Parkinson's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
594
Tried for
Parkinson's disease (591) stiffness/spasticity (5)
5 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
163
Tried for
Parkinson's disease (163) tremor(s) (2)
1 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
158
Tried for
Parkinson's disease (153) jerky movements (6)
2 more
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
137
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
118
Tried for
Parkinson's disease (118) stiffness/spasticity (7)
1 more
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
107
Tried for
Parkinson's disease (107) stiffness/spasticity (1)
1 more
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
70
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
69
Tried for
Parkinson's disease (69)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
51
Tried for
Parkinson's disease (49) jerky movements (7)
3 more
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
50

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (547 evaluations)
Side effects
nausea jerky movements 130 more
Total evaluations
559
Tried for
Parkinson's disease (591) stiffness/spasticity (5)
5 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (130 evaluations)
Side effects
jerky movements constant tiredness 34 more
Total evaluations
133
Tried for
Parkinson's disease (163) tremor(s) (2)
1 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (132 evaluations)
Side effects
dry mouth blurry vision 50 more
Total evaluations
137
Tried for
Parkinson's disease (153) jerky movements (6)
2 more
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (93 evaluations)
Side effects
nausea dizziness 43 more
Total evaluations
94
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (153 evaluations)
Side effects
jerky movements nausea 52 more
Total evaluations
153
Tried for
Parkinson's disease (118) stiffness/spasticity (7)
1 more
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (93 evaluations)
Side effects
sleepiness drowsiness 41 more
Total evaluations
93
Tried for
Parkinson's disease (107) stiffness/spasticity (1)
1 more
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (68 evaluations)
Side effects
nausea daytime sleepiness 28 more
Total evaluations
69
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (45 evaluations)
Side effects
diarrhea nausea 18 more
Total evaluations
45
Tried for
Parkinson's disease (69)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (34 evaluations)
Side effects
Hospitalization balance problems 16 more
Total evaluations
35
Tried for
Parkinson's disease (49) jerky movements (7)
3 more
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (41 evaluations)
Side effects
insomnia nausea 18 more
Total evaluations
46
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 65
30s 245
40s 962
50s 3383
60s 7384
70+ 9135
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 71
20-29 years 244
30-39 years 830
40-49 years 1855
50-59 years 2656
60-69 years 1944
70+ years 593

Distribution of sex

Sex
Sex Proportion # of patients
Male 11151
Female 10376

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 193
Parkinsonism of unknown cause 3600
Parkinson's disease 12708
Parkinson's disease of inherited (genetic) origin 1401
Vascular parkinsonism 94
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9482
Not Diagnosed 310

These charts show data from Parkinson's disease patients who have completed their condition history
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