Parkinson's Disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
682
Tried for
Parkinson's Disease (676) Stiffness/Spasticity (28)
3 more
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Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
323
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Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
255
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Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
254
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Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
236
Tried for
Parkinson's Disease (235) Fatigue (2)
1 more
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Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
151
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Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
122
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Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
105
Tried for
Parkinson's Disease (105) Stiffness/Spasticity (4)
2 more
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Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
99
Tried for
Parkinson's Disease (99) Slowness (1)
1 more
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Treatment name(s)

(Zelapar)
Type
Prescription Drug
How many have tried
78
Tried for
Parkinson's Disease (77) Depressed mood (2)
2 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's Disease (347 evaluations)
Side effects
Nausea Dyskinesia 88 more
How many evaluations
359
Tried for
Parkinson's Disease (676) Stiffness/Spasticity (28)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's Disease (154 evaluations)
Side effects
Headaches Frequent urination 49 more
How many evaluations
159
Check to add this treatment to your profile
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's Disease (112 evaluations)
Side effects
Dry mouth Blurry vision 54 more
How many evaluations
127
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's Disease (129 evaluations)
Side effects
Daytime sleepiness Nausea 79 more
How many evaluations
134
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's Disease (128 evaluations)
Side effects
Weight gain Drowsiness 72 more
How many evaluations
139
Tried for
Parkinson's Disease (235) Fatigue (2)
1 more
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Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's Disease (52 evaluations)
Side effects
Dyskinesia Jerky movements (dyskinesia) 28 more
How many evaluations
57
Check to add this treatment to your profile
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's Disease (60 evaluations)
Side effects
Skin irritation under patch Dizziness 34 more
How many evaluations
60
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's Disease (43 evaluations)
Side effects
Hospitalization Headaches 26 more
How many evaluations
45
Tried for
Parkinson's Disease (105) Stiffness/Spasticity (4)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's Disease (27 evaluations)
Side effects
Loose stools Dyskinesia 8 more
How many evaluations
31
Tried for
Parkinson's Disease (99) Slowness (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Zelapar)
Perceived effectiveness
for Parkinson's Disease (24 evaluations)
Side effects
Insomnia Bitter taste 13 more
How many evaluations
25
Tried for
Parkinson's Disease (77) Depressed mood (2)
2 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 7
20s 61
30s 151
40s 647
50s 1,762
60s 2,894
70+ 2,134

Gender

Distribution of females vs. males

47% Females
53% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 53
20-29 years 185
30-39 years 644
40-49 years 1,330
50-59 years 1,718
60-69 years 1,068
70+ years 298

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 94
Inherited (genetic) Parkinson's disease 534
Parkinsonism (unknown cause) 1,573
Parkinson's disease 5,338
Vascular Parkinsonism 44
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,107
Not Diagnosed 227

These charts show data from Parkinson's patients who have completed their condition history
Last updated: