Parkinson's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
783
Tried for
Parkinson's disease (779) stiffness/spasticity (10)
4 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
257
Tried for
Parkinson's disease (254) stiffness/spasticity (5)
3 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
228
Tried for
Parkinson's disease (224) jerky movements (8)
3 more
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
197
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
156
Tried for
Parkinson's disease (156) stiffness/spasticity (1)
1 more
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
124
Tried for
Parkinson's disease (124) stiffness/spasticity (6)
1 more
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
115
Tried for
Parkinson's disease (114) stiffness/spasticity (9)
2 more
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
88
Tried for
Parkinson's disease (88)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
87
Tried for
Parkinson's disease (85) jerky movements (9)
4 more
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
79

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (686 evaluations)
Side effects
nausea jerky movements 157 more
Total evaluations
698
Tried for
Parkinson's disease (779) stiffness/spasticity (10)
4 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (217 evaluations)
Side effects
headaches jerky movements 48 more
Total evaluations
221
Tried for
Parkinson's disease (254) stiffness/spasticity (5)
3 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (180 evaluations)
Side effects
nausea dry mouth 59 more
Total evaluations
189
Tried for
Parkinson's disease (224) jerky movements (8)
3 more
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (149 evaluations)
Side effects
nausea drowsiness 67 more
Total evaluations
153
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (130 evaluations)
Side effects
nausea drowsiness 63 more
Total evaluations
131
Tried for
Parkinson's disease (156) stiffness/spasticity (1)
1 more
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (110 evaluations)
Side effects
nausea skin irritation under patch 47 more
Total evaluations
113
Tried for
Parkinson's disease (124) stiffness/spasticity (6)
1 more
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (162 evaluations)
Side effects
jerky movements nausea 39 more
Total evaluations
163
Tried for
Parkinson's disease (114) stiffness/spasticity (9)
2 more
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (52 evaluations)
Side effects
diarrhea nausea 20 more
Total evaluations
54
Tried for
Parkinson's disease (88)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (59 evaluations)
Side effects
Hospitalization balance problems 20 more
Total evaluations
60
Tried for
Parkinson's disease (85) jerky movements (9)
4 more
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (49 evaluations)
Side effects
nausea insomnia 22 more
Total evaluations
52
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 63
30s 244
40s 946
50s 3,171
60s 6,351
70+ 6,661
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 69
20-29 years 244
30-39 years 828
40-49 years 1,853
50-59 years 2,658
60-69 years 1,939
70+ years 587

Distribution of sex

Sex
Sex Proportion # of patients
Male 9,161
Female 8,544

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 170
Inherited (genetic) Parkinson's disease 1,202
Parkinsonism (unknown cause) 3,036
Parkinson's disease 10,844
Vascular parkinsonism 79
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9,430
Not Diagnosed 308

These charts show data from Parkinson's disease patients who have completed their condition history
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