Parkinson's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
737
Tried for
Parkinson's disease (734) stiffness/spasticity (6)
4 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
224
Tried for
Parkinson's disease (223) stiffness/spasticity (3)
2 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
202
Tried for
Parkinson's disease (198) jerky movements (8)
3 more
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
174
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
139
Tried for
Parkinson's disease (139) stiffness/spasticity (1)
1 more
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
118
Tried for
Parkinson's disease (117) stiffness/spasticity (8)
2 more
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
96
Tried for
Parkinson's disease (96) stiffness/spasticity (4)
1 more
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
81
Tried for
Parkinson's disease (79) jerky movements (9)
4 more
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
76
Tried for
Parkinson's disease (76)
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
74

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (662 evaluations)
Side effects
nausea jerky movements 152 more
Total evaluations
674
Tried for
Parkinson's disease (734) stiffness/spasticity (6)
4 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (198 evaluations)
Side effects
headaches jerky movements 43 more
Total evaluations
202
Tried for
Parkinson's disease (223) stiffness/spasticity (3)
2 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (165 evaluations)
Side effects
dry mouth fatigue 53 more
Total evaluations
173
Tried for
Parkinson's disease (198) jerky movements (8)
3 more
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (129 evaluations)
Side effects
nausea tiredness 57 more
Total evaluations
131
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (118 evaluations)
Side effects
drowsiness sleepiness 58 more
Total evaluations
119
Tried for
Parkinson's disease (139) stiffness/spasticity (1)
1 more
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (169 evaluations)
Side effects
jerky movements nausea 54 more
Total evaluations
170
Tried for
Parkinson's disease (117) stiffness/spasticity (8)
2 more
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (89 evaluations)
Side effects
nausea daytime sleepiness 39 more
Total evaluations
90
Tried for
Parkinson's disease (96) stiffness/spasticity (4)
1 more
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (55 evaluations)
Side effects
Hospitalization balance problems 19 more
Total evaluations
56
Tried for
Parkinson's disease (79) jerky movements (9)
4 more
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (49 evaluations)
Side effects
diarrhea nausea 19 more
Total evaluations
49
Tried for
Parkinson's disease (76)
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (47 evaluations)
Side effects
nausea insomnia 21 more
Total evaluations
51
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 59
30s 245
40s 985
50s 3,305
60s 6,737
70+ 7,408
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 69
20-29 years 245
30-39 years 831
40-49 years 1,855
50-59 years 2,661
60-69 years 1,939
70+ years 587

Distribution of sex

Sex
Sex Proportion # of patients
Male 9,821
Female 9,219

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 177
Inherited (genetic) Parkinson's disease 1,281
Parkinsonism (unknown cause) 3,227
Parkinson's disease 11,578
Vascular parkinsonism 85
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9,453
Not Diagnosed 309

These charts show data from Parkinson's disease patients who have completed their condition history
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