Primary Amenorrhea

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

See more

What is Primary Amenorrhea?

Primary amenorrhea is the failure of menstruation to occur by the age of 16 or 2 yr after the onset of puberty or by about age 14 in girls who have not yet gone through puberty. Treatments vary based on the underlying condition.

What is it like to have Primary Amenorrhea?

Common symptoms How bad it is What people are taking for it
Diazepam, Lorazepam, Lithium Carbonate
Hydrocodone-Acetaminophen, Ice or Cold Packs, Tempur-Pedic Pillow
Tramadol, Lorazepam, Amitriptyline
L-Carnitine, Modafinil
Sertraline, Journal Writing, Fluoxetine

What do patients take to treat Primary Amenorrhea and its symptoms?

No-data

Let’s build this page together! When you share what it’s like to have Primary Amenorrhea through your profile, those stories and data appear here too.

Got a question about living with Primary Amenorrhea? Members in the forum might have the answers.

Who has Primary Amenorrhea on PatientsLikeMe?

  • 28 patients have this condition
  • 1 new patients joined this month
  • 8 say Primary Amenorrhea is their primary condition
Age
Age Proportion # of patients
<20 1
20s 10
30s 8
40s 2
50s 3
60s 1
70+ 0

Gender

Distribution of females vs. males

92% Females
8% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 11
20-29 years 3
30-39 years 3
40-49 years 1
50-59 years 0
60-69 years 0
70+ years 0
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 14
Not Diagnosed 6
These charts show data from Primary Amenorrhea patients who have completed their condition history
Last updated: