Parkinson's disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
762
Tried for
Parkinson's disease (758) stiffness/spasticity (12)
4 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
284
Tried for
Parkinson's disease (282) stiffness/spasticity (7)
2 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
246
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
204
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
187
Tried for
Parkinson's disease (187) stiffness/spasticity (1)
1 more
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
152
Tried for
Parkinson's disease (152) stiffness/spasticity (7)
1 more
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
98
Tried for
Parkinson's disease (97) stiffness/spasticity (6)
2 more
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
98
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
87
Tried for
Parkinson's disease (87)
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
82

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (683 evaluations)
Side effects
nausea jerky movements (dyskinesia) 159 more
Total evaluations
696
Tried for
Parkinson's disease (758) stiffness/spasticity (12)
4 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (243 evaluations)
Side effects
headaches constipation 54 more
Total evaluations
247
Tried for
Parkinson's disease (282) stiffness/spasticity (7)
2 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (200 evaluations)
Side effects
nausea dry mouth 63 more
Total evaluations
211
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (153 evaluations)
Side effects
nausea drowsiness 74 more
Total evaluations
157
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (150 evaluations)
Side effects
nausea drowsiness 71 more
Total evaluations
151
Tried for
Parkinson's disease (187) stiffness/spasticity (1)
1 more
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (136 evaluations)
Side effects
nausea skin irritation under patch 52 more
Total evaluations
140
Tried for
Parkinson's disease (152) stiffness/spasticity (7)
1 more
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (143 evaluations)
Side effects
jerky movements (dyskinesia) nausea 35 more
Total evaluations
144
Tried for
Parkinson's disease (97) stiffness/spasticity (6)
2 more
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (55 evaluations)
Side effects
Hospitalization balance problems 27 more
Total evaluations
57
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (54 evaluations)
Side effects
fatigue jerky movements (dyskinesia) 21 more
Total evaluations
56
Tried for
Parkinson's disease (87)
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (50 evaluations)
Side effects
jerky movements (dyskinesia) nausea 24 more
Total evaluations
52
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 71
30s 240
40s 956
50s 3,007
60s 5,786
70+ 5,656
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 66
20-29 years 243
30-39 years 812
40-49 years 1,797
50-59 years 2,550
60-69 years 1,812
70+ years 544

Sex

Distribution of sex

48% Female
52% Male

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 155
Inherited (genetic) Parkinson's disease 1,097
Parkinsonism (unknown cause) 2,731
Parkinson's disease 9,888
Vascular parkinsonism 71
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8,821
Not Diagnosed 324

These charts show data from Parkinson's disease patients who have completed their condition history
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