Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
635
Tried for
multiple sclerosis (635) fatigue (1)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
435
Tried for
multiple sclerosis (435) stiffness/spasticity (4)
2 more
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
239
Tried for
multiple sclerosis (239)
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
230
Tried for
multiple sclerosis (230)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
217
Tried for
multiple sclerosis (217) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
198
Tried for
stiffness/spasticity (145) multiple sclerosis (116)
1 more
Treatment name(s)

(Ocrevus)
Type
Prescription Drug
How many have tried
97
Tried for
multiple sclerosis (97)
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
94
Tried for
multiple sclerosis (94) fatigue (2)
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
91
Tried for
multiple sclerosis (91) fatigue (1)
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
90
Tried for
multiple sclerosis (87) balance problems (2)
2 more

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (508 evaluations)
Side effects
flushing stomach pain 168 more
Total evaluations
509
Tried for
multiple sclerosis (635) fatigue (1)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (391 evaluations)
Side effects
injection site pain injection site bumps 129 more
Total evaluations
392
Tried for
multiple sclerosis (435) stiffness/spasticity (4)
2 more
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (189 evaluations)
Side effects
hair loss diarrhea 61 more
Total evaluations
197
Tried for
multiple sclerosis (239)
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (169 evaluations)
Side effects
headaches fatigue 62 more
Total evaluations
173
Tried for
multiple sclerosis (230)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (162 evaluations)
Side effects
fatigue headaches 52 more
Total evaluations
164
Tried for
multiple sclerosis (217) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for stiffness/spasticity (166 evaluations)
Side effects
fatigue drowsiness 27 more
Total evaluations
201
Tried for
stiffness/spasticity (145) multiple sclerosis (116)
1 more
Treatment name(s)

(Ocrevus)
Perceived effectiveness
for multiple sclerosis (56 evaluations)
Side effects
fatigue nausea 18 more
Total evaluations
57
Tried for
multiple sclerosis (97)
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (64 evaluations)
Side effects
flu like symptoms headaches 33 more
Total evaluations
65
Tried for
multiple sclerosis (94) fatigue (2)
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (82 evaluations)
Side effects
headaches fatigue 66 more
Total evaluations
82
Tried for
multiple sclerosis (91) fatigue (1)
Treatment name(s)

(Ampyra)
Perceived effectiveness
for multiple sclerosis (72 evaluations)
Side effects
headaches insomnia 24 more
Total evaluations
85
Tried for
multiple sclerosis (87) balance problems (2)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 47
20s 1384
30s 7583
40s 16084
50s 17526
60s 10127
70+ 2131
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2904
20-29 years 9461
30-39 years 9939
40-49 years 6081
50-59 years 1550
60-69 years 152
70+ years 17

Distribution of sex

Sex
Sex Proportion # of patients
Male 10005
Female 45424

Types
Condition Types Proportion # of patients
Primary progressive multiple sclerosis 4098
Relapsing-remitting multiple sclerosis 36606
Secondary progressive multiple sclerosis 5476
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33692
Not Diagnosed 1356

These charts show data from MS patients who have completed their condition history
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