Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
676
Tried for
multiple sclerosis (676) fatigue (1)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
447
Tried for
multiple sclerosis (447) stiffness/spasticity (4)
2 more
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
244
Tried for
multiple sclerosis (244)
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
240
Tried for
multiple sclerosis (240)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
225
Tried for
multiple sclerosis (225) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
201
Tried for
stiffness/spasticity (150) multiple sclerosis (116)
1 more
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
97
Tried for
multiple sclerosis (93) balance problems (3)
2 more
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
96
Tried for
multiple sclerosis (96) fatigue (2)
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
96
Tried for
multiple sclerosis (96) fatigue (1)
1 more
Treatment name(s)

(Ocrevus)
Type
Prescription Drug
How many have tried
90
Tried for
multiple sclerosis (90)

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (558 evaluations)
Side effects
flushing stomach pain 176 more
Total evaluations
559
Tried for
multiple sclerosis (676) fatigue (1)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (410 evaluations)
Side effects
injection site pain injection site bumps 130 more
Total evaluations
411
Tried for
multiple sclerosis (447) stiffness/spasticity (4)
2 more
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (179 evaluations)
Side effects
headaches fatigue 64 more
Total evaluations
183
Tried for
multiple sclerosis (244)
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (192 evaluations)
Side effects
hair loss diarrhea 65 more
Total evaluations
200
Tried for
multiple sclerosis (240)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (167 evaluations)
Side effects
fatigue headaches 53 more
Total evaluations
169
Tried for
multiple sclerosis (225) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for stiffness/spasticity (166 evaluations)
Side effects
fatigue drowsiness 27 more
Total evaluations
201
Tried for
stiffness/spasticity (150) multiple sclerosis (116)
1 more
Treatment name(s)

(Ampyra)
Perceived effectiveness
for multiple sclerosis (73 evaluations)
Side effects
insomnia sleeplessness 26 more
Total evaluations
86
Tried for
multiple sclerosis (93) balance problems (3)
2 more
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (65 evaluations)
Side effects
flu like symptoms headaches 33 more
Total evaluations
66
Tried for
multiple sclerosis (96) fatigue (2)
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (87 evaluations)
Side effects
headaches flu like symptoms 68 more
Total evaluations
87
Tried for
multiple sclerosis (96) fatigue (1)
1 more
Treatment name(s)

(Ocrevus)
Perceived effectiveness
for multiple sclerosis (52 evaluations)
Side effects
fatigue nausea 16 more
Total evaluations
53
Tried for
multiple sclerosis (90)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 46
20s 1376
30s 7427
40s 15727
50s 17114
60s 9870
70+ 2048
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2899
20-29 years 9452
30-39 years 9931
40-49 years 6073
50-59 years 1545
60-69 years 152
70+ years 17

Distribution of sex

Sex
Sex Proportion # of patients
Male 9792
Female 44341

Types
Condition Types Proportion # of patients
Primary progressive 3962
Relapsing-remitting 35831
Secondary progressive 5407
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33654
Not Diagnosed 1352

These charts show data from MS patients who have completed their condition history
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