Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
284
Tried for
multiple sclerosis (284) stiffness/spasticity (3)
1 more
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
266
Tried for
multiple sclerosis (266)
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
191
Tried for
multiple sclerosis (191)
Treatment name(s)

(Ocrevus)
Type
Prescription Drug
How many have tried
150
Tried for
multiple sclerosis (150)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
116
Tried for
multiple sclerosis (116) fatigue (2)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
111
Tried for
stiffness/spasticity (79) multiple sclerosis (69)
1 more
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
111
Tried for
multiple sclerosis (111)
Treatment name(s)

(Lemtrada)
Type
Prescription Drug
How many have tried
55
Tried for
multiple sclerosis (55)
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
52
Tried for
multiple sclerosis (52) fatigue (1)
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
52
Tried for
multiple sclerosis (51) fatigue (1)

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (231 evaluations)
Side effects
injection site pain injection site bumps 97 more
Total evaluations
231
Tried for
multiple sclerosis (284) stiffness/spasticity (3)
1 more
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (204 evaluations)
Side effects
flushing diarrhea 86 more
Total evaluations
205
Tried for
multiple sclerosis (266)
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (145 evaluations)
Side effects
hair loss diarrhea 58 more
Total evaluations
153
Tried for
multiple sclerosis (191)
Treatment name(s)

(Ocrevus)
Perceived effectiveness
for multiple sclerosis (96 evaluations)
Side effects
fatigue headaches 36 more
Total evaluations
97
Tried for
multiple sclerosis (150)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (88 evaluations)
Side effects
fatigue headaches 30 more
Total evaluations
88
Tried for
multiple sclerosis (116) fatigue (2)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for stiffness/spasticity (78 evaluations)
Side effects
drowsiness sleepiness 10 more
Total evaluations
113
Tried for
stiffness/spasticity (79) multiple sclerosis (69)
1 more
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (96 evaluations)
Side effects
hair loss headaches 35 more
Total evaluations
99
Tried for
multiple sclerosis (111)
Treatment name(s)

(Lemtrada)
Perceived effectiveness
for multiple sclerosis (65 evaluations)
Side effects
fatigue headaches 52 more
Total evaluations
65
Tried for
multiple sclerosis (55)
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (48 evaluations)
Side effects
headaches fatigue 51 more
Total evaluations
48
Tried for
multiple sclerosis (52) fatigue (1)
Treatment name(s)

(Rituxan)
Perceived effectiveness
for multiple sclerosis (31 evaluations)
Side effects
fatigue hair loss 20 more
Total evaluations
31
Tried for
multiple sclerosis (51) fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 32
20s 1116
30s 6911
40s 16177
50s 19462
60s 12365
70+ 3106
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2897
20-29 years 9456
30-39 years 9939
40-49 years 6073
50-59 years 1546
60-69 years 152
70+ years 18

Distribution of sex

Sex
Sex Proportion # of patients
Male 10791
Female 49006

Types
Condition Types Proportion # of patients
Primary progressive multiple sclerosis 4521
Relapsing-remitting multiple sclerosis 38855
Secondary progressive multiple sclerosis 5868
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33687
Not Diagnosed 1354

These charts show data from MS patients who have completed their condition history
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