Protein C deficiency
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What is protein C deficiency?
Protein C deficiency, a disorder of blood clotting, is also known as prothrombotic state or thrombophilia characterized by the propensity to develop venous thrombosis (blood clots in veins) due to an abnormality in the coagulation (clotting) system. It may be an inherited or an acquired disease.
Common symptoms reported by people with protein C deficiency
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with protein C deficiency
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Follitropin alpha
Type
Prescription Drug
How many have tried
1
Tried for
protein C deficiency
(1)
Data from patients with protein C deficiency, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with protein C deficiency
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood
(1)
Perceived effectiveness
for pain (2 evaluations)
Side effects
weight gain
Total evaluations
2
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood
(1)
pain
(1)
Perceived effectiveness
No evaluations
Side effects
sweating increased
Total evaluations
2
Tried for
pain
(1)
Treatment name(s)
Follitropin alpha
Perceived effectiveness
for protein C deficiency (1 evaluation)
Side effects
Hospitalization
Total evaluations
1
Tried for
protein C deficiency
(1)
Perceived effectiveness
for pain (2 evaluations)
Side effects
sleepiness
Total evaluations
2
Tried for
pain
(1)
Perceived effectiveness
for pain (1 evaluation)
Side effects
abdominal cramps
nausea
Total evaluations
1
Tried for
pain
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with protein C deficiency, who reported starting treatments within the last 5 years.
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Who has protein C deficiency on PatientsLikeMe?
- 39 patients have this condition
- 0 new patients joined this month
- 18 say protein C deficiency is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 2 | |
| 30s | 4 | |
| 40s | 8 | |
| 50s | 10 | |
| 60s | 6 | |
| 70+ | 1 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 2 | |
| 20-29 years | 5 | |
| 30-39 years | 2 | |
| 40-49 years | 1 | |
| 50-59 years | 1 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 12 | |
| Female | 19 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 16 | |
| Not Diagnosed | 3 |
These charts show data from protein C deficiency patients who have completed their condition history
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