Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
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Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
908
Tried for
Multiple Sclerosis (907) Stiffness/Spasticity (6)
2 more
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Treatment name(s)

(Mylan Baclofen)
Type
Prescription Drug
How many have tried
609
Tried for
Multiple Sclerosis (537) Stiffness/Spasticity (243)
2 more
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Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
603
Tried for
Multiple Sclerosis (603)
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Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
536
Tried for
Multiple Sclerosis (535) Stiffness/Spasticity (2)
1 more
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Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
503
Tried for
Multiple Sclerosis (503)
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Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
487
Tried for
Multiple Sclerosis (482) Stiffness/Spasticity (5)
2 more
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Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
408
Tried for
Multiple Sclerosis (408) Stiffness/Spasticity (5)
1 more
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Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
299
Tried for
Multiple Sclerosis (299) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
250
Tried for
Multiple Sclerosis (219) Fatigue (108)
2 more
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Treatment name(s)

(Betaseron)
Type
Prescription Drug
How many have tried
173
Tried for
Multiple Sclerosis (173) Fatigue (1)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (495 evaluations)
Side effects
Injection site reaction Injection site pain 140 more
How many evaluations
495
Tried for
Multiple Sclerosis (907) Stiffness/Spasticity (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Mylan Baclofen)
Perceived effectiveness
for Multiple Sclerosis (157 evaluations)
Side effects
Drowsiness Tiredness 66 more
How many evaluations
222
Tried for
Multiple Sclerosis (537) Stiffness/Spasticity (243)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (374 evaluations)
Side effects
Headaches Elevated liver enzymes 153 more
How many evaluations
378
Tried for
Multiple Sclerosis (603)
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (379 evaluations)
Side effects
Headaches Fatigue 105 more
How many evaluations
381
Tried for
Multiple Sclerosis (535) Stiffness/Spasticity (2)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (351 evaluations)
Side effects
Flushing Facial flushing 150 more
How many evaluations
349
Tried for
Multiple Sclerosis (503)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (220 evaluations)
Side effects
Insomnia Dizziness 59 more
How many evaluations
272
Tried for
Multiple Sclerosis (482) Stiffness/Spasticity (5)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (225 evaluations)
Side effects
Flu like symptoms Headaches 122 more
How many evaluations
226
Tried for
Multiple Sclerosis (408) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (199 evaluations)
Side effects
Flu like symptoms Fever/chills 103 more
How many evaluations
199
Tried for
Multiple Sclerosis (299) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (65 evaluations)
Side effects
Anxious mood Insomnia 33 more
How many evaluations
106
Tried for
Multiple Sclerosis (219) Fatigue (108)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Betaseron)
Perceived effectiveness
for Multiple Sclerosis (107 evaluations)
Side effects
Flu like symptoms Injection site reaction 53 more
How many evaluations
107
Tried for
Multiple Sclerosis (173) Fatigue (1)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 28
20s 1,206
30s 5,700
40s 10,193
50s 9,820
60s 4,513
70+ 673

Sex

Distribution of sex

80% Female
20% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,234
20-29 years 7,593
30-39 years 7,906
40-49 years 4,755
50-59 years 1,146
60-69 years 97
70+ years 14

Types
Condition Types Proportion # of patients
Primary Progressive 2,444
Progressive Relapsing 1,198
Relapsing-Remitting 22,009
Secondary Progressive 3,837
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 26,434
Not Diagnosed 1,122

These charts show data from MS patients who have completed their condition history
Last updated: