Irritable bowel syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is irritable bowel syndrome?

Irritable bowel syndrome is a chronic noninflammatory disease characterized by abdominal pain, altered bowel habits consisting of diarrhea or constipation or both, and no detectable pathologic change in the intestinal tissue.

Common symptoms reported by people with irritable bowel syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with irritable bowel syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Bentyl)
Type
Prescription Drug
How many have tried
45
Tried for
irritable bowel syndrome (45) abdominal bloating (1)
1 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
40
Tried for
pain (35) anxious mood (3)
2 more
Treatment name(s)

(Linzess)
Type
Prescription Drug
How many have tried
36
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
35
Tried for
pain (35)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
26
Tried for
anxious mood (26)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
26
Tried for
pain (26) abdominal cramps (1)
1 more
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
26
Tried for
depressed mood (26) pain (7)
2 more
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
22
Tried for
depressed mood (13) anxious mood (11)
3 more
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
22
Tried for
depressed mood (20) anxious mood (3)
1 more
Treatment name(s)

(Imodium)
Type
Over the Counter Drug
How many have tried
21
Tried for
irritable bowel syndrome (19) diarrhea (6)

Data from patients with irritable bowel syndrome, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with irritable bowel syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Bentyl)
Perceived effectiveness
for irritable bowel syndrome (26 evaluations)
Side effects
abdominal bloating acid reflux 2 more
Total evaluations
27
Tried for
irritable bowel syndrome (45) abdominal bloating (1)
1 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (19 evaluations)
Side effects
drowsiness excessive daytime sleepiness (somnolence) 19 more
Total evaluations
27
Tried for
pain (35) anxious mood (3)
2 more
Treatment name(s)

(Linzess)
Perceived effectiveness
for irritable bowel syndrome (13 evaluations)
Side effects
diarrhea abdominal bloating 11 more
Total evaluations
15
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (15 evaluations)
Side effects
chronic constipation brain fog 11 more
Total evaluations
16
Tried for
pain (35)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (13 evaluations)
Side effects
tiredness drowsy in morning 5 more
Total evaluations
19
Tried for
anxious mood (26)
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (10 evaluations)
Side effects
constipation difficulty waking up 4 more
Total evaluations
10
Tried for
pain (26) abdominal cramps (1)
1 more
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (24 evaluations)
Side effects
dizziness muscle and joint pain 43 more
Total evaluations
26
Tried for
depressed mood (26) pain (7)
2 more
Treatment name(s)

(Lexapro)
Perceived effectiveness
for depressed mood (9 evaluations)
Side effects
drowsiness cognitive confusion 5 more
Total evaluations
14
Tried for
depressed mood (13) anxious mood (11)
3 more
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (16 evaluations)
Side effects
anxious mood increased energy 25 more
Total evaluations
22
Tried for
depressed mood (20) anxious mood (3)
1 more
Treatment name(s)

(Imodium)
Perceived effectiveness
for irritable bowel syndrome (12 evaluations)
Side effects
constipation fatigue 2 more
Total evaluations
16
Tried for
irritable bowel syndrome (19) diarrhea (6)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with irritable bowel syndrome, who reported starting treatments within the last 5 years.
Last updated:

Who has irritable bowel syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 39
20s 524
30s 1263
40s 1803
50s 1979
60s 1182
70+ 342
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1303
20-29 years 1013
30-39 years 839
40-49 years 474
50-59 years 188
60-69 years 24
70+ years 10

Distribution of sex

Sex
Sex Proportion # of patients
Male 847
Female 6324

Types
Condition Types Proportion # of patients
IBS-C (constipation predominant) 243
IBS-D (diarrhea predominant) 292
IBS-M (mixed diarrhea and constipation) 344
IBS-U (unsubtyped) 49
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4499
Not Diagnosed 473

These charts show data from IBS patients who have completed their condition history
Last updated: