Parkinson's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
678
Tried for
Parkinson's disease (674) stiffness/spasticity (6)
5 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
193
Tried for
Parkinson's disease (193) tremor(s) (3)
1 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
182
Tried for
Parkinson's disease (177) jerky movements (5)
2 more
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
159
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
128
Tried for
Parkinson's disease (128) stiffness/spasticity (1)
1 more
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
124
Tried for
Parkinson's disease (123) stiffness/spasticity (8)
2 more
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
79
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
74
Tried for
Parkinson's disease (74)
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
61
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
56
Tried for
Parkinson's disease (54) jerky movements (7)
3 more

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (613 evaluations)
Side effects
nausea jerky movements 140 more
Total evaluations
625
Tried for
Parkinson's disease (674) stiffness/spasticity (6)
5 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (162 evaluations)
Side effects
headaches jerky movements 37 more
Total evaluations
165
Tried for
Parkinson's disease (193) tremor(s) (3)
1 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (148 evaluations)
Side effects
dry mouth fatigue 52 more
Total evaluations
153
Tried for
Parkinson's disease (177) jerky movements (5)
2 more
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (113 evaluations)
Side effects
nausea tiredness 50 more
Total evaluations
116
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (98 evaluations)
Side effects
sleepiness drowsiness 47 more
Total evaluations
98
Tried for
Parkinson's disease (128) stiffness/spasticity (1)
1 more
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (156 evaluations)
Side effects
jerky movements nausea 54 more
Total evaluations
157
Tried for
Parkinson's disease (123) stiffness/spasticity (8)
2 more
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (71 evaluations)
Side effects
nausea daytime sleepiness 31 more
Total evaluations
72
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (49 evaluations)
Side effects
diarrhea nausea 19 more
Total evaluations
49
Tried for
Parkinson's disease (74)
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (43 evaluations)
Side effects
insomnia nausea 19 more
Total evaluations
48
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (39 evaluations)
Side effects
Hospitalization balance problems 16 more
Total evaluations
40
Tried for
Parkinson's disease (54) jerky movements (7)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 68
30s 250
40s 1004
50s 3455
60s 7419
70+ 8934
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 70
20-29 years 245
30-39 years 833
40-49 years 1859
50-59 years 2663
60-69 years 1954
70+ years 592

Distribution of sex

Sex
Sex Proportion # of patients
Male 11129
Female 10352

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 193
Parkinsonism of unknown cause 3598
Parkinson's disease 12688
Parkinson's disease of inherited (genetic) origin 1402
Vascular parkinsonism 93
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9512
Not Diagnosed 311

These charts show data from Parkinson's disease patients who have completed their condition history
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