Hypermobility syndrome

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What is hypermobility syndrome?

Hypermobility describes joints that stretch farther than is normal. Hypermobility syndrome is used to describe a disorder in which musculoskeletal pain and generalized joint hypermobility occur together.

Common symptoms reported by people with hypermobility syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with hypermobility syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
10
Tried for
pain (8) anxious mood (1)
1 more
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
8
Tried for
depressed mood (8) pain (2)
2 more
Treatment name(s)

(Cannabidiol CBD oil)
Type
Other
How many have tried
7
Tried for
pain (7) anxious mood (3)
2 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
6
Tried for
pain (6) depressed mood (1)
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
6
Tried for
pain (6) hypermobility syndrome (1)
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
5
Tried for
pain (5)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4) depressed mood (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
4
Tried for
depressed mood (4)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
4
Tried for
anxious mood (4) depressed mood (1)
1 more

Data from patients with hypermobility syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with hypermobility syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (4 evaluations)
Side effects
pain burning sensation 13 more
Total evaluations
4
Tried for
pain (8) anxious mood (1)
1 more
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (6 evaluations)
Side effects
dizziness anxious mood 4 more
Total evaluations
7
Tried for
depressed mood (8) pain (2)
2 more
Treatment name(s)

(Cannabidiol CBD oil)
Perceived effectiveness
for pain (5 evaluations)
Side effects
Total evaluations
5
Tried for
pain (7) anxious mood (3)
2 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (6) depressed mood (1)
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
for pain (3 evaluations)
Side effects
Total evaluations
3
Tried for
pain (6) hypermobility syndrome (1)
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for pain (3 evaluations)
Side effects
Total evaluations
3
Tried for
pain (5)
Treatment name(s)

(Tylenol)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (4)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (2 evaluations)
Side effects
dry mouth increased sleepiness
Total evaluations
2
Tried for
pain (4) depressed mood (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (4)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
sore mouth (stomatitis)
Total evaluations
2
Tried for
anxious mood (4) depressed mood (1)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hypermobility syndrome, who reported starting treatments within the last 5 years.
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Who has hypermobility syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 15
20s 124
30s 190
40s 208
50s 129
60s 36
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 324
20-29 years 52
30-39 years 26
40-49 years 15
50-59 years 3
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 44
Female 663

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 497
Not Diagnosed 41

These charts show data from hypermobility syndrome patients who have completed their condition history
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