Parkinson's Disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
641
Tried for
Parkinson's Disease (638) Stiffness/Spasticity (20)
1 more
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Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
283
Tried for
Parkinson's Disease (282) Stiffness/Spasticity (6)
1 more
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Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
233
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Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
206
Tried for
Parkinson's Disease (206)
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
190
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Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
151
Tried for
Parkinson's Disease (151) Stiffness/Spasticity (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
101
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
96
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
92
Tried for
Parkinson's Disease (92)
Check to add this treatment to your profile
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
65

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's Disease (476 evaluations)
Side effects
Nausea Dyskinesia 126 more
How many evaluations
482
Tried for
Parkinson's Disease (638) Stiffness/Spasticity (20)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's Disease (196 evaluations)
Side effects
Headaches Dizziness 55 more
How many evaluations
200
Tried for
Parkinson's Disease (282) Stiffness/Spasticity (6)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's Disease (149 evaluations)
Side effects
Dry mouth Blurry vision 51 more
How many evaluations
161
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's Disease (127 evaluations)
Side effects
Drowsiness Nausea 73 more
How many evaluations
130
Tried for
Parkinson's Disease (206)
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's Disease (126 evaluations)
Side effects
Nausea Sleepiness 64 more
How many evaluations
128
Check to add this treatment to your profile
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's Disease (112 evaluations)
Side effects
Nausea Skin irritation under patch 48 more
How many evaluations
114
Tried for
Parkinson's Disease (151) Stiffness/Spasticity (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's Disease (55 evaluations)
Side effects
Dyskinesia Nausea 24 more
How many evaluations
56
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's Disease (46 evaluations)
Side effects
Hospitalization Weight gain 22 more
How many evaluations
46
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's Disease (44 evaluations)
Side effects
Dyskinesia Loose stools 18 more
How many evaluations
46
Tried for
Parkinson's Disease (92)
Check to add this treatment to your profile
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's Disease (84 evaluations)
Side effects
Dyskinesia Dystonia 18 more
How many evaluations
84

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 53
30s 207
40s 770
50s 2,306
60s 4,066
70+ 3,402

Sex

Distribution of sex

47% Female
53% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 57
20-29 years 216
30-39 years 736
40-49 years 1,586
50-59 years 2,132
60-69 years 1,371
70+ years 375

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 111
Inherited (genetic) Parkinson's disease 793
Parkinsonism (unknown cause) 2,062
Parkinson's disease 7,282
Vascular Parkinsonism 55
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 7,416
Not Diagnosed 263

These charts show data from Parkinson's patients who have completed their condition history
Last updated: