Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
679
Tried for
multiple sclerosis (679) fatigue (1)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
449
Tried for
multiple sclerosis (449) stiffness/spasticity (4)
2 more
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
245
Tried for
multiple sclerosis (245)
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
240
Tried for
multiple sclerosis (240)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
225
Tried for
multiple sclerosis (225) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
201
Tried for
stiffness/spasticity (150) multiple sclerosis (116)
1 more
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
97
Tried for
multiple sclerosis (93) balance problems (3)
2 more
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
96
Tried for
multiple sclerosis (96) fatigue (2)
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
96
Tried for
multiple sclerosis (96) fatigue (1)
1 more
Treatment name(s)

(Ocrevus)
Type
Prescription Drug
How many have tried
90
Tried for
multiple sclerosis (90)

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (561 evaluations)
Side effects
flushing stomach pain 178 more
Total evaluations
562
Tried for
multiple sclerosis (680) fatigue (1)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (413 evaluations)
Side effects
injection site pain injection site bumps 130 more
Total evaluations
414
Tried for
multiple sclerosis (449) stiffness/spasticity (4)
2 more
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (181 evaluations)
Side effects
headaches fatigue 66 more
Total evaluations
185
Tried for
multiple sclerosis (245)
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (191 evaluations)
Side effects
hair loss diarrhea 65 more
Total evaluations
199
Tried for
multiple sclerosis (240)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (167 evaluations)
Side effects
fatigue headaches 53 more
Total evaluations
169
Tried for
multiple sclerosis (226) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for stiffness/spasticity (166 evaluations)
Side effects
fatigue drowsiness 27 more
Total evaluations
201
Tried for
stiffness/spasticity (150) multiple sclerosis (116)
1 more
Treatment name(s)

(Ampyra)
Perceived effectiveness
for multiple sclerosis (73 evaluations)
Side effects
insomnia sleeplessness 26 more
Total evaluations
86
Tried for
multiple sclerosis (93) balance problems (3)
2 more
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (65 evaluations)
Side effects
flu like symptoms headaches 33 more
Total evaluations
66
Tried for
multiple sclerosis (96) fatigue (2)
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (87 evaluations)
Side effects
headaches flu like symptoms 68 more
Total evaluations
87
Tried for
multiple sclerosis (96) fatigue (1)
1 more
Treatment name(s)

(Ocrevus)
Perceived effectiveness
for multiple sclerosis (50 evaluations)
Side effects
fatigue nausea 16 more
Total evaluations
51
Tried for
multiple sclerosis (90)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 45
20s 1,370
30s 7,424
40s 15,687
50s 17,050
60s 9,841
70+ 2,040
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,899
20-29 years 9,453
30-39 years 9,931
40-49 years 6,073
50-59 years 1,544
60-69 years 152
70+ years 17

Distribution of sex

Sex
Sex Proportion # of patients
Male 9,766
Female 44,205

Types
Condition Types Proportion # of patients
Primary progressive 3,954
Relapsing-remitting 35,753
Secondary progressive 5,389
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33,653
Not Diagnosed 1,352

These charts show data from MS patients who have completed their condition history
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