What is Benlysta?

Category: Prescription Drugs

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Generic name: Belimumab

Benlysta®, a brand name for belimumab, is a medication used to treat systemic lupus erythematosus. It works by decreasing the activity of a certain type of cell in the immune system so the body’s overall autoimmune response is lowered.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Systemic lupus erythematosus 65 44
Autoimmune hemolytic anemia 1 0
CNS lupus 1 1
Mixed connective tissue disease 1 1
Psoriasis 1 0

Show all 6 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 7
Moderate 11
Mild 15
None 11

Commonly reported side effects and conditions associated with Benlysta

Side effect Patients
Nausea 7
Diarrhea 4
Fatigue 4
Headaches 4
Insomnia 3
Fever/chills 2

Show all 47 reported side effects

Dosages

Based on patients currently taking Benlysta

Dosage Patients
200 mg weekly 7
400 mg every 4 weeks 2
800 mg monthly 2
1 intl units monthly 1
1 other monthly 1
1 mg every 4 weeks 1
1 other every 4 weeks 1
120 mg every 4 weeks 1
200 mg monthly 1
200 mg every 4 weeks 1

See all 18 dosages

Why patients stopped taking Benlysta

Multiple reasons could be selected

Reason Patients
Side effects too severe 7
Other 6
Did not seem to work 5
Doctor's advice 5
Course of treatment ended 2
Expense 2
Personal research 1
See all 20 patients who've stopped taking Benlysta

Duration

Currently taking Benlysta

Duration Patients
Less than 1 month 1
1 - 6 months 1
6 months - 1 year 7
1 - 2 years 8
2 - 5 years 8
5 - 10 years 2

Stopped taking Benlysta

Duration Patients
Less than 1 month 6
1 - 6 months 6
6 months - 1 year 3
1 - 2 years 2
2 - 5 years 2
5 - 10 years 1
Adherence
Adherence Evaluations
Always 40
Usually 1
Sometimes 1
Never taken as prescribed 2
Burden
Burden Evaluations
Very hard to take 8
Somewhat hard to take 10
A little hard to take 13
Not at all hard to take 13
Cost per month
Cost per month Evaluations
$200+ 6
$100-199 0
$50-99 1
$25-49 4
< $25 20
Not specified 13

What people switch to and from

Patients started taking Benlysta after stopping:

Treatment Patients
Methotrexate (Apo-Methotrexate) 7
Prednisone (Deltasone) 4
Azathioprine (Imuran) 3
Mycophenolate mofetil (CellCept) 3
Corticotropin (Acthar Gel HP) 1

Show all 11 treatments patients report switching from

Patients stopped taking Benlysta and switched to:

Treatment Patients
Hydroxychloroquine (Plaquenil) 3
Rituximab (Rituxan) 2
Abatacept (Orencia) 1
Methotrexate (Apo-Methotrexate) 1
Mycophenolate mofetil (CellCept) 1

Show all 6 treatments patients report switching to

Last updated:

1 patient evaluation for Benlysta

Jul 24, 2013 (Started Aug 30, 2012)

  • Effectiveness
    Slight (for systemic lupus erythematosus)
  • Side effects
    Mild (headaches, nausea)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 580 mg Monthly

Oct 1, 2012 (Started Aug 30, 2012)

  • Effectiveness
    Can't tell (for systemic lupus erythematosus)
  • Side effects
    Moderate (headaches, nausea)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 580 mg Monthly

  • 0 helpful marks
Last updated:
Showing 1 of 1 patient evaluation for Benlysta