Wilson disease
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is Wilson disease?
Wilson's disease is an autosomal recessive genetic disorder characterized by copper accumulation leading to neurological or psychiatric symptoms and liver disease.
Common symptoms reported by people with Wilson disease
Treatments taken by people for Wilson disease
Let’s build this page together! When you share what it’s like to have Wilson disease through your profile, those stories and data appear here too.
Got a question about living with Wilson disease? Members in the forum might have the answers.
Compare treatments taken by people with Wilson disease
Let’s build this page together! When you share what it’s like to have Wilson disease through your profile, those stories and data appear here too.
Got a question about living with Wilson disease? Members in the forum might have the answers.
Who has Wilson disease on PatientsLikeMe?
- 0 new patients joined this month
- 28 say Wilson disease is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 9 | |
| 30s | 13 | |
| 40s | 6 | |
| 50s | 10 | |
| 60s | 1 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 2 | |
| 20-29 years | 2 | |
| 30-39 years | 1 | |
| 40-49 years | 0 | |
| 50-59 years | 1 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 20 | |
| Female | 19 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 7 | |
| Not Diagnosed | 1 |