Primary amenorrhea

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What is primary amenorrhea?

Primary amenorrhea is the failure of menstruation to occur by the age of 16 or 2 yr after the onset of puberty or by about age 14 in girls who have not yet gone through puberty. Treatments vary based on the underlying condition.

Common symptoms reported by people with primary amenorrhea

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with primary amenorrhea

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2
Tried for
Depressed mood (2)
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Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
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Treatment name(s)
Type
Surgery
How many have tried
1
Tried for
Pain (1)
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Treatment name(s)
Type
Procedures
How many have tried
1
Tried for
Pain (1)
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Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Ambien)
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1)

Data from patients with primary amenorrhea, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with primary amenorrhea

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
Mood swings
Total evaluations
1
Tried for
Depressed mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Celebrex)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Headaches Skin rash 1 more
Total evaluations
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Mobic)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
gastroesophageal reflux disease Upset stomach
Total evaluations
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
Sedation Swelling in legs, feet and ankles 1 more
Total evaluations
3
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Ambien)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Insomnia (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with primary amenorrhea, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has primary amenorrhea on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 9
30s 12
40s 6
50s 1
60s 2
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 10
20-29 years 3
30-39 years 4
40-49 years 1
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

93% Female
7% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 18
Not Diagnosed 5

These charts show data from primary amenorrhea patients who have completed their condition history
Last updated: