Emphysema

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is emphysema?

Emphysema is a long-term, progressive disease of the lungs that primarily causes shortness of breath due to over-inflation of the air sacs in the lung. Emphysema is included in a group of diseases called chronic obstructive pulmonary disease or COPD (pulmonary refers to the lungs).

Common symptoms reported by people with emphysema

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with emphysema

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Albuterol Inhaler)
Type
Prescription Drug
How many have tried
6
Treatment name(s)
Type
Prescription Drug
How many have tried
6
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
4
Tried for
emphysema (4)
Treatment name(s)

(Ipratropium Inhalant)
Type
Prescription Drug
How many have tried
3
Tried for
emphysema (3)
Treatment name(s)

(Spiriva HandiHaler)
Type
Prescription Drug
How many have tried
3
Tried for
emphysema (3)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)
Type
Equipment
How many have tried
2
Treatment name(s)

(Amoxil)
Type
Prescription Drug
How many have tried
1
Tried for
emphysema (1)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)

Data from patients with emphysema, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with emphysema

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Albuterol Inhaler)
Perceived effectiveness
for emphysema (9 evaluations)
Side effects
burning sensation in throat
Total evaluations
9
Treatment name(s)
Perceived effectiveness
for emphysema (4 evaluations)
Side effects
nosebleeds (epistaxis)
Total evaluations
4
Treatment name(s)

(Deltasone)
Perceived effectiveness
for emphysema (3 evaluations)
Side effects
Total evaluations
3
Tried for
emphysema (4)
Treatment name(s)

(Ipratropium Inhalant)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
emphysema (3)
Treatment name(s)

(Spiriva HandiHaler)
Perceived effectiveness
for emphysema (1 evaluation)
Side effects
Total evaluations
1
Tried for
emphysema (3)
Treatment name(s)

(Lexapro)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (2)
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Treatment name(s)

(Amoxil)
Perceived effectiveness
No evaluations
Side effects
abdominal bloating
Total evaluations
1
Tried for
emphysema (1)
Treatment name(s)

(Adderall)
Perceived effectiveness
for fatigue (3 evaluations)
Side effects
hyperactivity insomnia
Total evaluations
3
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with emphysema, who reported starting treatments within the last 5 years.
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Who has emphysema on PatientsLikeMe?

  • 1 new patients joined this month
  • 204 say emphysema is their primary condition

Age
Age Proportion # of patients
<20 0
20s 0
30s 9
40s 47
50s 99
60s 182
70+ 135
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 7
30-39 years 34
40-49 years 49
50-59 years 51
60-69 years 24
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 148
Female 325

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 244
Not Diagnosed 6

These charts show data from emphysema patients who have completed their condition history
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