Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
943
Tried for
multiple sclerosis (943) Fatigue (1)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
547
Tried for
multiple sclerosis (547) Stiffness/Spasticity (5)
2 more
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
344
Tried for
multiple sclerosis (344) Depressed mood (1)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
298
Tried for
multiple sclerosis (298) Fatigue (2)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
274
Tried for
multiple sclerosis (183) Stiffness/Spasticity (176)
2 more
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
246
Tried for
multiple sclerosis (246)
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
152
Tried for
multiple sclerosis (148) Balance problems (3)
3 more
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
151
Tried for
multiple sclerosis (151) Fatigue (2)
1 more
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
149
Tried for
multiple sclerosis (149) Fatigue (3)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
98
Tried for
Pain (75) multiple sclerosis (16)
4 more

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (819 evaluations)
Side effects
Flushing Facial flushing 221 more
Total evaluations
818
Tried for
multiple sclerosis (943) Fatigue (1)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (443 evaluations)
Side effects
Injection site pain Injection site itching 141 more
Total evaluations
444
Tried for
multiple sclerosis (547) Stiffness/Spasticity (5)
2 more
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (253 evaluations)
Side effects
Headaches Fatigue 94 more
Total evaluations
258
Tried for
multiple sclerosis (344) Depressed mood (1)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (221 evaluations)
Side effects
Fatigue Headaches 77 more
Total evaluations
223
Tried for
multiple sclerosis (298) Fatigue (2)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for multiple sclerosis (139 evaluations)
Side effects
Drowsiness Fatigue 32 more
Total evaluations
225
Tried for
multiple sclerosis (183) Stiffness/Spasticity (176)
2 more
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (214 evaluations)
Side effects
Hair loss Diarrhea 64 more
Total evaluations
222
Tried for
multiple sclerosis (246)
Treatment name(s)

(Ampyra)
Perceived effectiveness
for multiple sclerosis (113 evaluations)
Side effects
Insomnia insomnia 31 more
Total evaluations
134
Tried for
multiple sclerosis (148) Balance problems (3)
3 more
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (110 evaluations)
Side effects
Flu like symptoms Headaches 78 more
Total evaluations
110
Tried for
multiple sclerosis (151) Fatigue (2)
1 more
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (130 evaluations)
Side effects
Flu like symptoms Fever/chills 65 more
Total evaluations
131
Tried for
multiple sclerosis (149) Fatigue (3)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (56 evaluations)
Side effects
Drowsiness Fatigue 24 more
Total evaluations
85
Tried for
Pain (75) multiple sclerosis (16)
4 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 43
20s 1,453
30s 7,421
40s 14,668
50s 14,991
60s 8,030
70+ 1,446
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,814
20-29 years 9,193
30-39 years 9,631
40-49 years 5,845
50-59 years 1,464
60-69 years 138
70+ years 17

Sex

Distribution of sex

82% Female
18% Male

Types
Condition Types Proportion # of patients
Primary progressive 3,430
Relapsing-remitting 32,237
Secondary progressive 4,979
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 32,072
Not Diagnosed 1,365

These charts show data from MS patients who have completed their condition history
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