Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
959
Tried for
multiple sclerosis (959) fatigue (1)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
537
Tried for
multiple sclerosis (537) stiffness/spasticity (5)
2 more
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
314
Tried for
multiple sclerosis (314) depressed mood (1)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
273
Tried for
multiple sclerosis (273) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
259
Tried for
stiffness/spasticity (169) multiple sclerosis (166)
2 more
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
256
Tried for
multiple sclerosis (256)
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
142
Tried for
multiple sclerosis (138) balance problems (3)
2 more
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
135
Tried for
multiple sclerosis (135) fatigue (3)
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
130
Tried for
multiple sclerosis (130) fatigue (2)
1 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
94
Tried for
pain (71) multiple sclerosis (15)
4 more

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (821 evaluations)
Side effects
flushing facial flushing 220 more
Total evaluations
820
Tried for
multiple sclerosis (959) fatigue (1)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (442 evaluations)
Side effects
injection site pain injection site itching 145 more
Total evaluations
443
Tried for
multiple sclerosis (537) stiffness/spasticity (5)
2 more
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (228 evaluations)
Side effects
headaches fatigue 83 more
Total evaluations
232
Tried for
multiple sclerosis (314) depressed mood (1)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (207 evaluations)
Side effects
fatigue headaches 73 more
Total evaluations
209
Tried for
multiple sclerosis (273) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for stiffness/spasticity (175 evaluations)
Side effects
drowsiness fatigue 29 more
Total evaluations
225
Tried for
stiffness/spasticity (169) multiple sclerosis (166)
2 more
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (211 evaluations)
Side effects
hair loss diarrhea 69 more
Total evaluations
219
Tried for
multiple sclerosis (256)
Treatment name(s)

(Ampyra)
Perceived effectiveness
for multiple sclerosis (106 evaluations)
Side effects
insomnia insomnia 30 more
Total evaluations
123
Tried for
multiple sclerosis (138) balance problems (3)
2 more
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (99 evaluations)
Side effects
flu like symptoms fever/chills 50 more
Total evaluations
100
Tried for
multiple sclerosis (135) fatigue (3)
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (103 evaluations)
Side effects
flu like symptoms headaches 71 more
Total evaluations
103
Tried for
multiple sclerosis (130) fatigue (2)
1 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (54 evaluations)
Side effects
fatigue drowsiness 23 more
Total evaluations
82
Tried for
pain (71) multiple sclerosis (15)
4 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 46
20s 1,461
30s 7,544
40s 15,242
50s 15,832
60s 8,665
70+ 1,678
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,884
20-29 years 9,447
30-39 years 9,922
40-49 years 6,066
50-59 years 1,544
60-69 years 152
70+ years 17

Sex

Distribution of sex

82% Female
18% Male

Types
Condition Types Proportion # of patients
Primary progressive 3,669
Relapsing-remitting 33,791
Secondary progressive 5,172
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33,086
Not Diagnosed 1,397

These charts show data from MS patients who have completed their condition history
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