Parkinson's Disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
674
Tried for
Parkinson's Disease (671) Stiffness/Spasticity (24)
3 more
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Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
303
Check to add this treatment to your profile
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
252
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
236
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Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
221
Tried for
Parkinson's Disease (220) Fatigue (2)
1 more
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Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
136
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Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
132
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
104
Tried for
Parkinson's Disease (104) Stiffness/Spasticity (3)
2 more
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Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
99
Tried for
Parkinson's Disease (99) Slowness (1)
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Treatment name(s)

(Zelapar)
Type
Prescription Drug
How many have tried
68
Tried for
Parkinson's Disease (68) Depressed mood (2)
1 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's Disease (391 evaluations)
Side effects
Nausea Dyskinesia 97 more
How many evaluations
395
Tried for
Parkinson's Disease (671) Stiffness/Spasticity (24)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's Disease (147 evaluations)
Side effects
Headaches Frequent urination 49 more
How many evaluations
153
Check to add this treatment to your profile
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's Disease (114 evaluations)
Side effects
Dry mouth Insomnia 49 more
How many evaluations
127
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's Disease (131 evaluations)
Side effects
Nausea Sleepiness 74 more
How many evaluations
135
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's Disease (129 evaluations)
Side effects
Drowsiness Excessive daytime sleepiness (somnolence) 73 more
How many evaluations
135
Tried for
Parkinson's Disease (220) Fatigue (2)
1 more
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Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's Disease (46 evaluations)
Side effects
Dyskinesia Jerky movements (dyskinesia) 24 more
How many evaluations
51
Check to add this treatment to your profile
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's Disease (72 evaluations)
Side effects
Nausea Skin irritation under patch 43 more
How many evaluations
72
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's Disease (40 evaluations)
Side effects
Hospitalization Headaches 23 more
How many evaluations
42
Tried for
Parkinson's Disease (104) Stiffness/Spasticity (3)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's Disease (31 evaluations)
Side effects
Diarrhea Dyskinesia 12 more
How many evaluations
34
Tried for
Parkinson's Disease (99) Slowness (1)
Check to add this treatment to your profile
Treatment name(s)

(Zelapar)
Perceived effectiveness
for Parkinson's Disease (24 evaluations)
Side effects
Insomnia Bitter taste 11 more
How many evaluations
25
Tried for
Parkinson's Disease (68) Depressed mood (2)
1 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 57
30s 172
40s 665
50s 1,883
60s 3,202
70+ 2,472

Sex

Distribution of sex

47% Female
53% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 56
20-29 years 191
30-39 years 676
40-49 years 1,399
50-59 years 1,831
60-69 years 1,153
70+ years 325

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 96
Inherited (genetic) Parkinson's disease 589
Parkinsonism (unknown cause) 1,693
Parkinson's disease 5,855
Vascular Parkinsonism 46
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,489
Not Diagnosed 236

These charts show data from Parkinson's patients who have completed their condition history
Last updated: