Parkinson's Disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
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Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
746
Tried for
Parkinson's Disease (743) Stiffness/Spasticity (19)
2 more
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Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
291
Tried for
Parkinson's Disease (290) Stiffness/Spasticity (7)
1 more
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Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
247
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Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
219
Tried for
Parkinson's Disease (219)
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Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
200
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Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
166
Tried for
Parkinson's Disease (166) Stiffness/Spasticity (7)
1 more
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Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
105
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Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
90
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Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
87
Tried for
Parkinson's Disease (87)
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Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
81
Tried for
Parkinson's Disease (81) Stiffness/Spasticity (4)
1 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's Disease (635 evaluations)
Side effects
Nausea Jerky movements (dyskinesia) 145 more
How many evaluations
642
Tried for
Parkinson's Disease (743) Stiffness/Spasticity (19)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's Disease (225 evaluations)
Side effects
Headaches Constipation 56 more
How many evaluations
230
Tried for
Parkinson's Disease (290) Stiffness/Spasticity (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's Disease (169 evaluations)
Side effects
Fatigue Nausea 48 more
How many evaluations
182
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's Disease (145 evaluations)
Side effects
Nausea Drowsiness 66 more
How many evaluations
149
Tried for
Parkinson's Disease (218)
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's Disease (137 evaluations)
Side effects
Nausea Daytime sleepiness 71 more
How many evaluations
139
Check to add this treatment to your profile
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's Disease (133 evaluations)
Side effects
Nausea Skin irritation under patch 52 more
How many evaluations
136
Tried for
Parkinson's Disease (166) Stiffness/Spasticity (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's Disease (54 evaluations)
Side effects
Hospitalization Headaches 27 more
How many evaluations
54
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's Disease (53 evaluations)
Side effects
Jerky movements (dyskinesia) Nausea 21 more
How many evaluations
54
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's Disease (49 evaluations)
Side effects
Jerky movements (dyskinesia) Loose bowel movements 22 more
How many evaluations
51
Tried for
Parkinson's Disease (87)
Check to add this treatment to your profile
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's Disease (114 evaluations)
Side effects
Jerky movements (dyskinesia) Nausea 25 more
How many evaluations
114
Tried for
Parkinson's Disease (81) Stiffness/Spasticity (4)
1 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 67
30s 232
40s 872
50s 2,654
60s 4,771
70+ 4,168

Sex

Distribution of sex

48% Female
52% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 59
20-29 years 239
30-39 years 772
40-49 years 1,683
50-59 years 2,311
60-69 years 1,537
70+ years 420

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 129
Inherited (genetic) Parkinson's disease 929
Parkinsonism (unknown cause) 2,341
Parkinson's disease 8,404
Vascular Parkinsonism 65
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8,023
Not Diagnosed 290

These charts show data from Parkinson's patients who have completed their condition history
Last updated: