Parkinson's Disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
778
Tried for
Parkinson's Disease (775) Stiffness/Spasticity (18)
3 more
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Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
293
Tried for
Parkinson's Disease (292) Stiffness/Spasticity (7)
1 more
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Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
250
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Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
225
Tried for
Parkinson's Disease (225)
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Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
204
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Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
170
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Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
110
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
90
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
88
Tried for
Parkinson's Disease (88)
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Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
83
Tried for
Parkinson's Disease (83) Stiffness/Spasticity (4)
1 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's Disease (652 evaluations)
Side effects
Nausea Jerky movements (dyskinesia) 149 more
How many evaluations
660
Tried for
Parkinson's Disease (776) Stiffness/Spasticity (18)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's Disease (228 evaluations)
Side effects
Headaches Constipation 56 more
How many evaluations
234
Tried for
Parkinson's Disease (292) Stiffness/Spasticity (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's Disease (182 evaluations)
Side effects
Nausea Fatigue 49 more
How many evaluations
195
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's Disease (152 evaluations)
Side effects
Nausea Drowsiness 69 more
How many evaluations
156
Tried for
Parkinson's Disease (225)
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's Disease (140 evaluations)
Side effects
Nausea Daytime sleepiness 70 more
How many evaluations
141
Check to add this treatment to your profile
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's Disease (138 evaluations)
Side effects
Nausea Skin irritation under patch 52 more
How many evaluations
141
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's Disease (59 evaluations)
Side effects
Hospitalization Speech problems 30 more
How many evaluations
59
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's Disease (53 evaluations)
Side effects
Jerky movements (dyskinesia) Nausea 21 more
How many evaluations
54
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's Disease (48 evaluations)
Side effects
Jerky movements (dyskinesia) Loose bowel movements 21 more
How many evaluations
50
Tried for
Parkinson's Disease (88)
Check to add this treatment to your profile
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's Disease (117 evaluations)
Side effects
Jerky movements (dyskinesia) Nausea 25 more
How many evaluations
117
Tried for
Parkinson's Disease (83) Stiffness/Spasticity (4)
1 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 68
30s 234
40s 891
50s 2,731
60s 4,963
70+ 4,405

Sex

Distribution of sex

48% Female
52% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 60
20-29 years 238
30-39 years 779
40-49 years 1,696
50-59 years 2,344
60-69 years 1,571
70+ years 431

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 131
Inherited (genetic) Parkinson's disease 963
Parkinsonism (unknown cause) 2,404
Parkinson's disease 8,687
Vascular Parkinsonism 66
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8,119
Not Diagnosed 292

These charts show data from Parkinson's patients who have completed their condition history
Last updated: