Parkinson's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
750
Tried for
Parkinson's disease (747) Stiffness/Spasticity (13)
3 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
279
Tried for
Parkinson's disease (277) Stiffness/Spasticity (7)
2 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
246
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
207
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
190
Tried for
Parkinson's disease (190) Stiffness/Spasticity (1)
1 more
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
154
Tried for
Parkinson's disease (154) Stiffness/Spasticity (7)
1 more
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
100
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
95
Tried for
Parkinson's disease (94) Stiffness/Spasticity (6)
2 more
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
85
Tried for
Parkinson's disease (85)
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
84

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (660 evaluations)
Side effects
Nausea Jerky movements (dyskinesia) 158 more
Total evaluations
672
Tried for
Parkinson's disease (747) Stiffness/Spasticity (13)
3 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (238 evaluations)
Side effects
Headaches Constipation 54 more
Total evaluations
244
Tried for
Parkinson's disease (277) Stiffness/Spasticity (7)
2 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (192 evaluations)
Side effects
Nausea Dry mouth 62 more
Total evaluations
205
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (149 evaluations)
Side effects
Nausea Drowsiness 69 more
Total evaluations
152
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (152 evaluations)
Side effects
Nausea Drowsiness 73 more
Total evaluations
153
Tried for
Parkinson's disease (190) Stiffness/Spasticity (1)
1 more
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (136 evaluations)
Side effects
Nausea Skin irritation under patch 56 more
Total evaluations
140
Tried for
Parkinson's disease (154) Stiffness/Spasticity (7)
1 more
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (58 evaluations)
Side effects
Hospitalization Balance problems 30 more
Total evaluations
60
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (138 evaluations)
Side effects
Jerky movements (dyskinesia) Nausea 33 more
Total evaluations
139
Tried for
Parkinson's disease (94) Stiffness/Spasticity (6)
2 more
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (52 evaluations)
Side effects
Jerky movements (dyskinesia) Loose bowel movements 21 more
Total evaluations
54
Tried for
Parkinson's disease (85)
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (51 evaluations)
Side effects
Jerky movements (dyskinesia) Nausea 24 more
Total evaluations
52
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 68
30s 235
40s 924
50s 2,908
60s 5,441
70+ 5,169
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 63
20-29 years 244
30-39 years 796
40-49 years 1,756
50-59 years 2,450
60-69 years 1,707
70+ years 484

Sex

Distribution of sex

48% Female
52% Male

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 141
Inherited (genetic) Parkinson's disease 1,033
Parkinsonism (unknown cause) 2,612
Parkinson's disease 9,430
Vascular parkinsonism 68
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8,499
Not Diagnosed 312

These charts show data from PD patients who have completed their condition history
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