Scoliosis

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is scoliosis?

Scoliosis is a curvature of the spine. It is classified as congenital when a deformity is present at birth; idiopathic when the cause is unknown; or neuromuscular when it develops as a secondary symptom of another condition such as spina bifida, cerebral palsy or trauma.

Common symptoms reported by people with scoliosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with scoliosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
11
Tried for
pain (11) depressed mood (1)
1 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
11
Tried for
pain (11)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
9
Tried for
depressed mood (8) pain (3)
2 more
Treatment name(s)

(Home Physical Therapy)
Type
Physical Therapy
How many have tried
9
Tried for
scoliosis (8) pain (2)
1 more
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
8
Tried for
pain (8)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
8
Tried for
pain (7) scoliosis (1)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
8
Tried for
anxious mood (8)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
7
Tried for
anxious mood (6) depressed mood (1)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
7
Tried for
pain (7)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
6
Tried for
pain (5) depressed mood (1)

Data from patients with scoliosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with scoliosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (11 evaluations)
Side effects
constipation dizziness 7 more
Total evaluations
11
Tried for
pain (11) depressed mood (1)
1 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (6 evaluations)
Side effects
drowsiness difficulty staying asleep 3 more
Total evaluations
7
Tried for
pain (11)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (5 evaluations)
Side effects
daytime sleepiness dizziness 3 more
Total evaluations
8
Tried for
depressed mood (8) pain (3)
2 more
Treatment name(s)

(Home Physical Therapy)
Perceived effectiveness
for scoliosis (4 evaluations)
Side effects
back pain fibromyalgia 1 more
Total evaluations
5
Tried for
scoliosis (8) pain (2)
1 more
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for pain (4 evaluations)
Side effects
hallucinations insomnia 1 more
Total evaluations
4
Tried for
pain (8)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (6 evaluations)
Side effects
drowsiness increased insomnia
Total evaluations
7
Tried for
pain (7) scoliosis (1)
Treatment name(s)

(Vistaril)
Perceived effectiveness
for anxious mood (5 evaluations)
Side effects
daytime tiredness sleepiness 1 more
Total evaluations
5
Tried for
anxious mood (8)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (4 evaluations)
Side effects
brain fog drowsiness 3 more
Total evaluations
8
Tried for
anxious mood (6) depressed mood (1)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (6 evaluations)
Side effects
drowsiness constipation 4 more
Total evaluations
6
Tried for
pain (7)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (3 evaluations)
Side effects
drowsiness weight gain
Total evaluations
3
Tried for
pain (5) depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with scoliosis, who reported starting treatments within the last 5 years.
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Who has scoliosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 24
20s 242
30s 328
40s 385
50s 379
60s 279
70+ 86

Distribution of sex

Sex
Sex Proportion # of patients
Male 204
Female 1533

Types
Condition Types Proportion # of patients
Congenital 27
Dextroscoliosis 23
Idiopathic 49
Levoscoliosis 32
Neuromuscular 9
Syndromic 1
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1255
Not Diagnosed 28

These charts show data from scoliosis patients who have completed their condition history
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