Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
846
Tried for
Multiple Sclerosis (846) Fatigue (1)
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Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
639
Tried for
Multiple Sclerosis (639) Stiffness/Spasticity (5)
1 more
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Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
423
Tried for
Multiple Sclerosis (423) Depressed mood (1)
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Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
370
Tried for
Multiple Sclerosis (285) Stiffness/Spasticity (201)
2 more
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Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
354
Tried for
Multiple Sclerosis (354) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
225
Tried for
Multiple Sclerosis (225) Fatigue (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
200
Tried for
Multiple Sclerosis (200) Fatigue (3)
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
199
Tried for
Multiple Sclerosis (199) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
192
Tried for
Multiple Sclerosis (190) Stiffness/Spasticity (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
128
Tried for
Multiple Sclerosis (91) Fatigue (75)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (710 evaluations)
Side effects
Flushing Facial flushing 215 more
How many evaluations
708
Tried for
Multiple Sclerosis (846) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (458 evaluations)
Side effects
Injection site pain Injection site itching 144 more
How many evaluations
459
Tried for
Multiple Sclerosis (639) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (292 evaluations)
Side effects
Fatigue Headaches 108 more
How many evaluations
296
Tried for
Multiple Sclerosis (423) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for Multiple Sclerosis (157 evaluations)
Side effects
Drowsiness Fatigue 52 more
How many evaluations
241
Tried for
Multiple Sclerosis (285) Stiffness/Spasticity (201)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (249 evaluations)
Side effects
Fatigue Headaches 89 more
How many evaluations
252
Tried for
Multiple Sclerosis (354) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (143 evaluations)
Side effects
Flu like symptoms Headaches 94 more
How many evaluations
143
Tried for
Multiple Sclerosis (225) Fatigue (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (156 evaluations)
Side effects
Flu like symptoms Fever/chills 82 more
How many evaluations
156
Tried for
Multiple Sclerosis (200) Fatigue (3)
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Perceived effectiveness
for Multiple Sclerosis (157 evaluations)
Side effects
Hair loss Diarrhea 56 more
How many evaluations
160
Tried for
Multiple Sclerosis (199) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (136 evaluations)
Side effects
Insomnia Anxious mood 41 more
How many evaluations
159
Tried for
Multiple Sclerosis (190) Stiffness/Spasticity (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (45 evaluations)
Side effects
Anxious mood Dizziness 30 more
How many evaluations
81
Tried for
Multiple Sclerosis (91) Fatigue (75)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 38
20s 1,519
30s 7,497
40s 14,008
50s 13,732
60s 6,891
70+ 1,147

Sex

Distribution of sex

82% Female
18% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,722
20-29 years 8,866
30-39 years 9,265
40-49 years 5,547
50-59 years 1,359
60-69 years 120
70+ years 16

Types
Condition Types Proportion # of patients
Primary Progressive 3,189
Progressive Relapsing 1,883
Relapsing-Remitting 30,514
Secondary Progressive 4,751
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 31,007
Not Diagnosed 1,324

These charts show data from MS patients who have completed their condition history
Last updated: