Parkinson's disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
783
Tried for
Parkinson's disease (779) stiffness/spasticity (12)
4 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
283
Tried for
Parkinson's disease (280) stiffness/spasticity (7)
3 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
243
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
206
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
178
Tried for
Parkinson's disease (178) stiffness/spasticity (1)
1 more
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
148
Tried for
Parkinson's disease (148) stiffness/spasticity (7)
1 more
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
104
Tried for
Parkinson's disease (103) stiffness/spasticity (7)
2 more
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
96
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
87
Tried for
Parkinson's disease (87)
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
82

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (701 evaluations)
Side effects
nausea jerky movements (dyskinesia) 170 more
Total evaluations
714
Tried for
Parkinson's disease (779) stiffness/spasticity (12)
4 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (243 evaluations)
Side effects
headaches jerky movements (dyskinesia) 53 more
Total evaluations
248
Tried for
Parkinson's disease (280) stiffness/spasticity (7)
3 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (183 evaluations)
Side effects
nausea dry mouth 64 more
Total evaluations
192
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (159 evaluations)
Side effects
nausea drowsiness 77 more
Total evaluations
163
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (144 evaluations)
Side effects
nausea drowsiness 69 more
Total evaluations
145
Tried for
Parkinson's disease (178) stiffness/spasticity (1)
1 more
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (135 evaluations)
Side effects
nausea skin irritation under patch 50 more
Total evaluations
138
Tried for
Parkinson's disease (148) stiffness/spasticity (7)
1 more
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (149 evaluations)
Side effects
jerky movements (dyskinesia) nausea 36 more
Total evaluations
150
Tried for
Parkinson's disease (103) stiffness/spasticity (7)
2 more
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (57 evaluations)
Side effects
Hospitalization balance problems 27 more
Total evaluations
59
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (55 evaluations)
Side effects
fatigue jerky movements (dyskinesia) 21 more
Total evaluations
57
Tried for
Parkinson's disease (87)
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (50 evaluations)
Side effects
jerky movements (dyskinesia) nausea 23 more
Total evaluations
52
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 69
30s 242
40s 974
50s 3,108
60s 6,017
70+ 5,964
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 69
20-29 years 244
30-39 years 821
40-49 years 1,835
50-59 years 2,636
60-69 years 1,908
70+ years 571

Sex

Distribution of sex

48% Female
52% Male

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 163
Inherited (genetic) Parkinson's disease 1,139
Parkinsonism (unknown cause) 2,844
Parkinson's disease 10,228
Vascular parkinsonism 75
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9,078
Not Diagnosed 333

These charts show data from Parkinson's disease patients who have completed their condition history
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