Temporomandibular joint syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is temporomandibular joint syndrome?

Temporomandibular joint disorder includes several subtypes involving the mandibular joint of the jaw. It results in dysfunction or limitations in motion causing significant pain and impairment. The 3 variants of TMJ include muscle disorders, joint derangement, and degenerative joint disorders.

Common symptoms reported by people with temporomandibular joint syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with temporomandibular joint syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
13
Tried for
anxious mood (11) depressed mood (4)
1 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
13
Tried for
pain (13)
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
12
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
11
Tried for
pain (11)
Treatment name(s)

(Pamelor)
Type
Prescription Drug
How many have tried
9
Tried for
pain (8) depressed mood (4)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
8
Tried for
pain (6) temporomandibular joint syndrome (2)
1 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
8
Tried for
pain (8)
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
8
Tried for
pain (8)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
7
Tried for
pain (7) depressed mood (1)
Treatment name(s)

(Cannabidiol CBD oil)
Type
Other
How many have tried
7
Tried for
pain (7) anxious mood (3)
2 more

Data from patients with temporomandibular joint syndrome, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with temporomandibular joint syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (11 evaluations)
Side effects
drowsiness hyperactivity
Total evaluations
10
Tried for
anxious mood (11) depressed mood (4)
1 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (10 evaluations)
Side effects
brain fog burning sensation 7 more
Total evaluations
9
Tried for
pain (13)
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
for temporomandibular joint syndrome (4 evaluations)
Side effects
gastric ulcer stomach pain
Total evaluations
5
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (4 evaluations)
Side effects
chronic constipation excessive dry mouth 1 more
Total evaluations
4
Tried for
pain (11)
Treatment name(s)

(Pamelor)
Perceived effectiveness
for pain (5 evaluations)
Side effects
depressed mood dry mouth 7 more
Total evaluations
6
Tried for
pain (8) depressed mood (4)
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (3 evaluations)
Side effects
excessive daytime sleepiness (somnolence) not clear headed next day 1 more
Total evaluations
4
Tried for
pain (6) temporomandibular joint syndrome (2)
1 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (6 evaluations)
Side effects
drowsiness
Total evaluations
6
Tried for
pain (8)
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (8)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (4 evaluations)
Side effects
dry mouth excessive daytime sleepiness (somnolence) 1 more
Total evaluations
5
Tried for
pain (7) depressed mood (1)
Treatment name(s)

(Cannabidiol CBD oil)
Perceived effectiveness
for pain (3 evaluations)
Side effects
nausea
Total evaluations
3
Tried for
pain (7) anxious mood (3)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with temporomandibular joint syndrome, who reported starting treatments within the last 5 years.
Last updated:

Who has temporomandibular joint syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 130
30s 284
40s 450
50s 423
60s 246
70+ 38
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 354
20-29 years 262
30-39 years 186
40-49 years 103
50-59 years 32
60-69 years 7
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 103
Female 1467

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1116
Not Diagnosed 88

These charts show data from TMJ syndrome patients who have completed their condition history
Last updated: