Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
872
Tried for
Multiple Sclerosis (872) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
640
Tried for
Multiple Sclerosis (640) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
416
Tried for
Multiple Sclerosis (416) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
360
Tried for
Multiple Sclerosis (271) Stiffness/Spasticity (196)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
343
Tried for
Multiple Sclerosis (343) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
218
Tried for
Multiple Sclerosis (218) Fatigue (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
211
Tried for
Multiple Sclerosis (211) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
197
Tried for
Multiple Sclerosis (197) Fatigue (3)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
188
Tried for
Multiple Sclerosis (186) Stiffness/Spasticity (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
127
Tried for
Multiple Sclerosis (90) Fatigue (75)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (738 evaluations)
Side effects
Flushing Facial flushing 213 more
How many evaluations
736
Tried for
Multiple Sclerosis (872) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (464 evaluations)
Side effects
Injection site pain Injection site itching 142 more
How many evaluations
465
Tried for
Multiple Sclerosis (640) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (292 evaluations)
Side effects
Fatigue Headaches 101 more
How many evaluations
296
Tried for
Multiple Sclerosis (416) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for Multiple Sclerosis (157 evaluations)
Side effects
Drowsiness Fatigue 51 more
How many evaluations
242
Tried for
Multiple Sclerosis (271) Stiffness/Spasticity (196)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (248 evaluations)
Side effects
Fatigue Headaches 89 more
How many evaluations
250
Tried for
Multiple Sclerosis (343) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (141 evaluations)
Side effects
Flu like symptoms Headaches 92 more
How many evaluations
141
Tried for
Multiple Sclerosis (218) Fatigue (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Perceived effectiveness
for Multiple Sclerosis (171 evaluations)
Side effects
Hair loss Diarrhea 59 more
How many evaluations
174
Tried for
Multiple Sclerosis (211) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (157 evaluations)
Side effects
Flu like symptoms Fever/chills 84 more
How many evaluations
157
Tried for
Multiple Sclerosis (197) Fatigue (3)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (136 evaluations)
Side effects
Insomnia Anxious mood 40 more
How many evaluations
159
Tried for
Multiple Sclerosis (186) Stiffness/Spasticity (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (46 evaluations)
Side effects
Anxious mood Dizziness 30 more
How many evaluations
82
Tried for
Multiple Sclerosis (90) Fatigue (75)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 39
20s 1,506
30s 7,512
40s 14,120
50s 13,956
60s 7,043
70+ 1,187

Sex

Distribution of sex

82% Female
18% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,731
20-29 years 8,910
30-39 years 9,323
40-49 years 5,588
50-59 years 1,375
60-69 years 122
70+ years 16

Types
Condition Types Proportion # of patients
Primary Progressive 3,221
Progressive Relapsing 1,908
Relapsing-Remitting 30,803
Secondary Progressive 4,802
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 31,161
Not Diagnosed 1,330

These charts show data from MS patients who have completed their condition history
Last updated: