Parkinson's Disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
651
Tried for
Parkinson's Disease (648) Stiffness/Spasticity (20)
1 more
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Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
284
Tried for
Parkinson's Disease (283) Stiffness/Spasticity (6)
1 more
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Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
234
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Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
210
Tried for
Parkinson's Disease (210)
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
195
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Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
151
Tried for
Parkinson's Disease (151) Stiffness/Spasticity (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
101
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
98
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
88
Tried for
Parkinson's Disease (88)
Check to add this treatment to your profile
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
68

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's Disease (490 evaluations)
Side effects
Nausea Dyskinesia 128 more
How many evaluations
496
Tried for
Parkinson's Disease (648) Stiffness/Spasticity (20)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's Disease (206 evaluations)
Side effects
Headaches Dizziness 59 more
How many evaluations
210
Tried for
Parkinson's Disease (283) Stiffness/Spasticity (6)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's Disease (149 evaluations)
Side effects
Dry mouth Blurry vision 50 more
How many evaluations
162
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's Disease (132 evaluations)
Side effects
Drowsiness Nausea 74 more
How many evaluations
135
Tried for
Parkinson's Disease (210)
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's Disease (130 evaluations)
Side effects
Nausea Sleepiness 66 more
How many evaluations
132
Check to add this treatment to your profile
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's Disease (116 evaluations)
Side effects
Nausea Skin irritation under patch 51 more
How many evaluations
118
Tried for
Parkinson's Disease (151) Stiffness/Spasticity (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's Disease (58 evaluations)
Side effects
Dyskinesia Nausea 24 more
How many evaluations
59
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's Disease (46 evaluations)
Side effects
Hospitalization Weight gain 23 more
How many evaluations
46
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's Disease (42 evaluations)
Side effects
Dyskinesia Loose stools 18 more
How many evaluations
44
Tried for
Parkinson's Disease (88)
Check to add this treatment to your profile
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's Disease (89 evaluations)
Side effects
Dyskinesia Dystonia 23 more
How many evaluations
89

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 53
30s 220
40s 801
50s 2,411
60s 4,217
70+ 3,487

Sex

Distribution of sex

48% Female
52% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 57
20-29 years 223
30-39 years 746
40-49 years 1,601
50-59 years 2,174
60-69 years 1,388
70+ years 388

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 114
Inherited (genetic) Parkinson's disease 822
Parkinsonism (unknown cause) 2,113
Parkinson's disease 7,503
Vascular Parkinsonism 58
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 7,533
Not Diagnosed 267

These charts show data from Parkinson's patients who have completed their condition history
Last updated: