Glaucoma

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is glaucoma?

Glaucoma is an eye disease characterized by an increase in intraocular pressure that causes pathologic changes in the optic disk and typical defects in the field of vision.

Common symptoms reported by people with glaucoma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with glaucoma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Xalatan)
Type
Prescription Drug
How many have tried
10
Tried for
glaucoma (10)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
7
Tried for
pain (7)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
6
Tried for
depressed mood (6) pain (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
6
Tried for
pain (6)
Treatment name(s)

(Alphagan Eye Drops)
Type
Prescription Drug
How many have tried
5
Tried for
glaucoma (5)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
4
Tried for
anxious mood (4)
Treatment name(s)

(Methadose)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Timolol GFS)
Type
Prescription Drug
How many have tried
4
Tried for
glaucoma (4)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Lumigan)
Type
Prescription Drug
How many have tried
3
Tried for
glaucoma (3)

Data from patients with glaucoma, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with glaucoma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Xalatan)
Perceived effectiveness
for glaucoma (6 evaluations)
Side effects
ineffective cough inflammation 2 more
Total evaluations
8
Tried for
glaucoma (10)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
3
Tried for
pain (7)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
decreased sex drive (libido) hunger
Total evaluations
2
Tried for
depressed mood (6) pain (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (3 evaluations)
Side effects
dizziness excessive dry mouth
Total evaluations
3
Tried for
pain (6)
Treatment name(s)

(Alphagan Eye Drops)
Perceived effectiveness
for glaucoma (7 evaluations)
Side effects
eyes stinging hip pain radiating down legs
Total evaluations
7
Tried for
glaucoma (5)
Treatment name(s)

(Ativan)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (4)
Treatment name(s)

(Methadose)
Perceived effectiveness
for pain (1 evaluation)
Side effects
excessive daytime sleepiness (somnolence) slurred speech 1 more
Total evaluations
3
Tried for
pain (4)
Treatment name(s)

(Timolol GFS)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
glaucoma (4)
Treatment name(s)

(Tylenol)
Perceived effectiveness
for pain (2 evaluations)
Side effects
elevated liver enzymes
Total evaluations
2
Tried for
pain (3)
Treatment name(s)

(Lumigan)
Perceived effectiveness
for glaucoma (3 evaluations)
Side effects
eye irritation eyes red
Total evaluations
3
Tried for
glaucoma (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with glaucoma, who reported starting treatments within the last 5 years.
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Who has glaucoma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 19
30s 54
40s 98
50s 155
60s 169
70+ 133
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 28
20-29 years 23
30-39 years 27
40-49 years 60
50-59 years 49
60-69 years 22
70+ years 7

Distribution of sex

Sex
Sex Proportion # of patients
Male 187
Female 445

Types
Condition Types Proportion # of patients
Chronic angle-closure glaucoma 46
Iridocorneal endothelial syndrome (ICE) 2
Neovascular glaucoma 1
Normal tension glaucoma 9
Pigmentary glaucoma 15
Primary open-angle glaucoma 23
Pseudoexfoliative glaucoma 1
Traumatic glaucoma 1
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 420
Not Diagnosed 12

These charts show data from glaucoma patients who have completed their condition history
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