Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
945
Tried for
multiple sclerosis (945) fatigue (1)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
542
Tried for
multiple sclerosis (542) stiffness/spasticity (5)
2 more
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
338
Tried for
multiple sclerosis (338) depressed mood (1)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
298
Tried for
multiple sclerosis (298) fatigue (2)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
271
Tried for
multiple sclerosis (181) stiffness/spasticity (174)
2 more
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
250
Tried for
multiple sclerosis (250)
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
151
Tried for
multiple sclerosis (147) balance problems (3)
2 more
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
147
Tried for
multiple sclerosis (147) fatigue (2)
1 more
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
144
Tried for
multiple sclerosis (144) fatigue (3)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
98
Tried for
pain (75) multiple sclerosis (16)
4 more

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (819 evaluations)
Side effects
flushing facial flushing 221 more
Total evaluations
818
Tried for
multiple sclerosis (945) fatigue (1)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (441 evaluations)
Side effects
injection site pain injection site itching 143 more
Total evaluations
442
Tried for
multiple sclerosis (542) stiffness/spasticity (5)
2 more
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (245 evaluations)
Side effects
headaches fatigue 89 more
Total evaluations
250
Tried for
multiple sclerosis (338) depressed mood (1)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (218 evaluations)
Side effects
fatigue headaches 79 more
Total evaluations
220
Tried for
multiple sclerosis (298) fatigue (2)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for multiple sclerosis (140 evaluations)
Side effects
drowsiness fatigue 31 more
Total evaluations
224
Tried for
multiple sclerosis (181) stiffness/spasticity (174)
2 more
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (218 evaluations)
Side effects
hair loss diarrhea 65 more
Total evaluations
226
Tried for
multiple sclerosis (250)
Treatment name(s)

(Ampyra)
Perceived effectiveness
for multiple sclerosis (113 evaluations)
Side effects
insomnia insomnia 31 more
Total evaluations
131
Tried for
multiple sclerosis (147) balance problems (3)
2 more
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (109 evaluations)
Side effects
flu like symptoms headaches 79 more
Total evaluations
109
Tried for
multiple sclerosis (147) fatigue (2)
1 more
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (122 evaluations)
Side effects
flu like symptoms fever/chills 61 more
Total evaluations
123
Tried for
multiple sclerosis (144) fatigue (3)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (56 evaluations)
Side effects
drowsiness fatigue 24 more
Total evaluations
85
Tried for
pain (75) multiple sclerosis (16)
4 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 45
20s 1,464
30s 7,450
40s 14,809
50s 15,161
60s 8,123
70+ 1,490
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,834
20-29 years 9,253
30-39 years 9,703
40-49 years 5,894
50-59 years 1,486
60-69 years 141
70+ years 17

Sex

Distribution of sex

82% Female
18% Male

Types
Condition Types Proportion # of patients
Primary progressive 3,475
Relapsing-remitting 32,645
Secondary progressive 5,027
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 32,375
Not Diagnosed 1,376

These charts show data from MS patients who have completed their condition history
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