Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
951
Tried for
multiple sclerosis (951) fatigue (1)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
556
Tried for
multiple sclerosis (556) stiffness/spasticity (5)
2 more
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
334
Tried for
multiple sclerosis (334) depressed mood (1)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
292
Tried for
multiple sclerosis (292) fatigue (2)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
267
Tried for
multiple sclerosis (175) stiffness/spasticity (171)
2 more
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
259
Tried for
multiple sclerosis (259)
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
149
Tried for
multiple sclerosis (145) balance problems (3)
2 more
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
144
Tried for
multiple sclerosis (144) fatigue (3)
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
141
Tried for
multiple sclerosis (141) fatigue (2)
1 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
97
Tried for
Pain (75) multiple sclerosis (15)
4 more

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (824 evaluations)
Side effects
flushing facial flushing 220 more
Total evaluations
823
Tried for
multiple sclerosis (951) fatigue (1)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (451 evaluations)
Side effects
injection site pain injection site itching 146 more
Total evaluations
452
Tried for
multiple sclerosis (556) stiffness/spasticity (5)
2 more
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (246 evaluations)
Side effects
headaches fatigue 89 more
Total evaluations
251
Tried for
multiple sclerosis (334) depressed mood (1)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (218 evaluations)
Side effects
fatigue headaches 77 more
Total evaluations
220
Tried for
multiple sclerosis (292) fatigue (2)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for multiple sclerosis (138 evaluations)
Side effects
drowsiness fatigue 31 more
Total evaluations
222
Tried for
multiple sclerosis (175) stiffness/spasticity (171)
2 more
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (221 evaluations)
Side effects
hair loss diarrhea 65 more
Total evaluations
229
Tried for
multiple sclerosis (259)
Treatment name(s)

(Ampyra)
Perceived effectiveness
for multiple sclerosis (115 evaluations)
Side effects
insomnia insomnia 30 more
Total evaluations
133
Tried for
multiple sclerosis (145) balance problems (3)
2 more
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (112 evaluations)
Side effects
flu like symptoms fever/chills 58 more
Total evaluations
113
Tried for
multiple sclerosis (144) fatigue (3)
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (108 evaluations)
Side effects
flu like symptoms headaches 78 more
Total evaluations
108
Tried for
multiple sclerosis (141) fatigue (2)
1 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (55 evaluations)
Side effects
fatigue drowsiness 24 more
Total evaluations
82
Tried for
Pain (75) multiple sclerosis (15)
4 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 49
20s 1,486
30s 7,512
40s 15,128
50s 15,525
60s 8,392
70+ 1,576
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,872
20-29 years 9,398
30-39 years 9,862
40-49 years 6,007
50-59 years 1,527
60-69 years 149
70+ years 17

Sex

Distribution of sex

82% Female
18% Male

Types
Condition Types Proportion # of patients
Primary progressive 3,575
Relapsing-remitting 33,291
Secondary progressive 5,101
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 32,880
Not Diagnosed 1,386

These charts show data from MS patients who have completed their condition history
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