Lewy body disease

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What is Lewy body disease?

Dementia with Lewy bodies is characterized by cognitive decline, recurrent visual hallucinations, postural instability, gait difficulties, masked facial expression, rapid eye movement sleep behavioral disorder, and antipsychotic sensitivity.

Common symptoms reported by people with Lewy body disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Lewy body disease

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Got a question about living with Lewy body disease? Members in the forum might have the answers.

Compare treatments taken by people with Lewy body disease

Let’s build this page together! When you share what it’s like to have Lewy body disease through your profile, those stories and data appear here too.

Got a question about living with Lewy body disease? Members in the forum might have the answers.

Who has Lewy body disease on PatientsLikeMe?

  • 0 new patients joined this month
  • 84 say Lewy body disease is their primary condition

Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 0
50s 9
60s 26
70+ 57
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 1
40-49 years 3
50-59 years 7
60-69 years 7
70+ years 4

Distribution of sex

Sex
Sex Proportion # of patients
Male 62
Female 32

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 24
Not Diagnosed 4

These charts show data from Lewy body disease patients who have completed their condition history
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