Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
835
Tried for
multiple sclerosis (835) fatigue (1)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
496
Tried for
multiple sclerosis (496) stiffness/spasticity (4)
2 more
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
281
Tried for
multiple sclerosis (281) depressed mood (1)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
255
Tried for
multiple sclerosis (255) fatigue (1)
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
254
Tried for
multiple sclerosis (254)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
226
Tried for
stiffness/spasticity (159) multiple sclerosis (135)
2 more
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
128
Tried for
multiple sclerosis (128) fatigue (2)
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
126
Tried for
multiple sclerosis (122) balance problems (3)
2 more
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
116
Tried for
multiple sclerosis (116) fatigue (2)
1 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
90
Tried for
pain (68) multiple sclerosis (14)
4 more

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (685 evaluations)
Side effects
flushing nausea 197 more
Total evaluations
686
Tried for
multiple sclerosis (835) fatigue (1)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (433 evaluations)
Side effects
injection site pain injection site itching 145 more
Total evaluations
434
Tried for
multiple sclerosis (496) stiffness/spasticity (4)
2 more
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (205 evaluations)
Side effects
headaches fatigue 76 more
Total evaluations
209
Tried for
multiple sclerosis (281) depressed mood (1)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (195 evaluations)
Side effects
fatigue headaches 66 more
Total evaluations
197
Tried for
multiple sclerosis (255) fatigue (1)
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (204 evaluations)
Side effects
hair loss diarrhea 64 more
Total evaluations
212
Tried for
multiple sclerosis (254)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for stiffness/spasticity (175 evaluations)
Side effects
drowsiness fatigue 29 more
Total evaluations
217
Tried for
stiffness/spasticity (159) multiple sclerosis (135)
2 more
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (90 evaluations)
Side effects
flu like symptoms fever/chills 46 more
Total evaluations
91
Tried for
multiple sclerosis (128) fatigue (2)
Treatment name(s)

(Ampyra)
Perceived effectiveness
for multiple sclerosis (98 evaluations)
Side effects
insomnia balance problems 29 more
Total evaluations
113
Tried for
multiple sclerosis (122) balance problems (3)
2 more
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (98 evaluations)
Side effects
headaches flu like symptoms 70 more
Total evaluations
98
Tried for
multiple sclerosis (116) fatigue (2)
1 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (51 evaluations)
Side effects
fatigue sleepiness 22 more
Total evaluations
74
Tried for
pain (68) multiple sclerosis (14)
4 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 46
20s 1,362
30s 7,296
40s 15,116
50s 16,003
60s 9,010
70+ 1,818
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,888
20-29 years 9,453
30-39 years 9,919
40-49 years 6,065
50-59 years 1,543
60-69 years 151
70+ years 17

Distribution of sex

Sex
Sex Proportion # of patients
Male 9,317
Female 41,778

Types
Condition Types Proportion # of patients
Primary progressive 3,687
Relapsing-remitting 33,925
Secondary progressive 5,192
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33,585
Not Diagnosed 1,351

These charts show data from MS patients who have completed their condition history
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