Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
917
Tried for
Multiple Sclerosis (917) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
618
Tried for
Multiple Sclerosis (618) Stiffness/Spasticity (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
383
Tried for
Multiple Sclerosis (383) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
329
Tried for
Multiple Sclerosis (329) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
326
Tried for
Multiple Sclerosis (235) Stiffness/Spasticity (190)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
230
Tried for
Multiple Sclerosis (230) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
199
Tried for
Multiple Sclerosis (199) Fatigue (2)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
191
Tried for
Multiple Sclerosis (191) Fatigue (3)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
181
Tried for
Multiple Sclerosis (176) Balance problems (4)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
118
Tried for
Pain (92) Multiple Sclerosis (22)
4 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (782 evaluations)
Side effects
Flushing Facial flushing 219 more
Total evaluations
781
Tried for
Multiple Sclerosis (917) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (465 evaluations)
Side effects
Injection site pain Injection site itching 141 more
Total evaluations
466
Tried for
Multiple Sclerosis (618) Stiffness/Spasticity (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (269 evaluations)
Side effects
Headaches Fatigue 93 more
Total evaluations
273
Tried for
Multiple Sclerosis (383) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (242 evaluations)
Side effects
Fatigue Headaches 83 more
Total evaluations
244
Tried for
Multiple Sclerosis (329) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for Multiple Sclerosis (146 evaluations)
Side effects
Drowsiness Fatigue 41 more
Total evaluations
233
Tried for
Multiple Sclerosis (235) Stiffness/Spasticity (190)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Perceived effectiveness
for Multiple Sclerosis (189 evaluations)
Side effects
Hair loss Diarrhea 60 more
Total evaluations
192
Tried for
Multiple Sclerosis (230) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (133 evaluations)
Side effects
Flu like symptoms Headaches 91 more
Total evaluations
133
Tried for
Multiple Sclerosis (199) Fatigue (2)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (153 evaluations)
Side effects
Flu like symptoms Fever/chills 82 more
Total evaluations
154
Tried for
Multiple Sclerosis (191) Fatigue (3)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (126 evaluations)
Side effects
Insomnia Insomnia 37 more
Total evaluations
150
Tried for
Multiple Sclerosis (176) Balance problems (4)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (61 evaluations)
Side effects
Drowsiness Sleepiness 28 more
Total evaluations
95
Tried for
Pain (92) Multiple Sclerosis (22)
4 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 40
20s 1,480
30s 7,477
40s 14,300
50s 14,336
60s 7,389
70+ 1,276
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,756
20-29 years 8,976
30-39 years 9,406
40-49 years 5,661
50-59 years 1,399
60-69 years 125
70+ years 16

Sex

Distribution of sex

82% Female
18% Male

Types
Condition Types Proportion # of patients
Primary Progressive 3,291
Relapsing-Remitting 31,327
Secondary Progressive 4,869
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 31,409
Not Diagnosed 1,338

These charts show data from MS patients who have completed their condition history
Last updated: