Parkinson's Disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
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Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
801
Tried for
Parkinson's Disease (798) Stiffness/Spasticity (16)
3 more
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Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
303
Tried for
Parkinson's Disease (301) Stiffness/Spasticity (7)
2 more
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Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
257
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Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
229
Tried for
Parkinson's Disease (229)
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Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
213
Tried for
Parkinson's Disease (213) Stiffness/Spasticity (1)
1 more
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Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
174
Tried for
Parkinson's Disease (174) Stiffness/Spasticity (7)
1 more
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Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
111
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
92
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Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
90
Tried for
Parkinson's Disease (89) Stiffness/Spasticity (5)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
88
Tried for
Parkinson's Disease (88)

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's Disease (653 evaluations)
Side effects
Nausea Jerky movements (dyskinesia) 150 more
Total evaluations
661
Tried for
Parkinson's Disease (798) Stiffness/Spasticity (16)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's Disease (235 evaluations)
Side effects
Headaches Dizziness 57 more
Total evaluations
241
Tried for
Parkinson's Disease (301) Stiffness/Spasticity (7)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's Disease (192 evaluations)
Side effects
Nausea Dry mouth 56 more
Total evaluations
205
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's Disease (156 evaluations)
Side effects
Nausea Drowsiness 70 more
Total evaluations
160
Tried for
Parkinson's Disease (229)
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's Disease (146 evaluations)
Side effects
Nausea Drowsiness 73 more
Total evaluations
147
Tried for
Parkinson's Disease (213) Stiffness/Spasticity (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's Disease (140 evaluations)
Side effects
Nausea Skin irritation under patch 52 more
Total evaluations
143
Tried for
Parkinson's Disease (174) Stiffness/Spasticity (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's Disease (60 evaluations)
Side effects
Hospitalization Balance problems 32 more
Total evaluations
61
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's Disease (52 evaluations)
Side effects
Jerky movements (dyskinesia) Nausea 21 more
Total evaluations
53
Check to add this treatment to your profile
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's Disease (123 evaluations)
Side effects
Jerky movements (dyskinesia) Nausea 28 more
Total evaluations
124
Tried for
Parkinson's Disease (89) Stiffness/Spasticity (5)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's Disease (50 evaluations)
Side effects
Jerky movements (dyskinesia) Loose bowel movements 21 more
Total evaluations
52
Tried for
Parkinson's Disease (88)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has Parkinson's Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 69
30s 240
40s 913
50s 2,853
60s 5,182
70+ 4,704
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 62
20-29 years 239
30-39 years 788
40-49 years 1,716
50-59 years 2,387
60-69 years 1,613
70+ years 448

Sex

Distribution of sex

48% Female
52% Male

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 135
Inherited (genetic) Parkinson's disease 990
Parkinsonism (unknown cause) 2,499
Parkinson's disease 9,047
Vascular Parkinsonism 68
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8,258
Not Diagnosed 296

These charts show data from Parkinson's patients who have completed their condition history
Last updated: