Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
769
Tried for
Multiple Sclerosis (769)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
688
Tried for
Multiple Sclerosis (688) Stiffness/Spasticity (5)
1 more
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Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
484
Tried for
Multiple Sclerosis (484) Depressed mood (1)
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Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
425
Tried for
Multiple Sclerosis (353) Stiffness/Spasticity (212)
2 more
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Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
388
Tried for
Multiple Sclerosis (388) Fatigue (1)
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Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
267
Tried for
Multiple Sclerosis (267) Fatigue (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
231
Tried for
Multiple Sclerosis (231) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
230
Tried for
Multiple Sclerosis (228) Fatigue (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
172
Tried for
Multiple Sclerosis (172) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
150
Tried for
Multiple Sclerosis (111) Fatigue (83)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (618 evaluations)
Side effects
Flushing Facial flushing 191 more
How many evaluations
616
Tried for
Multiple Sclerosis (769)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (439 evaluations)
Side effects
Injection site pain Injection site itching 144 more
How many evaluations
440
Tried for
Multiple Sclerosis (688) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (321 evaluations)
Side effects
Headaches Elevated liver enzymes 127 more
How many evaluations
327
Tried for
Multiple Sclerosis (484) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for Multiple Sclerosis (153 evaluations)
Side effects
Drowsiness Tiredness 61 more
How many evaluations
218
Tried for
Multiple Sclerosis (353) Stiffness/Spasticity (212)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (266 evaluations)
Side effects
Fatigue Headaches 95 more
How many evaluations
268
Tried for
Multiple Sclerosis (388) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (166 evaluations)
Side effects
Flu like symptoms Headaches 98 more
How many evaluations
166
Tried for
Multiple Sclerosis (267) Fatigue (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (168 evaluations)
Side effects
Flu like symptoms Fever/chills 91 more
How many evaluations
168
Tried for
Multiple Sclerosis (231) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (149 evaluations)
Side effects
Insomnia Nausea 45 more
How many evaluations
170
Tried for
Multiple Sclerosis (228) Fatigue (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Perceived effectiveness
for Multiple Sclerosis (135 evaluations)
Side effects
Hair loss Diarrhea 51 more
How many evaluations
136
Tried for
Multiple Sclerosis (172) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (52 evaluations)
Side effects
Anxious mood Dizziness 33 more
How many evaluations
88
Tried for
Multiple Sclerosis (111) Fatigue (83)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 40
20s 1,502
30s 7,413
40s 13,614
50s 13,159
60s 6,485
70+ 1,025

Sex

Distribution of sex

82% Female
18% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,644
20-29 years 8,743
30-39 years 9,064
40-49 years 5,468
50-59 years 1,325
60-69 years 116
70+ years 17

Types
Condition Types Proportion # of patients
Primary Progressive 3,080
Progressive Relapsing 1,804
Relapsing-Remitting 29,479
Secondary Progressive 4,626
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 30,458
Not Diagnosed 1,298

These charts show data from MS patients who have completed their condition history
Last updated: