Parkinson's Disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
678
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
307
Tried for
Parkinson's Disease (306) Stiffness/Spasticity (7)
1 more
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Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
254
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
226
Tried for
Parkinson's Disease (226)
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
211
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Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
151
Tried for
Parkinson's Disease (151) Stiffness/Spasticity (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
115
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
106
Tried for
Parkinson's Disease (106) Stiffness/Spasticity (5)
2 more
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Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
100
Tried for
Parkinson's Disease (100)
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Treatment name(s)

(Zelapar)
Type
Prescription Drug
How many have tried
65
Tried for
Parkinson's Disease (65) Depressed mood (3)
1 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's Disease (458 evaluations)
Side effects
Nausea Dyskinesia 113 more
How many evaluations
465
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's Disease (191 evaluations)
Side effects
Headaches Dizziness 56 more
How many evaluations
194
Tried for
Parkinson's Disease (306) Stiffness/Spasticity (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's Disease (138 evaluations)
Side effects
Dry mouth Blurry vision 48 more
How many evaluations
148
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's Disease (134 evaluations)
Side effects
Drowsiness Nausea 79 more
How many evaluations
139
Tried for
Parkinson's Disease (226)
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's Disease (127 evaluations)
Side effects
Nausea Sleepiness 68 more
How many evaluations
129
Check to add this treatment to your profile
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's Disease (101 evaluations)
Side effects
Skin irritation under patch Nausea 48 more
How many evaluations
103
Tried for
Parkinson's Disease (151) Stiffness/Spasticity (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's Disease (56 evaluations)
Side effects
Dyskinesia Nausea 25 more
How many evaluations
57
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's Disease (43 evaluations)
Side effects
Hospitalization Headaches 20 more
How many evaluations
43
Tried for
Parkinson's Disease (106) Stiffness/Spasticity (5)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's Disease (42 evaluations)
Side effects
Diarrhea Dyskinesia 18 more
How many evaluations
44
Tried for
Parkinson's Disease (100)
Check to add this treatment to your profile
Treatment name(s)

(Zelapar)
Perceived effectiveness
for Parkinson's Disease (29 evaluations)
Side effects
Bitter taste Dizziness 14 more
How many evaluations
31
Tried for
Parkinson's Disease (65) Depressed mood (3)
1 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 54
30s 216
40s 767
50s 2,316
60s 3,892
70+ 3,021

Sex

Distribution of sex

47% Female
53% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 55
20-29 years 208
30-39 years 731
40-49 years 1,547
50-59 years 2,075
60-69 years 1,336
70+ years 360

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 105
Inherited (genetic) Parkinson's disease 749
Parkinsonism (unknown cause) 1,976
Parkinson's disease 6,995
Vascular Parkinsonism 50
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 7,244
Not Diagnosed 256

These charts show data from Parkinson's patients who have completed their condition history
Last updated: