Neuromyotonia

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What is neuromyotonia?

Neuromyotonia is a form of peripheral nerve hyperexcitability that causes spontaneous muscular activity resulting from repetitive motor unit action potentials of peripheral origin.

Common symptoms reported by people with neuromyotonia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with neuromyotonia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
2
Tried for
neuromyotonia (2)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
1
Tried for
neuromyotonia (1)
Treatment name(s)

(Morphine ER)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Cesamet)
Type
Prescription Drug
How many have tried
1
Tried for
neuromyotonia (1) pain (1)
Treatment name(s)

(Aleve)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Procedures
How many have tried
1
Tried for
neuromyotonia (1)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1
Tried for
neuromyotonia (1)

Data from patients with neuromyotonia, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with neuromyotonia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tegretol)
Perceived effectiveness
for neuromyotonia (1 evaluation)
Side effects
dizziness
Total evaluations
1
Tried for
neuromyotonia (2)
Treatment name(s)

(Marijuana)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
tiredness
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Advil)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for neuromyotonia (1 evaluation)
Side effects
Total evaluations
1
Tried for
neuromyotonia (1)
Treatment name(s)

(Morphine ER)
Perceived effectiveness
for pain (2 evaluations)
Side effects
constipation nightmares
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(Cesamet)
Perceived effectiveness
for neuromyotonia (1 evaluation)
Side effects
drowsiness
Total evaluations
1
Tried for
neuromyotonia (1) pain (1)
Treatment name(s)

(Aleve)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
for neuromyotonia (1 evaluation)
Side effects
Total evaluations
1
Tried for
neuromyotonia (1)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for neuromyotonia (1 evaluation)
Side effects
Total evaluations
1
Tried for
neuromyotonia (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with neuromyotonia, who reported starting treatments within the last 5 years.
Last updated:

Who has neuromyotonia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 7
40s 9
50s 4
60s 4
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 1
30-39 years 3
40-49 years 4
50-59 years 1
60-69 years 0
70+ years 0

Sex

Distribution of sex

40% Female
60% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 13
Not Diagnosed 4

These charts show data from neuromyotonia patients who have completed their condition history
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