Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with multiple sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
922
Tried for
multiple sclerosis (922) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
595
Tried for
multiple sclerosis (595) Stiffness/Spasticity (5)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
375
Tried for
multiple sclerosis (375) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
324
Tried for
multiple sclerosis (324) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
312
Tried for
multiple sclerosis (221) Stiffness/Spasticity (184)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
234
Tried for
multiple sclerosis (234) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
191
Tried for
multiple sclerosis (191) Fatigue (2)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
181
Tried for
multiple sclerosis (181) Fatigue (3)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
176
Tried for
multiple sclerosis (172) Balance problems (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
113
Tried for
Pain (90) multiple sclerosis (20)
4 more

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with multiple sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (793 evaluations)
Side effects
Flushing Facial flushing 218 more
Total evaluations
792
Tried for
multiple sclerosis (922) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (453 evaluations)
Side effects
Injection site pain Injection site itching 144 more
Total evaluations
454
Tried for
multiple sclerosis (595) Stiffness/Spasticity (5)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (263 evaluations)
Side effects
Headaches Fatigue 90 more
Total evaluations
267
Tried for
multiple sclerosis (375) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (244 evaluations)
Side effects
Fatigue Headaches 84 more
Total evaluations
246
Tried for
multiple sclerosis (324) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for multiple sclerosis (143 evaluations)
Side effects
Drowsiness Fatigue 38 more
Total evaluations
231
Tried for
multiple sclerosis (221) Stiffness/Spasticity (184)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (198 evaluations)
Side effects
Hair loss Diarrhea 61 more
Total evaluations
206
Tried for
multiple sclerosis (234) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (129 evaluations)
Side effects
Flu like symptoms Headaches 90 more
Total evaluations
129
Tried for
multiple sclerosis (191) Fatigue (2)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (145 evaluations)
Side effects
Flu like symptoms Headaches 80 more
Total evaluations
146
Tried for
multiple sclerosis (181) Fatigue (3)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for multiple sclerosis (125 evaluations)
Side effects
Insomnia insomnia 34 more
Total evaluations
146
Tried for
multiple sclerosis (172) Balance problems (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (62 evaluations)
Side effects
Drowsiness Sleepiness 27 more
Total evaluations
92
Tried for
Pain (90) multiple sclerosis (20)
4 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 42
20s 1,461
30s 7,419
40s 14,351
50s 14,388
60s 7,546
70+ 1,310
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,761
20-29 years 8,994
30-39 years 9,429
40-49 years 5,682
50-59 years 1,404
60-69 years 127
70+ years 15

Sex

Distribution of sex

82% Female
18% Male

Types
Condition Types Proportion # of patients
Primary Progressive 3,309
Relapsing-Remitting 31,446
Secondary Progressive 4,884
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 31,475
Not Diagnosed 1,343

These charts show data from MS patients who have completed their condition history
Last updated: