Primary biliary cholangitis

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What is primary biliary cholangitis?

Primary biliary cholangitis (PBC), previously referred to as primary biliary cirrhosis, is a chronic disease of the small intrahepatic bile ducts that is characterized by progressive bile duct damage and eventual loss.

Common symptoms reported by people with primary biliary cholangitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with primary biliary cholangitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(UDCA Ursodeoxycholic acid)
Type
Prescription Drug
How many have tried
8
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Dilaudid)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)

Data from patients with primary biliary cholangitis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with primary biliary cholangitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(UDCA Ursodeoxycholic acid)
Perceived effectiveness
for primary biliary cholangitis (1 evaluation)
Side effects
stomach pain
Total evaluations
1
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (3)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Valium)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Dilaudid)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Inderal)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
electric shock sensation in brain
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Zoloft)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with primary biliary cholangitis, who reported starting treatments within the last 5 years.
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Who has primary biliary cholangitis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 6
30s 16
40s 41
50s 64
60s 76
70+ 35
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 7
30-39 years 25
40-49 years 39
50-59 years 19
60-69 years 6
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 27
Female 216

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 130
Not Diagnosed 8

These charts show data from primary biliary cholangitis patients who have completed their condition history
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