Parkinson's Disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
681
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
306
Tried for
Parkinson's Disease (305) Stiffness/Spasticity (7)
1 more
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Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
254
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
225
Tried for
Parkinson's Disease (225)
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Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
207
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Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
151
Tried for
Parkinson's Disease (151) Stiffness/Spasticity (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
110
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
104
Tried for
Parkinson's Disease (104) Stiffness/Spasticity (5)
2 more
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Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
96
Tried for
Parkinson's Disease (96)
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Treatment name(s)

(Zelapar)
Type
Prescription Drug
How many have tried
66
Tried for
Parkinson's Disease (66) Depressed mood (3)
1 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's Disease (472 evaluations)
Side effects
Nausea Dyskinesia 118 more
How many evaluations
479
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's Disease (190 evaluations)
Side effects
Headaches Dizziness 55 more
How many evaluations
194
Tried for
Parkinson's Disease (305) Stiffness/Spasticity (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's Disease (143 evaluations)
Side effects
Dry mouth Blurry vision 50 more
How many evaluations
153
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's Disease (133 evaluations)
Side effects
Drowsiness Nausea 80 more
How many evaluations
138
Tried for
Parkinson's Disease (225)
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's Disease (124 evaluations)
Side effects
Nausea Sleepiness 66 more
How many evaluations
126
Check to add this treatment to your profile
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's Disease (103 evaluations)
Side effects
Skin irritation under patch Nausea 48 more
How many evaluations
105
Tried for
Parkinson's Disease (151) Stiffness/Spasticity (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's Disease (56 evaluations)
Side effects
Dyskinesia Nausea 24 more
How many evaluations
57
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's Disease (43 evaluations)
Side effects
Hospitalization Weight gain 18 more
How many evaluations
43
Tried for
Parkinson's Disease (104) Stiffness/Spasticity (5)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's Disease (43 evaluations)
Side effects
Diarrhea Dyskinesia 18 more
How many evaluations
45
Tried for
Parkinson's Disease (96)
Check to add this treatment to your profile
Treatment name(s)

(Zelapar)
Perceived effectiveness
for Parkinson's Disease (29 evaluations)
Side effects
Bitter taste Dizziness 14 more
How many evaluations
31
Tried for
Parkinson's Disease (66) Depressed mood (3)
1 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 54
30s 215
40s 771
50s 2,303
60s 3,905
70+ 3,042

Sex

Distribution of sex

47% Female
53% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 55
20-29 years 209
30-39 years 730
40-49 years 1,550
50-59 years 2,081
60-69 years 1,341
70+ years 363

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 105
Inherited (genetic) Parkinson's disease 751
Parkinsonism (unknown cause) 1,983
Parkinson's disease 7,008
Vascular Parkinsonism 50
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 7,263
Not Diagnosed 255

These charts show data from Parkinson's patients who have completed their condition history
Last updated: