Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
866
Tried for
Multiple Sclerosis (865) Stiffness/Spasticity (5)
2 more
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Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
616
Tried for
Multiple Sclerosis (616)
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Treatment name(s)

(Mylan Baclofen)
Type
Prescription Drug
How many have tried
587
Tried for
Multiple Sclerosis (514) Stiffness/Spasticity (238)
2 more
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Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
526
Tried for
Multiple Sclerosis (526)
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Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
503
Tried for
Multiple Sclerosis (503) Fatigue (1)
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Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
427
Tried for
Multiple Sclerosis (422) Stiffness/Spasticity (5)
2 more
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Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
392
Tried for
Multiple Sclerosis (392) Stiffness/Spasticity (5)
1 more
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Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
281
Tried for
Multiple Sclerosis (281) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
229
Tried for
Multiple Sclerosis (200) Fatigue (100)
2 more
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Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
159
Tried for
Multiple Sclerosis (154) Stiffness/Spasticity (4)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (468 evaluations)
Side effects
Injection site reaction Injection site pain 145 more
How many evaluations
469
Tried for
Multiple Sclerosis (865) Stiffness/Spasticity (5)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (383 evaluations)
Side effects
Headaches Elevated liver enzymes 154 more
How many evaluations
387
Tried for
Multiple Sclerosis (616)
Check to add this treatment to your profile
Treatment name(s)

(Mylan Baclofen)
Perceived effectiveness
for Multiple Sclerosis (162 evaluations)
Side effects
Drowsiness Tiredness 66 more
How many evaluations
225
Tried for
Multiple Sclerosis (514) Stiffness/Spasticity (238)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (382 evaluations)
Side effects
Flushing Facial flushing 155 more
How many evaluations
380
Tried for
Multiple Sclerosis (526)
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (314 evaluations)
Side effects
Headaches Fatigue 104 more
How many evaluations
316
Tried for
Multiple Sclerosis (503) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (187 evaluations)
Side effects
Insomnia Dizziness 55 more
How many evaluations
225
Tried for
Multiple Sclerosis (422) Stiffness/Spasticity (5)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (220 evaluations)
Side effects
Flu like symptoms Headaches 125 more
How many evaluations
221
Tried for
Multiple Sclerosis (392) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (183 evaluations)
Side effects
Flu like symptoms Fever/chills 99 more
How many evaluations
183
Tried for
Multiple Sclerosis (281) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (65 evaluations)
Side effects
Anxious mood Insomnia 32 more
How many evaluations
104
Tried for
Multiple Sclerosis (200) Fatigue (100)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
for Multiple Sclerosis (127 evaluations)
Side effects
Metallic taste in mouth Insomnia 99 more
How many evaluations
137
Tried for
Multiple Sclerosis (154) Stiffness/Spasticity (4)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 25
20s 1,245
30s 5,809
40s 10,499
50s 10,059
60s 4,683
70+ 702

Sex

Distribution of sex

80% Female
20% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,266
20-29 years 7,661
30-39 years 7,971
40-49 years 4,810
50-59 years 1,161
60-69 years 98
70+ years 14

Types
Condition Types Proportion # of patients
Primary Progressive 2,520
Progressive Relapsing 1,234
Relapsing-Remitting 22,534
Secondary Progressive 3,947
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 26,701
Not Diagnosed 1,137

These charts show data from MS patients who have completed their condition history
Last updated: