Hypermobility syndrome

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What is hypermobility syndrome?

Hypermobility describes joints that stretch farther than is normal. Hypermobility syndrome is used to describe a disorder in which musculoskeletal pain and generalized joint hypermobility occur together.

Common symptoms reported by people with hypermobility syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with hypermobility syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cannabidiol CBD oil)
Type
Other
How many have tried
7
Tried for
pain (7) anxious mood (3)
2 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
6
Tried for
pain (5) hypermobility syndrome (1)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
5
Tried for
pain (5) depressed mood (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
5
Tried for
depressed mood (5) pain (2)
2 more
Treatment name(s)

(Carpel tunnel wrist brace)
Type
Equipment
How many have tried
5
Tried for
hypermobility syndrome (3) pain (2)
Treatment name(s)

(Wellbutrin)
Type
Prescription Drug
How many have tried
4
Tried for
depressed mood (4)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
4
Tried for
anxious mood (4) depressed mood (1)
1 more
Treatment name(s)

(Pamelor)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4) depressed mood (2)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(BuTrans patch)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)

Data from patients with hypermobility syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with hypermobility syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cannabidiol CBD oil)
Perceived effectiveness
for pain (5 evaluations)
Side effects
Total evaluations
5
Tried for
pain (7) anxious mood (3)
2 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (2 evaluations)
Side effects
burning sensation constipation 12 more
Total evaluations
2
Tried for
pain (5) hypermobility syndrome (1)
Treatment name(s)

(Flexeril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (5) depressed mood (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (5 evaluations)
Side effects
daytime sleepiness dizziness 1 more
Total evaluations
6
Tried for
depressed mood (5) pain (2)
2 more
Treatment name(s)

(Carpel tunnel wrist brace)
Perceived effectiveness
for pain (1 evaluation)
Side effects
muscle stiffness
Total evaluations
1
Tried for
hypermobility syndrome (3) pain (2)
Treatment name(s)

(Wellbutrin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (4)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
sore mouth (stomatitis)
Total evaluations
2
Tried for
anxious mood (4) depressed mood (1)
1 more
Treatment name(s)

(Pamelor)
Perceived effectiveness
for pain (2 evaluations)
Side effects
anxious mood feeling hot/overheating
Total evaluations
2
Tried for
pain (4) depressed mood (2)
Treatment name(s)

(Tylenol)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (3)
Treatment name(s)

(BuTrans patch)
Perceived effectiveness
for pain (3 evaluations)
Side effects
drowsiness
Total evaluations
3
Tried for
pain (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hypermobility syndrome, who reported starting treatments within the last 5 years.
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Who has hypermobility syndrome on PatientsLikeMe?

  • 1 new patients joined this month
  • 175 say hypermobility syndrome is their primary condition

Age
Age Proportion # of patients
<20 14
20s 113
30s 201
40s 207
50s 145
60s 39
70+ 8
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 326
20-29 years 51
30-39 years 27
40-49 years 15
50-59 years 3
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 45
Female 686

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 505
Not Diagnosed 39

These charts show data from hypermobility syndrome patients who have completed their condition history
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