Lyme disease
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is Lyme disease?
Lyme Disease is caused by Borrelia burgdorferi. Early manifestations of infection may include fever, headache, fatigue, depression, and a characteristic skin rash called erythema migrans. Left untreated, late manifestations involving the joints, heart, and nervous system can occur.
Common symptoms reported by people with Lyme disease
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Lyme disease
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with Lyme disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Lyme disease
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for Lyme disease (23 evaluations)
Total evaluations
23
Tried for
Lyme disease
(41)
fatigue
(1)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
Total evaluations
3
Tried for
anxious mood
(4)
pain
(3)
3 more
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
constipation
Total evaluations
2
Tried for
anxious mood
(5)
Treatment name(s)
Banderol
Perceived effectiveness
for Lyme disease (1 evaluation)
Side effects
Total evaluations
1
Tried for
Lyme disease
(5)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(4)
depressed mood
(1)
3 more
Perceived effectiveness
for Lyme disease (4 evaluations)
Side effects
excessive daytime sleepiness (somnolence)
Total evaluations
4
Tried for
Lyme disease
(5)
Perceived effectiveness
for Lyme disease (1 evaluation)
Total evaluations
3
Tried for
Lyme disease
(3)
fatigue
(2)
1 more
Perceived effectiveness
for depressed mood (3 evaluations)
Total evaluations
3
Tried for
depressed mood
(5)
Perceived effectiveness
for Lyme disease (2 evaluations)
Side effects
fatigue
nerve pain (neuralgia)
Total evaluations
2
Tried for
Lyme disease
(4)
Perceived effectiveness
for Lyme disease (3 evaluations)
Side effects
aftertaste
Jarisch-Herxeimer reaction
Total evaluations
3
Tried for
Lyme disease
(4)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with Lyme disease, who reported starting treatments within the last 5 years.
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Who has Lyme disease on PatientsLikeMe?
- 1555 patients have this condition
- 12 new patients joined this month
- 1064 say Lyme disease is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 15 | |
| 20s | 124 | |
| 30s | 212 | |
| 40s | 325 | |
| 50s | 403 | |
| 60s | 251 | |
| 70+ | 74 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 132 | |
| 20-29 years | 126 | |
| 30-39 years | 158 | |
| 40-49 years | 136 | |
| 50-59 years | 81 | |
| 60-69 years | 18 | |
| 70+ years | 2 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 275 | |
| Female | 1153 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 730 | |
| Not Diagnosed | 84 |
These charts show data from Lyme disease patients who have completed their condition history
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