Parkinson's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
709
Tried for
Parkinson's disease (706) stiffness/spasticity (7)
4 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
205
Tried for
Parkinson's disease (204) tremor(s) (3)
2 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
194
Tried for
Parkinson's disease (189) jerky movements (6)
3 more
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
168
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
136
Tried for
Parkinson's disease (136) stiffness/spasticity (1)
1 more
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
126
Tried for
Parkinson's disease (125) stiffness/spasticity (8)
2 more
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
86
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
74
Tried for
Parkinson's disease (74)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
68
Tried for
Parkinson's disease (66) jerky movements (8)
3 more
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
64

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (652 evaluations)
Side effects
nausea jerky movements 144 more
Total evaluations
663
Tried for
Parkinson's disease (706) stiffness/spasticity (7)
4 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (181 evaluations)
Side effects
headaches jerky movements 37 more
Total evaluations
185
Tried for
Parkinson's disease (204) tremor(s) (3)
2 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (156 evaluations)
Side effects
dry mouth fatigue 53 more
Total evaluations
161
Tried for
Parkinson's disease (189) jerky movements (6)
3 more
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (126 evaluations)
Side effects
nausea tiredness 53 more
Total evaluations
129
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (113 evaluations)
Side effects
sleepiness drowsiness 54 more
Total evaluations
114
Tried for
Parkinson's disease (136) stiffness/spasticity (1)
1 more
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (156 evaluations)
Side effects
jerky movements nausea 55 more
Total evaluations
158
Tried for
Parkinson's disease (125) stiffness/spasticity (8)
2 more
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (78 evaluations)
Side effects
nausea daytime sleepiness 33 more
Total evaluations
79
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (49 evaluations)
Side effects
diarrhea nausea 19 more
Total evaluations
49
Tried for
Parkinson's disease (74)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (47 evaluations)
Side effects
Hospitalization balance problems 19 more
Total evaluations
48
Tried for
Parkinson's disease (66) jerky movements (8)
3 more
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (44 evaluations)
Side effects
nausea insomnia 19 more
Total evaluations
48
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 68
30s 255
40s 1040
50s 3535
60s 7472
70+ 8689
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 70
20-29 years 245
30-39 years 833
40-49 years 1859
50-59 years 2663
60-69 years 1952
70+ years 591

Distribution of sex

Sex
Sex Proportion # of patients
Male 11081
Female 10324

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 192
Parkinsonism of unknown cause 3582
Parkinson's disease 12660
Parkinson's disease of inherited (genetic) origin 1400
Vascular parkinsonism 93
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9509
Not Diagnosed 311

These charts show data from Parkinson's disease patients who have completed their condition history
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