Chronic pelvic pain syndrome
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- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is chronic pelvic pain syndrome?
Chronic pelvic pain is pain to the area below the belly button encompassing the sex organs. The cause of the pain is varied and can be related to injury to the nerves and muscles in the area or related to underlying conditions such as endometriosis, ovarian cysts, urinary tract infections, etc.
Common symptoms reported by people with chronic pelvic pain syndrome
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with chronic pelvic pain syndrome
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with chronic pelvic pain syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with chronic pelvic pain syndrome
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(2)
anxious mood
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood
(2)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(2)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood
(2)
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
chronic pelvic pain syndrome
(2)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue
(1)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
Total evaluations
2
Tried for
depressed mood
(1)
Perceived effectiveness
No evaluations
Side effects
bad taste in mouth
weight gain
Total evaluations
3
Tried for
anxious mood
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with chronic pelvic pain syndrome, who reported starting treatments within the last 5 years.
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Who has chronic pelvic pain syndrome on PatientsLikeMe?
- 1 new patients joined this month
- 161 say chronic pelvic pain syndrome is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 2 | |
| 20s | 19 | |
| 30s | 61 | |
| 40s | 77 | |
| 50s | 98 | |
| 60s | 48 | |
| 70+ | 19 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 20 | |
| 20-29 years | 33 | |
| 30-39 years | 37 | |
| 40-49 years | 19 | |
| 50-59 years | 11 | |
| 60-69 years | 5 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 88 | |
| Female | 242 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 134 | |
| Not Diagnosed | 34 |
These charts show data from chronic pelvic pain syndrome patients who have completed their condition history
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