What is neuroendocrine tumor?

A neuroendocrine tumor is a type of tumor that affects cells of the neuroendocrine system, the system that makes and regulates hormones. These are rare tumors that most often originate in the gastrointestinal tract and lungs, but may also occur in other locations such as the pancreas and thyroid.

How do members experience neuroendocrine tumor?

Top 5 symptoms reported by people with neuroendocrine tumor*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for neuroendocrine tumor*

*Data from patients with neuroendocrine tumor, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with neuroendocrine tumor*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Somatuline Depot)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
neuroendocrine tumor (1)

*Data from patients with neuroendocrine tumor, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has neuroendocrine tumor on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 7
30s 20
40s 68
50s 132
60s 153
70+ 135

Distribution of sex

Sex

Sex Proportion # of patients
Male 143
Female 379