach
Total evaluations
1
Tried for
fatigue (1) Morgellons disease (1)
Treatment name(s)

(Virgin Coconut Oil)
Perceived effectiveness
for Morgellons disease (2 evaluations)
Side effects
Total evaluations
2
Tried for
Morgellons disease (1)
Treatment name(s)

(CoQ10 Soft Gels)
Perceived effectiveness
for Morgellons disease (1 evaluation)
Side effects
abdominal pain
Total evaluations
1
Tried for
Morgellons disease (1)
Perceived effectiveness
for Morgellons disease (1 evaluation)
Side effects
Total evaluations
1
Tried for
Morgellons disease (1)
Perceived effectiveness
for Morgellons disease (2 evaluations)
Side effects
burning sensation in skin
Total evaluations
2
Tried for
Morgellons disease (1)
Treatment name(s)
Perceived effectiveness
for Morgellons disease (3 evaluations)
Side effects
Jarisch-Herxeimer reaction
Total evaluations
3
Tried for
Morgellons disease (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Morgellons disease, who reported starting treatments within the last 5 years.
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Who has Morgellons disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 15
30s 52
40s 57
50s 66
60s 26
70+ 6
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 4
30-39 years 13
40-49 years 13
50-59 years 13
60-69 years 3
70+ years 1

Sex

Distribution of sex

88% Female
12% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 15
Not Diagnosed 41

These charts show data from Morgellons disease patients who have completed their condition history
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