Emphysema

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is emphysema?

Emphysema is a long-term, progressive disease of the lungs that primarily causes shortness of breath due to over-inflation of the air sacs in the lung. Emphysema is included in a group of diseases called chronic obstructive pulmonary disease or COPD (pulmonary refers to the lungs).

Common symptoms reported by people with emphysema

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for emphysema

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Albuterol Inhaler)
Type
Prescription Drug
How many have tried
8
Tried for
emphysema (1)
Treatment name(s)

(Pulmicort)
Type
Prescription Drug
How many have tried
53
Tried for
emphysema (1)
Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
29
Tried for
emphysema (1)
Treatment name(s)

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
162
Tried for
emphysema (1)

Data from patients with emphysema, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Compare treatments taken by people with emphysema

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Albuterol Inhaler)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
emphysema (1)
Treatment name(s)

(Pulmicort)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
emphysema (1)
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
for emphysema (1 evaluation)
Side effects
insomnia
Total evaluations
1
Tried for
emphysema (1)
Treatment name(s)

(Prednisone Intensol)
Perceived effectiveness
for emphysema (3 evaluations)
Side effects
Total evaluations
3
Tried for
emphysema (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with emphysema, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Who has emphysema on PatientsLikeMe?

  • 1 new patients joined this month
  • 218 say emphysema is their primary condition

Age
Age Proportion # of patients
<20 0
20s 1
30s 2
40s 35
50s 91
60s 175
70+ 202
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 7
30-39 years 34
40-49 years 51
50-59 years 53
60-69 years 30
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 157
Female 350

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 256
Not Diagnosed 6

These charts show data from emphysema patients who have completed their condition history
Last updated: