What is neurofibromatosis?

Neurofibromatosis is a genetic disorder of the nervous system that causes tumors to grow along the path of nerves. Type 1 is most prevalent and causes neurologic, skin, and sometimes soft-tissue or bone deformities. Type 2 is primarily manifested as congenital bilateral acoustic neuromas.

How do members experience neurofibromatosis?

Top 5 symptoms reported by people with neurofibromatosis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for neurofibromatosis*

Who has neurofibromatosis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 10
20s 17
30s 41
40s 45
50s 39
60s 31
70+ 20

Distribution of sex

Sex

Sex Proportion # of patients
Male 66
Female 139