Syringomyelia

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is syringomyelia?

Syringomyelia is a disorder in which a cyst forms within the spinal cord. This cyst, called a syrinx, expands and elongates over time, destroying the center of the cord. Causes may be congenital (present at birth) or result from trauma, meningitis, hemorrhage or tumor growth.

Common symptoms reported by people with syringomyelia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with syringomyelia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Parafon Forte DSC)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Lumbar Epidural Steroid Injection)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Pill Organizer)
Type
Other
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Home Physical Therapy)
Type
Physical Therapy
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)

Data from patients with syringomyelia, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with syringomyelia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Celebrex)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Parafon Forte DSC)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Lumbar Epidural Steroid Injection)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Prozac)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Pill Organizer)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Mobic)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Home Physical Therapy)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Zoloft)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with syringomyelia, who reported starting treatments within the last 5 years.
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Who has syringomyelia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 19
30s 40
40s 71
50s 56
60s 36
70+ 15
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 16
20-29 years 28
30-39 years 25
40-49 years 18
50-59 years 4
60-69 years 2
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 38
Female 200

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 112
Not Diagnosed 2

These charts show data from syringomyelia patients who have completed their condition history
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