Hemochromatosis

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is hemochromatosis?

Primary hemochromatosis is a genetic disorder that is characterized by excessive iron accumulation that results in damage to tissues. It can lead to liver disorders, diabetes, and heart disease. Secondary hemochromatosis may be related to excess iron intake, anemia, alcoholism, and other disorders.

Common symptoms reported by people with hemochromatosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for hemochromatosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Procedures
How many have tried
170
Tried for
hemochromatosis (3)

Data from patients with hemochromatosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with hemochromatosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for hemochromatosis (4 evaluations)
Side effects
anemia fatigue 4 more
Total evaluations
4
Tried for
hemochromatosis (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hemochromatosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has hemochromatosis on PatientsLikeMe?

  • 4 new patients joined this month
  • 215 say hemochromatosis is their primary condition

Age
Age Proportion # of patients
<20 1
20s 10
30s 29
40s 64
50s 116
60s 74
70+ 34
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 9
30-39 years 29
40-49 years 31
50-59 years 15
60-69 years 2
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 121
Female 212

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 138
Not Diagnosed 16

These charts show data from hemochromatosis patients who have completed their condition history
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