Parkinson's Disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
649
Tried for
Parkinson's Disease (645) Stiffness/Spasticity (25)
3 more
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Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
308
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Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
243
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Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
241
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Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
216
Tried for
Parkinson's Disease (215) Fatigue (2)
1 more
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Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
141
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Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
124
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Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
100
Tried for
Parkinson's Disease (100) Stiffness/Spasticity (4)
2 more
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Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
93
Tried for
Parkinson's Disease (93) Slowness (1)
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Treatment name(s)

(Zelapar)
Type
Prescription Drug
How many have tried
68
Tried for
Parkinson's Disease (68) Depressed mood (2)
1 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's Disease (357 evaluations)
Side effects
Nausea Dyskinesia 89 more
How many evaluations
367
Tried for
Parkinson's Disease (645) Stiffness/Spasticity (25)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's Disease (153 evaluations)
Side effects
Headaches Frequent urination 44 more
How many evaluations
159
Check to add this treatment to your profile
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's Disease (109 evaluations)
Side effects
Dry mouth Blurry vision 49 more
How many evaluations
123
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's Disease (128 evaluations)
Side effects
Daytime sleepiness Nausea 76 more
How many evaluations
133
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's Disease (121 evaluations)
Side effects
Weight gain Drowsiness 72 more
How many evaluations
129
Tried for
Parkinson's Disease (215) Fatigue (2)
1 more
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Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's Disease (48 evaluations)
Side effects
Dyskinesia Jerky movements (dyskinesia) 25 more
How many evaluations
53
Check to add this treatment to your profile
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's Disease (60 evaluations)
Side effects
Skin irritation under patch Dizziness 36 more
How many evaluations
60
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's Disease (38 evaluations)
Side effects
Hospitalization Headaches 16 more
How many evaluations
40
Tried for
Parkinson's Disease (100) Stiffness/Spasticity (4)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's Disease (27 evaluations)
Side effects
Diarrhea Dyskinesia 7 more
How many evaluations
30
Tried for
Parkinson's Disease (93) Slowness (1)
Check to add this treatment to your profile
Treatment name(s)

(Zelapar)
Perceived effectiveness
for Parkinson's Disease (21 evaluations)
Side effects
Insomnia Bitter taste 11 more
How many evaluations
22
Tried for
Parkinson's Disease (68) Depressed mood (2)
1 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 61
30s 156
40s 628
50s 1,744
60s 2,936
70+ 2,279

Sex

Distribution of sex

47% Female
53% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 54
20-29 years 187
30-39 years 649
40-49 years 1,349
50-59 years 1,743
60-69 years 1,089
70+ years 307

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 95
Inherited (genetic) Parkinson's disease 542
Parkinsonism (unknown cause) 1,594
Parkinson's disease 5,436
Vascular Parkinsonism 45
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,204
Not Diagnosed 231

These charts show data from Parkinson's patients who have completed their condition history
Last updated: