Parkinson's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
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Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
819
Tried for
Parkinson's disease (816) Stiffness/Spasticity (15)
3 more
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Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
307
Tried for
Parkinson's disease (305) Stiffness/Spasticity (7)
2 more
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Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
259
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Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
230
Tried for
Parkinson's disease (230)
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Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
212
Tried for
Parkinson's disease (212) Stiffness/Spasticity (1)
1 more
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Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
175
Tried for
Parkinson's disease (175) Stiffness/Spasticity (8)
1 more
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Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
109
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Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
92
Tried for
Parkinson's disease (91) Stiffness/Spasticity (6)
2 more
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Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
91
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Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
89
Tried for
Parkinson's disease (89)

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Parkinson's disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (687 evaluations)
Side effects
Nausea Jerky movements (dyskinesia) 161 more
Total evaluations
698
Tried for
Parkinson's disease (816) Stiffness/Spasticity (15)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (249 evaluations)
Side effects
Headaches Constipation 55 more
Total evaluations
255
Tried for
Parkinson's disease (305) Stiffness/Spasticity (7)
2 more
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Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (197 evaluations)
Side effects
Nausea Dry mouth 59 more
Total evaluations
210
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (162 evaluations)
Side effects
Nausea Drowsiness 72 more
Total evaluations
165
Tried for
Parkinson's disease (230)
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (153 evaluations)
Side effects
Nausea Drowsiness 73 more
Total evaluations
154
Tried for
Parkinson's disease (212) Stiffness/Spasticity (1)
1 more
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Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (142 evaluations)
Side effects
Nausea Skin irritation under patch 56 more
Total evaluations
146
Tried for
Parkinson's disease (175) Stiffness/Spasticity (8)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (61 evaluations)
Side effects
Hospitalization Balance problems 31 more
Total evaluations
63
Check to add this treatment to your profile
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (130 evaluations)
Side effects
Jerky movements (dyskinesia) Nausea 32 more
Total evaluations
131
Tried for
Parkinson's disease (91) Stiffness/Spasticity (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (48 evaluations)
Side effects
Jerky movements (dyskinesia) Nausea 19 more
Total evaluations
49
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (52 evaluations)
Side effects
Jerky movements (dyskinesia) Loose bowel movements 21 more
Total evaluations
54
Tried for
Parkinson's disease (89)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 70
30s 238
40s 922
50s 2,909
60s 5,350
70+ 4,934
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 63
20-29 years 242
30-39 years 792
40-49 years 1,737
50-59 years 2,418
60-69 years 1,657
70+ years 461

Sex

Distribution of sex

48% Female
52% Male

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 139
Inherited (genetic) Parkinson's disease 1,016
Parkinsonism (unknown cause) 2,559
Parkinson's disease 9,279
Vascular Parkinsonism 68
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8,371
Not Diagnosed 304

These charts show data from PD patients who have completed their condition history
Last updated: