Parkinson's Disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
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Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
725
Tried for
Parkinson's Disease (722) Stiffness/Spasticity (19)
2 more
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Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
286
Tried for
Parkinson's Disease (285) Stiffness/Spasticity (7)
1 more
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Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
240
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Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
221
Tried for
Parkinson's Disease (221)
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Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
198
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Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
162
Tried for
Parkinson's Disease (162) Stiffness/Spasticity (7)
1 more
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Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
103
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
93
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Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
86
Tried for
Parkinson's Disease (86)
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Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
80
Tried for
Parkinson's Disease (80) Stiffness/Spasticity (4)
1 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's Disease (605 evaluations)
Side effects
Nausea Jerky movements (dyskinesia) 136 more
How many evaluations
612
Tried for
Parkinson's Disease (721) Stiffness/Spasticity (19)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's Disease (221 evaluations)
Side effects
Headaches Constipation 58 more
How many evaluations
226
Tried for
Parkinson's Disease (285) Stiffness/Spasticity (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's Disease (171 evaluations)
Side effects
Nausea Dry mouth 48 more
How many evaluations
183
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's Disease (147 evaluations)
Side effects
Nausea Drowsiness 70 more
How many evaluations
151
Tried for
Parkinson's Disease (222)
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's Disease (133 evaluations)
Side effects
Nausea Daytime sleepiness 72 more
How many evaluations
135
Check to add this treatment to your profile
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's Disease (131 evaluations)
Side effects
Nausea Skin irritation under patch 51 more
How many evaluations
134
Tried for
Parkinson's Disease (162) Stiffness/Spasticity (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's Disease (55 evaluations)
Side effects
Hospitalization Headaches 27 more
How many evaluations
55
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's Disease (51 evaluations)
Side effects
Jerky movements (dyskinesia) Nausea 21 more
How many evaluations
52
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's Disease (47 evaluations)
Side effects
Jerky movements (dyskinesia) Loose bowel movements 21 more
How many evaluations
49
Tried for
Parkinson's Disease (86)
Check to add this treatment to your profile
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's Disease (111 evaluations)
Side effects
Jerky movements (dyskinesia) Nausea 24 more
How many evaluations
111
Tried for
Parkinson's Disease (80) Stiffness/Spasticity (4)
1 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 65
30s 230
40s 861
50s 2,595
60s 4,615
70+ 3,981

Sex

Distribution of sex

48% Female
52% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 59
20-29 years 237
30-39 years 767
40-49 years 1,669
50-59 years 2,283
60-69 years 1,512
70+ years 412

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 125
Inherited (genetic) Parkinson's disease 905
Parkinsonism (unknown cause) 2,303
Parkinson's disease 8,173
Vascular Parkinsonism 62
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 7,939
Not Diagnosed 288

These charts show data from Parkinson's patients who have completed their condition history
Last updated: