What is Pilocarpine?

Category: Prescription Drugs

Most popular types: Salagen

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Pilocarpine, as an ophthalmic agent that is used in the management of chronic simple glaucoma, chronic and acute angle-closure glaucoma. When given orally it is used to treat symptoms of dry mouth caused by decreased function of salivary glands.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Sjogren's Syndrome 65 28
Dry mouth 10 9
Sjogrens syndrome 8 3
Dry eyes 2 1
Decreased saliva 1 1
Excess saliva 1 0

Show all 10 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 2
Moderate 4
Mild 6
None 23

Commonly reported side effects and conditions associated with Pilocarpine

Side effect Patients
Sweating 4
Sweating increased 3
Excessive sweating 1
Excess saliva 1
Flu like symptoms 1
Heart palpitations 1

Show all 10 reported side effects

Dosages

Based on patients currently taking Pilocarpine

Dosage Patients
5 mg daily 3
5 mg three times daily 3
10 mg daily 2
15 mg daily 2
22.5 mg daily 2
5 mg weekly 1
5 mg twice daily 1
20 mg daily 1
200 mg daily 1
3 5mg as needed 1

Why patients stopped taking Pilocarpine

Multiple reasons could be selected

Reason Patients
Did not seem to work 10
Side effects too severe 10
Doctor's advice 9
Other 4
Expense 3
Change in health plan coverage 1
See all 30 patients who’ve stopped taking Pilocarpine

Duration

Currently taking Pilocarpine

Duration Patients
1 - 6 months 2
6 months - 1 year 1
1 - 2 years 1
2 - 5 years 8
5 - 10 years 4
10 years or more 1

Stopped taking Pilocarpine

Duration Patients
Less than 1 month 5
1 - 6 months 10
6 months - 1 year 4
1 - 2 years 5
2 - 5 years 5
Adherence
Adherence Evaluations
Always 24
Usually 8
Sometimes 2
Never taken as prescribed 1
Burden
Burden Evaluations
Very hard to take 1
Somewhat hard to take 5
A little hard to take 5
Not at all hard to take 24
Cost per month
Cost per month Evaluations
$200+ 0
$100-199 0
$50-99 4
$25-49 2
< $25 13
Not specified 16

What people switch to and from

Patients started taking Pilocarpine after stopping:

Treatment Patients
Cevimeline (Evoxac) 1

Patients stopped taking Pilocarpine and switched to:

Treatment Patients
Cevimeline (Evoxac) 3
Last updated:

3 patient evaluations for Pilocarpine

30 members have decided to share their profiles only with other members of PatientsLikeMe.

Echo Mountain
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Echo Mountain
Gender: M
Data Quality: 3 stars
Pain: All
Fatigue: All
Sleep: All
Stiffness: All
function: None
external_stress: Some
Stickman: all
Description:M43y
CFS:10y Dx
FM:10y Dx
I am: b
I have:
ME/CFS

See Echo Mountain's full Pilocarpine history

Sep 1, 2013 (Started Jun 30, 2013)

  • Effectiveness
    None (for Dry mouth)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 15 mg Daily
Advice & Tips: Does not seem to affect the condition it was prescribed for much, if any. Originally told to use a cheaper medication than the one the doctor originally prescribed. Doctor tried this medication and it is ineffective.
Cost: < $25 monthly

  • 0 helpful marks
goldengirl101
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goldengirl101
Data Quality: 1 star
  • Gender: F
  • Age: 56
Condition: Systemic Lupus Erythematosus 2 additional condition(s)
Quality of life:
  • Mental: Moderate
  • Physical: Severe
I am: vb
I have:
Systemic Lupus Erythematosus

See goldengirl101's full Pilocarpine history

May 21, 2013 (Started Jan 21, 2012)

  • Effectiveness
    None (for Sjogren's Syndrome)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 5 mg Daily

  • 0 helpful marks
daiseyblue
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daiseyblue
Data Quality: 1 star
  • Gender: F
  • Age: 62
Condition: Systemic Lupus Erythematosus 14 additional condition(s)
Quality of life:
  • Mental: Mild
  • Physical: Moderate
I am: b
I have:
Systemic Lupus Erythematosus

See daiseyblue's full Pilocarpine history

Jun 21, 2007 (Started Jun 01, 2007)

  • Effectiveness
    Moderate (for Sjogren's Syndrome)
  • Side effects
    Severe (Heart palpitations)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 5 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 3 patient evaluations for Pilocarpine