Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
899
Tried for
Multiple Sclerosis (899) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
618
Tried for
Multiple Sclerosis (618) Stiffness/Spasticity (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
390
Tried for
Multiple Sclerosis (390) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
339
Tried for
Multiple Sclerosis (248) Stiffness/Spasticity (194)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
327
Tried for
Multiple Sclerosis (327) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
223
Tried for
Multiple Sclerosis (223) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
200
Tried for
Multiple Sclerosis (200) Fatigue (2)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
190
Tried for
Multiple Sclerosis (190) Fatigue (3)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
183
Tried for
Multiple Sclerosis (178) Balance problems (4)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
119
Tried for
Pain (93) Multiple Sclerosis (22)
4 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (766 evaluations)
Side effects
Flushing Facial flushing 219 more
Total evaluations
764
Tried for
Multiple Sclerosis (899) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (467 evaluations)
Side effects
Injection site pain Injection site itching 141 more
Total evaluations
468
Tried for
Multiple Sclerosis (618) Stiffness/Spasticity (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (274 evaluations)
Side effects
Headaches Fatigue 94 more
Total evaluations
278
Tried for
Multiple Sclerosis (390) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for Multiple Sclerosis (149 evaluations)
Side effects
Drowsiness Fatigue 41 more
Total evaluations
235
Tried for
Multiple Sclerosis (248) Stiffness/Spasticity (194)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (238 evaluations)
Side effects
Fatigue Headaches 83 more
Total evaluations
240
Tried for
Multiple Sclerosis (327) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Perceived effectiveness
for Multiple Sclerosis (178 evaluations)
Side effects
Hair loss Diarrhea 59 more
Total evaluations
181
Tried for
Multiple Sclerosis (223) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (134 evaluations)
Side effects
Flu like symptoms Headaches 91 more
Total evaluations
134
Tried for
Multiple Sclerosis (200) Fatigue (2)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (150 evaluations)
Side effects
Flu like symptoms Fever/chills 82 more
Total evaluations
150
Tried for
Multiple Sclerosis (190) Fatigue (3)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (132 evaluations)
Side effects
Insomnia Insomnia 33 more
Total evaluations
156
Tried for
Multiple Sclerosis (178) Balance problems (4)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (61 evaluations)
Side effects
Drowsiness Sleepiness 29 more
Total evaluations
94
Tried for
Pain (93) Multiple Sclerosis (22)
4 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 38
20s 1,489
30s 7,494
40s 14,261
50s 14,245
60s 7,289
70+ 1,252
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,750
20-29 years 8,950
30-39 years 9,380
40-49 years 5,643
50-59 years 1,395
60-69 years 123
70+ years 16

Sex

Distribution of sex

82% Female
18% Male

Types
Condition Types Proportion # of patients
Primary Progressive 3,277
Relapsing-Remitting 31,212
Secondary Progressive 4,856
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 31,351
Not Diagnosed 1,337

These charts show data from MS patients who have completed their condition history
Last updated: