Lyme disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Lyme disease?

Lyme Disease is caused by Borrelia burgdorferi. Early manifestations of infection may include fever, headache, fatigue, depression, and a characteristic skin rash called erythema migrans. Left untreated, late manifestations involving the joints, heart, and nervous system can occur.

Common symptoms reported by people with Lyme disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for Lyme disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Doxylin)
Type
Prescription Drug
How many have tried
731
Tried for
Lyme disease (19)
Treatment name(s)

(Rocephin)
Type
Prescription Drug
How many have tried
233
Tried for
Lyme disease (3)

Data from patients with Lyme disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with Lyme disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Doxylin)
Perceived effectiveness
for Lyme disease (10 evaluations)
Side effects
nausea upset stomach 5 more
Total evaluations
10
Tried for
Lyme disease (19)
Treatment name(s)

(Rocephin)
Perceived effectiveness
for Lyme disease (4 evaluations)
Side effects
excessive daytime sleepiness (somnolence)
Total evaluations
4
Tried for
Lyme disease (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Lyme disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has Lyme disease on PatientsLikeMe?

  • 6 new patients joined this month
  • 1235 say Lyme disease is their primary condition

Age
Age Proportion # of patients
<20 15
20s 129
30s 258
40s 347
50s 465
60s 329
70+ 122
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 138
20-29 years 130
30-39 years 160
40-49 years 140
50-59 years 83
60-69 years 20
70+ years 4

Distribution of sex

Sex
Sex Proportion # of patients
Male 341
Female 1360

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 764
Not Diagnosed 85

These charts show data from Lyme disease patients who have completed their condition history
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