Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
882
Tried for
Multiple Sclerosis (882) Fatigue (1)
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Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
627
Tried for
Multiple Sclerosis (626) Stiffness/Spasticity (6)
3 more
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Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
397
Tried for
Multiple Sclerosis (397) Depressed mood (1)
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Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
349
Tried for
Multiple Sclerosis (259) Stiffness/Spasticity (192)
2 more
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Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
336
Tried for
Multiple Sclerosis (336) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
213
Tried for
Multiple Sclerosis (213) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
202
Tried for
Multiple Sclerosis (202) Fatigue (2)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
190
Tried for
Multiple Sclerosis (190) Fatigue (3)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
184
Tried for
Multiple Sclerosis (179) Balance problems (4)
3 more
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
120
Tried for
Pain (94) Multiple Sclerosis (23)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (749 evaluations)
Side effects
Flushing Facial flushing 213 more
How many evaluations
747
Tried for
Multiple Sclerosis (882) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (460 evaluations)
Side effects
Injection site pain Injection site itching 138 more
How many evaluations
461
Tried for
Multiple Sclerosis (626) Stiffness/Spasticity (6)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (280 evaluations)
Side effects
Fatigue Headaches 93 more
How many evaluations
284
Tried for
Multiple Sclerosis (397) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for Multiple Sclerosis (151 evaluations)
Side effects
Drowsiness Fatigue 51 more
How many evaluations
238
Tried for
Multiple Sclerosis (259) Stiffness/Spasticity (192)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (245 evaluations)
Side effects
Fatigue Headaches 86 more
How many evaluations
247
Tried for
Multiple Sclerosis (336) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Perceived effectiveness
for Multiple Sclerosis (172 evaluations)
Side effects
Hair loss Diarrhea 59 more
How many evaluations
175
Tried for
Multiple Sclerosis (213) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (133 evaluations)
Side effects
Flu like symptoms Headaches 90 more
How many evaluations
133
Tried for
Multiple Sclerosis (202) Fatigue (2)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (150 evaluations)
Side effects
Flu like symptoms Fever/chills 84 more
How many evaluations
150
Tried for
Multiple Sclerosis (190) Fatigue (3)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (133 evaluations)
Side effects
Insomnia Insomnia 33 more
How many evaluations
157
Tried for
Multiple Sclerosis (179) Balance problems (4)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (59 evaluations)
Side effects
Drowsiness Sleepiness 29 more
How many evaluations
90
Tried for
Pain (94) Multiple Sclerosis (23)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 37
20s 1,496
30s 7,517
40s 14,166
50s 14,089
60s 7,155
70+ 1,219

Sex

Distribution of sex

82% Female
18% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,735
20-29 years 8,926
30-39 years 9,353
40-49 years 5,610
50-59 years 1,386
60-69 years 123
70+ years 16

Types
Condition Types Proportion # of patients
Primary Progressive 3,246
Progressive Relapsing 1,921
Relapsing-Remitting 30,981
Secondary Progressive 4,829
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 31,245
Not Diagnosed 1,330

These charts show data from MS patients who have completed their condition history
Last updated: