Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
752
Tried for
Multiple Sclerosis (752) Stiffness/Spasticity (6)
1 more
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Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
692
Tried for
Multiple Sclerosis (692)
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Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
546
Tried for
Multiple Sclerosis (546)
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Treatment name(s)

(Mylan Baclofen)
Type
Prescription Drug
How many have tried
500
Tried for
Multiple Sclerosis (433) Stiffness/Spasticity (221)
2 more
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Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
435
Tried for
Multiple Sclerosis (435) Fatigue (1)
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Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
315
Tried for
Multiple Sclerosis (315) Fatigue (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
297
Tried for
Multiple Sclerosis (295) Fatigue (3)
3 more
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Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
256
Tried for
Multiple Sclerosis (256) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
184
Tried for
Multiple Sclerosis (145) Fatigue (86)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
155
Tried for
Multiple Sclerosis (155) Depressed mood (1)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (443 evaluations)
Side effects
Injection site pain Injection site reaction 144 more
How many evaluations
444
Tried for
Multiple Sclerosis (752) Stiffness/Spasticity (6)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (534 evaluations)
Side effects
Flushing Facial flushing 177 more
How many evaluations
532
Tried for
Multiple Sclerosis (692)
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (343 evaluations)
Side effects
Headaches Elevated liver enzymes 145 more
How many evaluations
346
Tried for
Multiple Sclerosis (546)
Check to add this treatment to your profile
Treatment name(s)

(Mylan Baclofen)
Perceived effectiveness
for Multiple Sclerosis (171 evaluations)
Side effects
Drowsiness Tiredness 63 more
How many evaluations
224
Tried for
Multiple Sclerosis (433) Stiffness/Spasticity (221)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (281 evaluations)
Side effects
Fatigue Headaches 108 more
How many evaluations
283
Tried for
Multiple Sclerosis (435) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (191 evaluations)
Side effects
Flu like symptoms Headaches 105 more
How many evaluations
192
Tried for
Multiple Sclerosis (315) Fatigue (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (162 evaluations)
Side effects
Insomnia Nausea 48 more
How many evaluations
182
Tried for
Multiple Sclerosis (295) Fatigue (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (168 evaluations)
Side effects
Flu like symptoms Fever/chills 93 more
How many evaluations
168
Tried for
Multiple Sclerosis (256) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (51 evaluations)
Side effects
Anxious mood Dizziness 30 more
How many evaluations
88
Tried for
Multiple Sclerosis (145) Fatigue (86)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Perceived effectiveness
for Multiple Sclerosis (114 evaluations)
Side effects
Hair loss Diarrhea 44 more
How many evaluations
114
Tried for
Multiple Sclerosis (155) Depressed mood (1)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 60
20s 1,636
30s 7,518
40s 13,463
50s 12,551
60s 5,924
70+ 873

Sex

Distribution of sex

82% Female
18% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,599
20-29 years 8,614
30-39 years 8,922
40-49 years 5,359
50-59 years 1,301
60-69 years 115
70+ years 16

Types
Condition Types Proportion # of patients
Primary Progressive 3,004
Progressive Relapsing 1,723
Relapsing-Remitting 28,716
Secondary Progressive 4,529
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 29,979
Not Diagnosed 1,271

These charts show data from MS patients who have completed their condition history
Last updated: