Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
314
Tried for
multiple sclerosis (314) stiffness/spasticity (3)
1 more
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
310
Tried for
multiple sclerosis (310)
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
203
Tried for
multiple sclerosis (203)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
137
Tried for
multiple sclerosis (137) fatigue (2)
Treatment name(s)

(Ocrevus)
Type
Prescription Drug
How many have tried
137
Tried for
multiple sclerosis (137)
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
130
Tried for
multiple sclerosis (130)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
118
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
60
Tried for
multiple sclerosis (60) fatigue (1)
Treatment name(s)

(Lemtrada)
Type
Prescription Drug
How many have tried
57
Tried for
multiple sclerosis (57)
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
55
Tried for
multiple sclerosis (54) fatigue (1)

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (274 evaluations)
Side effects
injection site pain injection site bumps 106 more
Total evaluations
274
Tried for
multiple sclerosis (314) stiffness/spasticity (3)
1 more
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (249 evaluations)
Side effects
flushing diarrhea 103 more
Total evaluations
250
Tried for
multiple sclerosis (310)
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (150 evaluations)
Side effects
hair loss diarrhea 59 more
Total evaluations
158
Tried for
multiple sclerosis (203)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (96 evaluations)
Side effects
fatigue headaches 32 more
Total evaluations
98
Tried for
multiple sclerosis (137) fatigue (2)
Treatment name(s)

(Ocrevus)
Perceived effectiveness
for multiple sclerosis (80 evaluations)
Side effects
headaches fatigue 32 more
Total evaluations
81
Tried for
multiple sclerosis (137)
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (107 evaluations)
Side effects
hair loss fatigue 40 more
Total evaluations
111
Tried for
multiple sclerosis (130)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for stiffness/spasticity (76 evaluations)
Side effects
drowsiness fatigue 11 more
Total evaluations
103
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (53 evaluations)
Side effects
headaches flu like symptoms 53 more
Total evaluations
53
Tried for
multiple sclerosis (60) fatigue (1)
Treatment name(s)

(Lemtrada)
Perceived effectiveness
for multiple sclerosis (66 evaluations)
Side effects
fatigue headaches 58 more
Total evaluations
66
Tried for
multiple sclerosis (57)
Treatment name(s)

(Rituxan)
Perceived effectiveness
for multiple sclerosis (32 evaluations)
Side effects
fatigue hair loss 21 more
Total evaluations
32
Tried for
multiple sclerosis (54) fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 35
20s 1173
30s 7090
40s 16188
50s 18996
60s 11818
70+ 2863
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2897
20-29 years 9455
30-39 years 9939
40-49 years 6070
50-59 years 1548
60-69 years 152
70+ years 18

Distribution of sex

Sex
Sex Proportion # of patients
Male 10598
Female 48173

Types
Condition Types Proportion # of patients
Primary progressive multiple sclerosis 4413
Relapsing-remitting multiple sclerosis 38370
Secondary progressive multiple sclerosis 5773
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33688
Not Diagnosed 1353

These charts show data from MS patients who have completed their condition history
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