Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
893
Tried for
multiple sclerosis (893) fatigue (1)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
502
Tried for
multiple sclerosis (502) stiffness/spasticity (4)
2 more
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
287
Tried for
multiple sclerosis (287) depressed mood (1)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
259
Tried for
multiple sclerosis (259) fatigue (1)
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
251
Tried for
multiple sclerosis (251)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
241
Tried for
stiffness/spasticity (164) multiple sclerosis (149)
2 more
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
132
Tried for
multiple sclerosis (128) balance problems (3)
2 more
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
128
Tried for
multiple sclerosis (128) fatigue (3)
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
118
Tried for
multiple sclerosis (118) fatigue (2)
1 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
91
Tried for
pain (68) multiple sclerosis (15)
4 more

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (757 evaluations)
Side effects
flushing nausea 206 more
Total evaluations
756
Tried for
multiple sclerosis (893) fatigue (1)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (437 evaluations)
Side effects
injection site pain injection site itching 144 more
Total evaluations
438
Tried for
multiple sclerosis (502) stiffness/spasticity (4)
2 more
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (205 evaluations)
Side effects
headaches fatigue 77 more
Total evaluations
209
Tried for
multiple sclerosis (287) depressed mood (1)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (197 evaluations)
Side effects
fatigue headaches 68 more
Total evaluations
199
Tried for
multiple sclerosis (259) fatigue (1)
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (202 evaluations)
Side effects
hair loss diarrhea 63 more
Total evaluations
210
Tried for
multiple sclerosis (251)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for stiffness/spasticity (174 evaluations)
Side effects
drowsiness fatigue 29 more
Total evaluations
222
Tried for
stiffness/spasticity (164) multiple sclerosis (149)
2 more
Treatment name(s)

(Ampyra)
Perceived effectiveness
for multiple sclerosis (101 evaluations)
Side effects
insomnia insomnia 28 more
Total evaluations
116
Tried for
multiple sclerosis (128) balance problems (3)
2 more
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (91 evaluations)
Side effects
flu like symptoms fever/chills 46 more
Total evaluations
92
Tried for
multiple sclerosis (128) fatigue (3)
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (98 evaluations)
Side effects
headaches flu like symptoms 70 more
Total evaluations
98
Tried for
multiple sclerosis (118) fatigue (2)
1 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (52 evaluations)
Side effects
fatigue sleepiness 22 more
Total evaluations
77
Tried for
pain (68) multiple sclerosis (15)
4 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 47
20s 1,383
30s 7,349
40s 15,133
50s 15,959
60s 8,949
70+ 1,783
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,887
20-29 years 9,451
30-39 years 9,919
40-49 years 6,066
50-59 years 1,543
60-69 years 151
70+ years 17

Distribution of sex

Sex
Sex Proportion # of patients
Male 9,310
Female 41,735

Types
Condition Types Proportion # of patients
Primary progressive 3,681
Relapsing-remitting 33,891
Secondary progressive 5,190
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33,580
Not Diagnosed 1,351

These charts show data from MS patients who have completed their condition history
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