Spinocerebellar ataxia
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is spinocerebellar ataxia?
Spinocerebellar ataxia is is a progressive, degenerative, genetic disease with multiple types which are characterized by slowly progressive incoordination of gait and often associated with poor coordination of hands, speech, and eye movements.
Common symptoms reported by people with spinocerebellar ataxia
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people with spinocerebellar ataxia
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with spinocerebellar ataxia, who reported starting treatments within the last 5 years.
Last updated:
Compare treatments taken by people with spinocerebellar ataxia
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
jittery feeling
Total evaluations
1
Tried for
fatigue
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with spinocerebellar ataxia, who reported starting treatments within the last 5 years.
Last updated:
Who has spinocerebellar ataxia on PatientsLikeMe?
- 186 patients have this condition
- 0 new patients joined this month
- 159 say spinocerebellar ataxia is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 5 | |
| 20s | 3 | |
| 30s | 17 | |
| 40s | 28 | |
| 50s | 41 | |
| 60s | 43 | |
| 70+ | 34 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 12 | |
| 20-29 years | 8 | |
| 30-39 years | 19 | |
| 40-49 years | 13 | |
| 50-59 years | 13 | |
| 60-69 years | 4 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 74 | |
| Female | 97 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 72 | |
| Not Diagnosed | 11 |
These charts show data from spinocerebellar ataxia patients who have completed their condition history
Last updated: