Breast cancer

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Garth explains in this video.

What is breast cancer?

Breast cancer forms in tissues of the breast, usually the ducts (tubes that carry milk to the nipple) and lobules (glands that make milk). It occurs in both men and women, although male breast cancer is rare.

Common symptoms reported by people with breast cancer

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for breast cancer

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Prescription Drug
How many have tried
1908
Tried for
breast cancer (90)
Treatment name(s)
Type
Surgery
How many have tried
1711
Tried for
breast cancer (44)
Treatment name(s)

(Modified radical mastectomy)
Type
Surgery
How many have tried
1663
Tried for
breast cancer (39)
Treatment name(s)

(Total Skin Electron Beam Therapy (TSEBT))
Type
Procedures
How many have tried
1998
Tried for
breast cancer (39)
Treatment name(s)

(Mediastinal Lymph Node Dissection)
Type
Surgery
How many have tried
1682
Tried for
breast cancer (34)
Treatment name(s)

(TRAM flap with abdominal mesh)
Type
Surgery
How many have tried
972
Tried for
breast cancer (20)

Data from patients with breast cancer, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with breast cancer

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for breast cancer (55 evaluations)
Side effects
fatigue hair loss 70 more
Total evaluations
55
Tried for
breast cancer (90)
Treatment name(s)
Perceived effectiveness
for breast cancer (15 evaluations)
Side effects
Hospitalization breast soreness 13 more
Total evaluations
16
Tried for
breast cancer (44)
Treatment name(s)

(Modified radical mastectomy)
Perceived effectiveness
for breast cancer (14 evaluations)
Side effects
Hospitalization pain 5 more
Total evaluations
14
Tried for
breast cancer (39)
Treatment name(s)

(Total Skin Electron Beam Therapy (TSEBT))
Perceived effectiveness
for breast cancer (16 evaluations)
Side effects
fatigue burn 11 more
Total evaluations
14
Tried for
breast cancer (39)
Treatment name(s)

(Mediastinal Lymph Node Dissection)
Perceived effectiveness
for breast cancer (9 evaluations)
Side effects
numbness pain 10 more
Total evaluations
9
Tried for
breast cancer (34)
Treatment name(s)

(TRAM flap with abdominal mesh)
Perceived effectiveness
for breast cancer (9 evaluations)
Side effects
Hospitalization pain 7 more
Total evaluations
9
Tried for
breast cancer (20)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with breast cancer, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has breast cancer on PatientsLikeMe?

  • 19 new patients joined this month
  • 5041 say breast cancer is their primary condition

Age
Age Proportion # of patients
<20 1
20s 80
30s 280
40s 800
50s 1792
60s 1694
70+ 664

Distribution of sex

Sex
Sex Proportion # of patients
Male 165
Female 5235

Types
Condition Types Proportion # of patients
Angiosarcoma of the breast 52
Ductal carcinoma in situ (DCIS) 1258
HER2-positive breast cancer 207
Hormone-receptor positive breast cancer 361
Inflammatory breast cancer (IBC) 138
Invasive ductal carcinoma (IDC) 1860
Invasive lobular carcinoma (ILC) 400
Lobular carcinoma in situ (LCIS) 124
Paget's disease of the nipple 27
Phyllodes tumor of the breast 19
Triple negative breast cancer 146
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4298
Not Diagnosed 147

These charts show data from breast cancer patients who have completed their condition history
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