Breast cancer

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Garth explains in this video.

What is breast cancer?

Breast cancer forms in tissues of the breast, usually the ducts (tubes that carry milk to the nipple) and lobules (glands that make milk). It occurs in both men and women, although male breast cancer is rare.

Common symptoms reported by people with breast cancer

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for breast cancer

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Prescription Drug
How many have tried
1937
Tried for
breast cancer (76)
Treatment name(s)
Type
Surgery
How many have tried
1735
Tried for
breast cancer (34)
Treatment name(s)

(Modified radical mastectomy)
Type
Surgery
How many have tried
1682
Tried for
breast cancer (31)
Treatment name(s)

(Total Skin Electron Beam Therapy (TSEBT))
Type
Procedures
How many have tried
2015
Tried for
breast cancer (30)
Treatment name(s)

(Mediastinal Lymph Node Dissection)
Type
Surgery
How many have tried
1703
Tried for
breast cancer (28)
Treatment name(s)

(TRAM flap with abdominal mesh)
Type
Surgery
How many have tried
978
Tried for
breast cancer (16)

Data from patients with breast cancer, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Compare treatments taken by people with breast cancer

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for breast cancer (46 evaluations)
Side effects
fatigue hair loss 58 more
Total evaluations
46
Tried for
breast cancer (76)
Treatment name(s)
Perceived effectiveness
for breast cancer (11 evaluations)
Side effects
breast soreness bruising 10 more
Total evaluations
12
Tried for
breast cancer (34)
Treatment name(s)

(Modified radical mastectomy)
Perceived effectiveness
for breast cancer (10 evaluations)
Side effects
Hospitalization pain 4 more
Total evaluations
10
Tried for
breast cancer (31)
Treatment name(s)

(Total Skin Electron Beam Therapy (TSEBT))
Perceived effectiveness
for breast cancer (15 evaluations)
Side effects
fatigue burn 11 more
Total evaluations
13
Tried for
breast cancer (30)
Treatment name(s)

(Mediastinal Lymph Node Dissection)
Perceived effectiveness
for breast cancer (8 evaluations)
Side effects
pain bruising 8 more
Total evaluations
8
Tried for
breast cancer (28)
Treatment name(s)

(TRAM flap with abdominal mesh)
Perceived effectiveness
for breast cancer (8 evaluations)
Side effects
Hospitalization pain 7 more
Total evaluations
8
Tried for
breast cancer (16)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with breast cancer, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Who has breast cancer on PatientsLikeMe?

  • 13 new patients joined this month
  • 5173 say breast cancer is their primary condition

Age
Age Proportion # of patients
<20 2
20s 84
30s 286
40s 754
50s 1762
60s 1762
70+ 801

Distribution of sex

Sex
Sex Proportion # of patients
Male 183
Female 5360

Types
Condition Types Proportion # of patients
Angiosarcoma of the breast 57
Ductal carcinoma in situ (DCIS) 1279
HER2-positive breast cancer 230
Hormone-receptor positive breast cancer 389
Inflammatory breast cancer (IBC) 142
Invasive ductal carcinoma (IDC) 1897
Invasive lobular carcinoma (ILC) 407
Lobular carcinoma in situ (LCIS) 128
Paget's disease of the nipple 27
Phyllodes tumor of the breast 19
Triple negative breast cancer 158
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4390
Not Diagnosed 155

These charts show data from breast cancer patients who have completed their condition history
Last updated: