Microscopic colitis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is microscopic colitis?

Microscopic colitis has two main forms: collagenous colitis and lymphocytic colitis. Slight differences in the way intestinal tissues appear set them apart. In both forms, an increase in white blood cells can be seen within the intestinal epithelium—the layer of cells that lines the intestine.

Common symptoms reported by people with microscopic colitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with microscopic colitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Pulmicort)
Type
Prescription Drug
How many have tried
12
Tried for
microscopic colitis (12)
Treatment name(s)

(Questran)
Type
Prescription Drug
How many have tried
4
Tried for
microscopic colitis (4)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Imodium)
Type
Over the Counter Drug
How many have tried
2
Tried for
microscopic colitis (2)
Treatment name(s)

(Pentasa)
Type
Prescription Drug
How many have tried
2
Tried for
microscopic colitis (2)
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
1
Tried for
microscopic colitis (1)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
microscopic colitis (1)
Treatment name(s)

(Cipro)
Type
Prescription Drug
How many have tried
1
Tried for
microscopic colitis (1)

Data from patients with microscopic colitis, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with microscopic colitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Pulmicort)
Perceived effectiveness
for microscopic colitis (12 evaluations)
Side effects
abdominal bloating acid reflux 6 more
Total evaluations
12
Tried for
microscopic colitis (12)
Treatment name(s)

(Questran)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
microscopic colitis (4)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (1 evaluation)
Side effects
increased appetite
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (2 evaluations)
Side effects
euphoria
Total evaluations
2
Tried for
pain (2)
Treatment name(s)

(Imodium)
Perceived effectiveness
for microscopic colitis (2 evaluations)
Side effects
headaches vision loss
Total evaluations
2
Tried for
microscopic colitis (2)
Treatment name(s)

(Pentasa)
Perceived effectiveness
for microscopic colitis (2 evaluations)
Side effects
abdominal pain headaches 1 more
Total evaluations
2
Tried for
microscopic colitis (2)
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
for pain (1 evaluation)
Side effects
decreased appetite vertigo
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Imuran)
Perceived effectiveness
for microscopic colitis (1 evaluation)
Side effects
dizziness fatigue 1 more
Total evaluations
1
Tried for
microscopic colitis (1)
Treatment name(s)
Perceived effectiveness
for microscopic colitis (1 evaluation)
Side effects
Total evaluations
1
Tried for
microscopic colitis (1)
Treatment name(s)

(Cipro)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
microscopic colitis (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with microscopic colitis, who reported starting treatments within the last 5 years.
Last updated:

Who has microscopic colitis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 16
30s 30
40s 61
50s 97
60s 108
70+ 81
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 18
20-29 years 15
30-39 years 22
40-49 years 42
50-59 years 26
60-69 years 17
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 37
Female 363

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 169
Not Diagnosed 3

These charts show data from microscopic colitis patients who have completed their condition history
Last updated: