Breast cancer

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Garth explains in this video.

What is breast cancer?

Breast cancer forms in tissues of the breast, usually the ducts (tubes that carry milk to the nipple) and lobules (glands that make milk). It occurs in both men and women, although male breast cancer is rare.

Common symptoms reported by people with breast cancer

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with breast cancer

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Prescription Drug
How many have tried
92
Tried for
breast cancer (92)
Treatment name(s)

(Image Guided Radiation)
Type
Procedures
How many have tried
48
Tried for
breast cancer (48)
Treatment name(s)
Type
Surgery
How many have tried
46
Tried for
breast cancer (46)
Treatment name(s)

(Bilateral mastectomy)
Type
Surgery
How many have tried
41
Tried for
breast cancer (41)
Treatment name(s)

(Axillary lymph node clearance)
Type
Surgery
How many have tried
36
Tried for
breast cancer (36)
Treatment name(s)

(Nolvadex)
Type
Prescription Drug
How many have tried
24
Tried for
breast cancer (24)
Treatment name(s)

(Arimidex)
Type
Prescription Drug
How many have tried
23
Tried for
breast cancer (23)
Treatment name(s)
Type
Surgery
How many have tried
21
Tried for
breast cancer (21)
Treatment name(s)

(Femara)
Type
Prescription Drug
How many have tried
14
Tried for
breast cancer (14)
Treatment name(s)

(Ibrance)
Type
Prescription Drug
How many have tried
8
Tried for
breast cancer (8)

Data from patients with breast cancer, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with breast cancer

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for breast cancer (56 evaluations)
Side effects
fatigue hair loss 71 more
Total evaluations
56
Tried for
breast cancer (92)
Treatment name(s)

(Image Guided Radiation)
Perceived effectiveness
for breast cancer (21 evaluations)
Side effects
fatigue burn 18 more
Total evaluations
19
Tried for
breast cancer (48)
Treatment name(s)
Perceived effectiveness
for breast cancer (15 evaluations)
Side effects
Hospitalization breast soreness 13 more
Total evaluations
16
Tried for
breast cancer (46)
Treatment name(s)

(Bilateral mastectomy)
Perceived effectiveness
for breast cancer (15 evaluations)
Side effects
Hospitalization pain 6 more
Total evaluations
15
Tried for
breast cancer (41)
Treatment name(s)

(Axillary lymph node clearance)
Perceived effectiveness
for breast cancer (10 evaluations)
Side effects
limited range of motion numbness 10 more
Total evaluations
10
Tried for
breast cancer (36)
Treatment name(s)

(Nolvadex)
Perceived effectiveness
for breast cancer (14 evaluations)
Side effects
fatigue weight gain 22 more
Total evaluations
16
Tried for
breast cancer (24)
Treatment name(s)

(Arimidex)
Perceived effectiveness
for breast cancer (15 evaluations)
Side effects
joint pain hot flashes 10 more
Total evaluations
16
Tried for
breast cancer (23)
Treatment name(s)
Perceived effectiveness
for breast cancer (10 evaluations)
Side effects
Hospitalization pain 8 more
Total evaluations
10
Tried for
breast cancer (21)
Treatment name(s)

(Femara)
Perceived effectiveness
for breast cancer (5 evaluations)
Side effects
joint pain diarrhea 7 more
Total evaluations
5
Tried for
breast cancer (14)
Treatment name(s)

(Ibrance)
Perceived effectiveness
for breast cancer (7 evaluations)
Side effects
canker sores (aphthous ulcer) hair loss 2 more
Total evaluations
7
Tried for
breast cancer (8)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with breast cancer, who reported starting treatments within the last 5 years.
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Who has breast cancer on PatientsLikeMe?

  • 9 new patients joined this month
  • 5004 say breast cancer is their primary condition

Age
Age Proportion # of patients
<20 1
20s 79
30s 281
40s 811
50s 1786
60s 1678
70+ 639

Distribution of sex

Sex
Sex Proportion # of patients
Male 164
Female 5200

Types
Condition Types Proportion # of patients
Angiosarcoma of the breast 51
Ductal carcinoma in situ (DCIS) 1250
HER2-positive breast cancer 200
Hormone-receptor positive breast cancer 352
Inflammatory breast cancer (IBC) 138
Invasive ductal carcinoma (IDC) 1848
Invasive lobular carcinoma (ILC) 397
Lobular carcinoma in situ (LCIS) 124
Paget's disease of the nipple 27
Phyllodes tumor of the breast 19
Triple negative breast cancer 144
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4271
Not Diagnosed 145

These charts show data from breast cancer patients who have completed their condition history
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