Parkinson's Disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
702
Tried for
Parkinson's Disease (699) Stiffness/Spasticity (21)
1 more
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Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
287
Tried for
Parkinson's Disease (286) Stiffness/Spasticity (7)
1 more
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Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
234
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Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
218
Tried for
Parkinson's Disease (218)
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
199
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Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
156
Tried for
Parkinson's Disease (156) Stiffness/Spasticity (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
99
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
96
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
86
Tried for
Parkinson's Disease (86)
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Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
77

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's Disease (559 evaluations)
Side effects
Nausea Dyskinesia 138 more
How many evaluations
565
Tried for
Parkinson's Disease (699) Stiffness/Spasticity (21)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's Disease (217 evaluations)
Side effects
Headaches Dizziness 61 more
How many evaluations
222
Tried for
Parkinson's Disease (286) Stiffness/Spasticity (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's Disease (165 evaluations)
Side effects
Nausea Dry mouth 47 more
How many evaluations
177
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's Disease (142 evaluations)
Side effects
Nausea Drowsiness 70 more
How many evaluations
145
Tried for
Parkinson's Disease (218)
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's Disease (134 evaluations)
Side effects
Nausea Sleepiness 65 more
How many evaluations
136
Check to add this treatment to your profile
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's Disease (121 evaluations)
Side effects
Nausea Skin irritation under patch 50 more
How many evaluations
123
Tried for
Parkinson's Disease (156) Stiffness/Spasticity (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's Disease (49 evaluations)
Side effects
Hospitalization Dyskinesia 26 more
How many evaluations
49
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's Disease (52 evaluations)
Side effects
Nausea Dyskinesia 22 more
How many evaluations
53
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's Disease (43 evaluations)
Side effects
Dyskinesia Loose stools 17 more
How many evaluations
45
Tried for
Parkinson's Disease (86)
Check to add this treatment to your profile
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's Disease (102 evaluations)
Side effects
Dyskinesia Nausea 22 more
How many evaluations
102

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 61
30s 222
40s 848
50s 2,539
60s 4,456
70+ 3,774

Sex

Distribution of sex

48% Female
52% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 58
20-29 years 230
30-39 years 754
40-49 years 1,650
50-59 years 2,233
60-69 years 1,461
70+ years 403

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 122
Inherited (genetic) Parkinson's disease 870
Parkinsonism (unknown cause) 2,213
Parkinson's disease 7,929
Vascular Parkinsonism 62
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 7,764
Not Diagnosed 277

These charts show data from Parkinson's patients who have completed their condition history
Last updated: