Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
947
Tried for
multiple sclerosis (947) fatigue (1)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
551
Tried for
multiple sclerosis (551) stiffness/spasticity (5)
2 more
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
333
Tried for
multiple sclerosis (333) depressed mood (1)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
294
Tried for
multiple sclerosis (294) fatigue (2)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
269
Tried for
multiple sclerosis (177) stiffness/spasticity (171)
2 more
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
256
Tried for
multiple sclerosis (256)
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
149
Tried for
multiple sclerosis (145) balance problems (3)
2 more
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
144
Tried for
multiple sclerosis (144) fatigue (2)
1 more
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
143
Tried for
multiple sclerosis (143) fatigue (3)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
97
Tried for
Pain (75) multiple sclerosis (15)
4 more

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (820 evaluations)
Side effects
flushing facial flushing 220 more
Total evaluations
819
Tried for
multiple sclerosis (947) fatigue (1)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (450 evaluations)
Side effects
injection site pain injection site itching 147 more
Total evaluations
451
Tried for
multiple sclerosis (551) stiffness/spasticity (5)
2 more
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (247 evaluations)
Side effects
headaches fatigue 89 more
Total evaluations
252
Tried for
multiple sclerosis (333) depressed mood (1)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (218 evaluations)
Side effects
fatigue headaches 78 more
Total evaluations
220
Tried for
multiple sclerosis (294) fatigue (2)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for multiple sclerosis (139 evaluations)
Side effects
drowsiness fatigue 31 more
Total evaluations
223
Tried for
multiple sclerosis (177) stiffness/spasticity (171)
2 more
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (218 evaluations)
Side effects
hair loss diarrhea 66 more
Total evaluations
226
Tried for
multiple sclerosis (256)
Treatment name(s)

(Ampyra)
Perceived effectiveness
for multiple sclerosis (115 evaluations)
Side effects
insomnia insomnia 31 more
Total evaluations
133
Tried for
multiple sclerosis (145) balance problems (3)
2 more
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (110 evaluations)
Side effects
flu like symptoms headaches 81 more
Total evaluations
110
Tried for
multiple sclerosis (144) fatigue (2)
1 more
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (111 evaluations)
Side effects
flu like symptoms fever/chills 57 more
Total evaluations
112
Tried for
multiple sclerosis (143) fatigue (3)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (55 evaluations)
Side effects
fatigue drowsiness 24 more
Total evaluations
82
Tried for
Pain (75) multiple sclerosis (15)
4 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 47
20s 1,488
30s 7,499
40s 15,040
50s 15,425
60s 8,282
70+ 1,543
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,859
20-29 years 9,346
30-39 years 9,808
40-49 years 5,977
50-59 years 1,513
60-69 years 145
70+ years 17

Sex

Distribution of sex

82% Female
18% Male

Types
Condition Types Proportion # of patients
Primary progressive 3,543
Relapsing-remitting 33,103
Secondary progressive 5,076
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 32,721
Not Diagnosed 1,384

These charts show data from MS patients who have completed their condition history
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