Glaucoma

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is glaucoma?

Glaucoma is an eye disease characterized by an increase in intraocular pressure that causes pathologic changes in the optic disk and typical defects in the field of vision.

Common symptoms reported by people with glaucoma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with glaucoma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Xalatan)
Type
Prescription Drug
How many have tried
12
Tried for
glaucoma (12)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
6
Tried for
pain (6)
Treatment name(s)

(Alphagan Eye Drops)
Type
Prescription Drug
How many have tried
5
Tried for
glaucoma (5)
Treatment name(s)

(Lumigan)
Type
Prescription Drug
How many have tried
4
Tried for
glaucoma (4)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Methadose)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Timolol GFS)
Type
Prescription Drug
How many have tried
4
Tried for
glaucoma (4)
Treatment name(s)

(Tylenol with Codeine #3)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)

Data from patients with glaucoma, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with glaucoma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Xalatan)
Perceived effectiveness
for glaucoma (6 evaluations)
Side effects
burning sensation ineffective cough 3 more
Total evaluations
8
Tried for
glaucoma (12)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (4 evaluations)
Side effects
dizziness excessive dry mouth 1 more
Total evaluations
4
Tried for
pain (6)
Treatment name(s)

(Alphagan Eye Drops)
Perceived effectiveness
for glaucoma (7 evaluations)
Side effects
eyes stinging hip pain radiating down legs
Total evaluations
7
Tried for
glaucoma (5)
Treatment name(s)

(Lumigan)
Perceived effectiveness
for glaucoma (4 evaluations)
Side effects
burning sensation in eyes eye irritation 1 more
Total evaluations
4
Tried for
glaucoma (4)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
3
Tried for
pain (4)
Treatment name(s)

(Methadose)
Perceived effectiveness
for pain (1 evaluation)
Side effects
excessive daytime sleepiness (somnolence) slurred speech 1 more
Total evaluations
3
Tried for
pain (4)
Treatment name(s)

(Timolol GFS)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
glaucoma (4)
Treatment name(s)

(Tylenol with Codeine #3)
Perceived effectiveness
for pain (3 evaluations)
Side effects
constipation
Total evaluations
3
Tried for
pain (3)
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for pain (3 evaluations)
Side effects
Total evaluations
3
Tried for
pain (3)
Treatment name(s)

(Ativan)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with glaucoma, who reported starting treatments within the last 5 years.
Last updated:

Who has glaucoma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 17
30s 55
40s 99
50s 163
60s 179
70+ 142
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 28
20-29 years 23
30-39 years 27
40-49 years 60
50-59 years 49
60-69 years 22
70+ years 7

Distribution of sex

Sex
Sex Proportion # of patients
Male 198
Female 461

Types
Condition Types Proportion # of patients
Chronic angle-closure glaucoma 48
Iridocorneal endothelial syndrome (ICE) 2
Neovascular glaucoma 1
Normal tension glaucoma 14
Pigmentary glaucoma 15
Primary open-angle glaucoma 26
Pseudoexfoliative glaucoma 1
Traumatic glaucoma 1
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 426
Not Diagnosed 12

These charts show data from glaucoma patients who have completed their condition history
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