Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
744
Tried for
multiple sclerosis (744) fatigue (1)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
459
Tried for
multiple sclerosis (459) stiffness/spasticity (4)
2 more
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
252
Tried for
multiple sclerosis (252)
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
248
Tried for
multiple sclerosis (248)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
235
Tried for
multiple sclerosis (235) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
203
Tried for
stiffness/spasticity (150) multiple sclerosis (118)
1 more
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
107
Tried for
multiple sclerosis (107) fatigue (2)
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
103
Tried for
multiple sclerosis (99) balance problems (3)
2 more
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
103
Tried for
multiple sclerosis (103) fatigue (1)
1 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
82
Tried for
pain (60) multiple sclerosis (12)
4 more

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (619 evaluations)
Side effects
flushing facial flushing 183 more
Total evaluations
620
Tried for
multiple sclerosis (744) fatigue (1)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (414 evaluations)
Side effects
injection site pain injection site bumps 139 more
Total evaluations
415
Tried for
multiple sclerosis (459) stiffness/spasticity (4)
2 more
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (191 evaluations)
Side effects
headaches fatigue 74 more
Total evaluations
195
Tried for
multiple sclerosis (252)
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (197 evaluations)
Side effects
hair loss diarrhea 66 more
Total evaluations
205
Tried for
multiple sclerosis (248)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (177 evaluations)
Side effects
fatigue headaches 59 more
Total evaluations
179
Tried for
multiple sclerosis (235) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for stiffness/spasticity (166 evaluations)
Side effects
drowsiness fatigue 28 more
Total evaluations
201
Tried for
stiffness/spasticity (150) multiple sclerosis (118)
1 more
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (78 evaluations)
Side effects
flu like symptoms headaches 41 more
Total evaluations
79
Tried for
multiple sclerosis (107) fatigue (2)
Treatment name(s)

(Ampyra)
Perceived effectiveness
for multiple sclerosis (84 evaluations)
Side effects
balance problems insomnia 27 more
Total evaluations
99
Tried for
multiple sclerosis (99) balance problems (3)
2 more
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (93 evaluations)
Side effects
flu like symptoms headaches 67 more
Total evaluations
93
Tried for
multiple sclerosis (103) fatigue (1)
1 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (47 evaluations)
Side effects
fatigue sleepiness 19 more
Total evaluations
69
Tried for
pain (60) multiple sclerosis (12)
4 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 46
20s 1,342
30s 7,278
40s 15,285
50s 16,421
60s 9,331
70+ 1,926
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,889
20-29 years 9,455
30-39 years 9,921
40-49 years 6,064
50-59 years 1,543
60-69 years 151
70+ years 17

Distribution of sex

Sex
Sex Proportion # of patients
Male 9,461
Female 42,639

Types
Condition Types Proportion # of patients
Primary progressive 3,781
Relapsing-remitting 34,548
Secondary progressive 5,281
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33,603
Not Diagnosed 1,349

These charts show data from MS patients who have completed their condition history
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