Parkinson's disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
737
Tried for
Parkinson's disease (734) stiffness/spasticity (7)
4 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
229
Tried for
Parkinson's disease (228) stiffness/spasticity (3)
2 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
205
Tried for
Parkinson's disease (201) jerky movements (7)
3 more
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
173
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
139
Tried for
Parkinson's disease (139) stiffness/spasticity (1)
1 more
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
122
Tried for
Parkinson's disease (121) stiffness/spasticity (8)
2 more
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
94
Tried for
Parkinson's disease (94) stiffness/spasticity (4)
1 more
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
80
Tried for
Parkinson's disease (78) jerky movements (9)
4 more
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
78
Tried for
Parkinson's disease (78)
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
74

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (663 evaluations)
Side effects
nausea jerky movements 148 more
Total evaluations
674
Tried for
Parkinson's disease (734) stiffness/spasticity (7)
4 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (201 evaluations)
Side effects
headaches jerky movements 44 more
Total evaluations
205
Tried for
Parkinson's disease (228) stiffness/spasticity (3)
2 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (168 evaluations)
Side effects
dry mouth fatigue 55 more
Total evaluations
176
Tried for
Parkinson's disease (201) jerky movements (7)
3 more
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (126 evaluations)
Side effects
nausea tiredness 56 more
Total evaluations
128
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (115 evaluations)
Side effects
drowsiness sleepiness 54 more
Total evaluations
116
Tried for
Parkinson's disease (139) stiffness/spasticity (1)
1 more
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (162 evaluations)
Side effects
jerky movements nausea 54 more
Total evaluations
163
Tried for
Parkinson's disease (121) stiffness/spasticity (8)
2 more
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (86 evaluations)
Side effects
nausea daytime sleepiness 38 more
Total evaluations
87
Tried for
Parkinson's disease (94) stiffness/spasticity (4)
1 more
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (54 evaluations)
Side effects
Hospitalization balance problems 20 more
Total evaluations
55
Tried for
Parkinson's disease (78) jerky movements (9)
4 more
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (49 evaluations)
Side effects
diarrhea nausea 19 more
Total evaluations
49
Tried for
Parkinson's disease (78)
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (47 evaluations)
Side effects
nausea insomnia 21 more
Total evaluations
51
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
Last updated:

Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 59
30s 252
40s 999
50s 3373
60s 7029
70+ 7790
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 70
20-29 years 245
30-39 years 832
40-49 years 1858
50-59 years 2661
60-69 years 1940
70+ years 588

Distribution of sex

Sex
Sex Proportion # of patients
Male 10181
Female 9634

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 183
Parkinsonism of unknown cause 3353
Parkinson's disease 11949
Parkinson's disease of inherited (genetic) origin 1322
Vascular parkinsonism 90
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9473
Not Diagnosed 310

These charts show data from Parkinson's disease patients who have completed their condition history
Last updated: