What is neurofibromatosis?
Neurofibromatosis is a genetic disorder of the nervous system that causes tumors to grow along the path of nerves. Type 1 is most prevalent and causes neurologic, skin, and sometimes soft-tissue or bone deformities. Type 2 is primarily manifested as congenital bilateral acoustic neuromas.
How do members experience neurofibromatosis?
Top 5 symptoms reported by people with neurofibromatosis*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Common symptom
Pain
How bad it is
What people are taking for it
Common symptom
Depressed mood
How bad it is
What people are taking for it
Common symptom
Anxious mood
How bad it is
What people are taking for it
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for neurofibromatosis*
Who has neurofibromatosis on PatientsLikeMe?
Age | Proportion | # of patients |
---|---|---|
<20 | 10 | |
20s | 17 | |
30s | 41 | |
40s | 45 | |
50s | 39 | |
60s | 31 | |
70+ | 20 |
Distribution of sex
Sex | Proportion | # of patients |
---|---|---|
Male | 66 | |
Female | 139 |