Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
970
Tried for
Multiple Sclerosis (968) Stiffness/Spasticity (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Mylan Baclofen)
Type
Prescription Drug
How many have tried
665
Tried for
Multiple Sclerosis (586) Stiffness/Spasticity (258)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
604
Tried for
Multiple Sclerosis (604)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
566
Tried for
Multiple Sclerosis (560) Stiffness/Spasticity (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
564
Tried for
Multiple Sclerosis (563) Stiffness/Spasticity (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
495
Tried for
Multiple Sclerosis (495)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
438
Tried for
Multiple Sclerosis (438) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
319
Tried for
Multiple Sclerosis (319) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
273
Tried for
Multiple Sclerosis (240) Fatigue (116)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Betaseron)
Type
Prescription Drug
How many have tried
194
Tried for
Multiple Sclerosis (194) Fatigue (1)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (522 evaluations)
Side effects
Injection site reaction Injection site pain 146 more
How many evaluations
525
Tried for
Multiple Sclerosis (968) Stiffness/Spasticity (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Mylan Baclofen)
Perceived effectiveness
for Multiple Sclerosis (168 evaluations)
Side effects
Drowsiness Tiredness 72 more
How many evaluations
241
Tried for
Multiple Sclerosis (586) Stiffness/Spasticity (258)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (372 evaluations)
Side effects
Headaches Elevated liver enzymes 152 more
How many evaluations
376
Tried for
Multiple Sclerosis (604)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (255 evaluations)
Side effects
Insomnia Dizziness 68 more
How many evaluations
335
Tried for
Multiple Sclerosis (560) Stiffness/Spasticity (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (397 evaluations)
Side effects
Headaches Fatigue 110 more
How many evaluations
401
Tried for
Multiple Sclerosis (563) Stiffness/Spasticity (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (340 evaluations)
Side effects
Flushing Facial flushing 150 more
How many evaluations
338
Tried for
Multiple Sclerosis (495)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (236 evaluations)
Side effects
Flu like symptoms Headaches 123 more
How many evaluations
237
Tried for
Multiple Sclerosis (438) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (213 evaluations)
Side effects
Flu like symptoms Fever/chills 106 more
How many evaluations
213
Tried for
Multiple Sclerosis (319) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (65 evaluations)
Side effects
Anxious mood Insomnia 34 more
How many evaluations
112
Tried for
Multiple Sclerosis (240) Fatigue (116)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Betaseron)
Perceived effectiveness
for Multiple Sclerosis (117 evaluations)
Side effects
Flu like symptoms Injection site reaction 54 more
How many evaluations
117
Tried for
Multiple Sclerosis (194) Fatigue (1)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 34
20s 1,220
30s 5,645
40s 9,965
50s 9,536
60s 4,241
70+ 611

Sex

Distribution of sex

80% Female
20% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,211
20-29 years 7,520
30-39 years 7,839
40-49 years 4,714
50-59 years 1,135
60-69 years 96
70+ years 12

Types
Condition Types Proportion # of patients
Primary Progressive 2,351
Progressive Relapsing 1,161
Relapsing-Remitting 21,540
Secondary Progressive 3,693
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 26,168
Not Diagnosed 1,106

These charts show data from MS patients who have completed their condition history
Last updated: