Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
927
Tried for
multiple sclerosis (927) Fatigue (1)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
550
Tried for
multiple sclerosis (550) Stiffness/Spasticity (5)
2 more
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
351
Tried for
multiple sclerosis (351) Depressed mood (1)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
298
Tried for
multiple sclerosis (298) Fatigue (2)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
277
Tried for
multiple sclerosis (189) Stiffness/Spasticity (173)
2 more
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
239
Tried for
multiple sclerosis (239)
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
161
Tried for
multiple sclerosis (161) Fatigue (2)
1 more
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
160
Tried for
multiple sclerosis (160) Fatigue (3)
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
158
Tried for
multiple sclerosis (154) Balance problems (3)
3 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
99
Tried for
Pain (77) multiple sclerosis (16)
4 more

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (802 evaluations)
Side effects
Flushing Facial flushing 221 more
Total evaluations
801
Tried for
multiple sclerosis (927) Fatigue (1)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (440 evaluations)
Side effects
Injection site pain Injection site itching 144 more
Total evaluations
441
Tried for
multiple sclerosis (550) Stiffness/Spasticity (5)
2 more
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (256 evaluations)
Side effects
Headaches Fatigue 93 more
Total evaluations
261
Tried for
multiple sclerosis (351) Depressed mood (1)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (222 evaluations)
Side effects
Fatigue Headaches 78 more
Total evaluations
224
Tried for
multiple sclerosis (298) Fatigue (2)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for multiple sclerosis (138 evaluations)
Side effects
Drowsiness Fatigue 32 more
Total evaluations
223
Tried for
multiple sclerosis (189) Stiffness/Spasticity (173)
2 more
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (208 evaluations)
Side effects
Hair loss Diarrhea 64 more
Total evaluations
216
Tried for
multiple sclerosis (239)
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (119 evaluations)
Side effects
Flu like symptoms Headaches 86 more
Total evaluations
119
Tried for
multiple sclerosis (161) Fatigue (2)
1 more
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (135 evaluations)
Side effects
Flu like symptoms Fever/chills 65 more
Total evaluations
136
Tried for
multiple sclerosis (160) Fatigue (3)
Treatment name(s)

(Ampyra)
Perceived effectiveness
for multiple sclerosis (112 evaluations)
Side effects
Insomnia insomnia 33 more
Total evaluations
133
Tried for
multiple sclerosis (154) Balance problems (3)
3 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (56 evaluations)
Side effects
Drowsiness Fatigue 25 more
Total evaluations
85
Tried for
Pain (77) multiple sclerosis (16)
4 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 39
20s 1,441
30s 7,379
40s 14,426
50s 14,588
60s 7,757
70+ 1,373
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,774
20-29 years 9,058
30-39 years 9,505
40-49 years 5,723
50-59 years 1,412
60-69 years 130
70+ years 15

Sex

Distribution of sex

82% Female
18% Male

Types
Condition Types Proportion # of patients
Primary progressive 3,352
Relapsing-remitting 31,733
Secondary progressive 4,924
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 31,688
Not Diagnosed 1,348

These charts show data from MS patients who have completed their condition history
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