Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
371
Tried for
multiple sclerosis (371)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
349
Tried for
multiple sclerosis (349) stiffness/spasticity (4)
2 more
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
213
Tried for
multiple sclerosis (213)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
153
Tried for
multiple sclerosis (153) fatigue (1)
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
150
Tried for
multiple sclerosis (150)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
132
Treatment name(s)

(Ocrevus)
Type
Prescription Drug
How many have tried
124
Tried for
multiple sclerosis (124)
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
65
Tried for
multiple sclerosis (65) fatigue (1)
Treatment name(s)

(Lemtrada)
Type
Prescription Drug
How many have tried
60
Tried for
multiple sclerosis (60)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
58
Tried for
pain (38) multiple sclerosis (9)
5 more

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (302 evaluations)
Side effects
flushing stomach pain 140 more
Total evaluations
303
Tried for
multiple sclerosis (371)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (325 evaluations)
Side effects
injection site pain injection site bumps 114 more
Total evaluations
326
Tried for
multiple sclerosis (349) stiffness/spasticity (4)
2 more
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (167 evaluations)
Side effects
hair loss diarrhea 61 more
Total evaluations
175
Tried for
multiple sclerosis (213)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (107 evaluations)
Side effects
fatigue headaches 42 more
Total evaluations
109
Tried for
multiple sclerosis (153) fatigue (1)
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (116 evaluations)
Side effects
headaches fatigue 51 more
Total evaluations
120
Tried for
multiple sclerosis (150)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for stiffness/spasticity (83 evaluations)
Side effects
drowsiness fatigue 12 more
Total evaluations
108
Treatment name(s)

(Ocrevus)
Perceived effectiveness
for multiple sclerosis (71 evaluations)
Side effects
fatigue headaches 29 more
Total evaluations
72
Tried for
multiple sclerosis (124)
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (58 evaluations)
Side effects
headaches flu like symptoms 54 more
Total evaluations
58
Tried for
multiple sclerosis (65) fatigue (1)
Treatment name(s)

(Lemtrada)
Perceived effectiveness
for multiple sclerosis (67 evaluations)
Side effects
fatigue headaches 58 more
Total evaluations
67
Tried for
multiple sclerosis (60)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (27 evaluations)
Side effects
fatigue drowsiness 10 more
Total evaluations
44
Tried for
pain (38) multiple sclerosis (9)
5 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
Last updated:

Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 41
20s 1208
30s 7214
40s 16166
50s 18585
60s 11369
70+ 2673
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2898
20-29 years 9457
30-39 years 9934
40-49 years 6071
50-59 years 1545
60-69 years 152
70+ years 18

Distribution of sex

Sex
Sex Proportion # of patients
Male 10445
Female 47410

Types
Condition Types Proportion # of patients
Primary progressive multiple sclerosis 4331
Relapsing-remitting multiple sclerosis 37895
Secondary progressive multiple sclerosis 5686
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33672
Not Diagnosed 1356

These charts show data from MS patients who have completed their condition history
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