Leaky gut syndrome

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is leaky gut syndrome?

Leaky gut is an increased permeability to the lining of the intestinal wall. Nutrients and toxins are improperly digested sparking an inflammatory response. Chronic inflammation causes various health issues. This diagnosis is not widely accepted by the conventional medical community.

Common symptoms reported by people with leaky gut syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with leaky gut syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Type
Procedures
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
leaky gut syndrome (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Virgin Coconut Oil)
Type
Supplement
How many have tried
1
Tried for
leaky gut syndrome (1)
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(L-Glutamine enteric coated)
Type
Supplement
How many have tried
1
Tried for
leaky gut syndrome (1)
Treatment name(s)

(Deplin)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)

Data from patients with leaky gut syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with leaky gut syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lyrica)
Perceived effectiveness
for pain (5 evaluations)
Side effects
sleepiness vomiting
Total evaluations
7
Tried for
pain (2)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
leaky gut syndrome (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
heart palpitations jittery feeling
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(Virgin Coconut Oil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
leaky gut syndrome (1)
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for pain (3 evaluations)
Side effects
Total evaluations
3
Tried for
pain (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (3 evaluations)
Side effects
drowsy in morning
Total evaluations
3
Tried for
pain (1)
Treatment name(s)

(L-Glutamine enteric coated)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
leaky gut syndrome (1)
Treatment name(s)

(Deplin)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
Total evaluations
1
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with leaky gut syndrome, who reported starting treatments within the last 5 years.
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Who has leaky gut syndrome on PatientsLikeMe?

  • 1 new patients joined this month
  • 69 say leaky gut syndrome is their primary condition

Age
Age Proportion # of patients
<20 4
20s 10
30s 39
40s 36
50s 38
60s 22
70+ 13
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 8
20-29 years 14
30-39 years 8
40-49 years 4
50-59 years 10
60-69 years 0
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 41
Female 127

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 55
Not Diagnosed 14

These charts show data from leaky gut syndrome patients who have completed their condition history
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