Parkinson's Disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
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Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
658
Tried for
Parkinson's Disease (655) Stiffness/Spasticity (22)
3 more
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Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
309
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Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
248
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Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
237
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Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
217
Tried for
Parkinson's Disease (216) Fatigue (2)
1 more
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Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
141
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Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
128
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Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
103
Tried for
Parkinson's Disease (103) Stiffness/Spasticity (3)
2 more
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Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
97
Tried for
Parkinson's Disease (97) Slowness (1)
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Treatment name(s)

(Zelapar)
Type
Prescription Drug
How many have tried
67
Tried for
Parkinson's Disease (67) Depressed mood (2)
1 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's Disease (370 evaluations)
Side effects
Nausea Dyskinesia 96 more
How many evaluations
376
Tried for
Parkinson's Disease (655) Stiffness/Spasticity (22)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's Disease (157 evaluations)
Side effects
Headaches Frequent urination 45 more
How many evaluations
163
Check to add this treatment to your profile
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's Disease (113 evaluations)
Side effects
Dry mouth Blurry vision 49 more
How many evaluations
127
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's Disease (133 evaluations)
Side effects
Nausea Daytime sleepiness 76 more
How many evaluations
137
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's Disease (123 evaluations)
Side effects
Drowsiness Excessive daytime sleepiness (somnolence) 71 more
How many evaluations
130
Tried for
Parkinson's Disease (216) Fatigue (2)
1 more
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Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's Disease (50 evaluations)
Side effects
Dyskinesia Jerky movements (dyskinesia) 27 more
How many evaluations
55
Check to add this treatment to your profile
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's Disease (64 evaluations)
Side effects
Nausea Skin irritation under patch 38 more
How many evaluations
64
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's Disease (38 evaluations)
Side effects
Hospitalization Headaches 19 more
How many evaluations
40
Tried for
Parkinson's Disease (103) Stiffness/Spasticity (3)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's Disease (29 evaluations)
Side effects
Diarrhea Dyskinesia 10 more
How many evaluations
32
Tried for
Parkinson's Disease (97) Slowness (1)
Check to add this treatment to your profile
Treatment name(s)

(Zelapar)
Perceived effectiveness
for Parkinson's Disease (22 evaluations)
Side effects
Insomnia Bitter taste 11 more
How many evaluations
23
Tried for
Parkinson's Disease (67) Depressed mood (2)
1 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 60
30s 163
40s 638
50s 1,804
60s 3,034
70+ 2,358

Sex

Distribution of sex

47% Female
53% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 54
20-29 years 189
30-39 years 657
40-49 years 1,364
50-59 years 1,789
60-69 years 1,110
70+ years 313

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 95
Inherited (genetic) Parkinson's disease 566
Parkinsonism (unknown cause) 1,633
Parkinson's disease 5,597
Vascular Parkinsonism 45
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,318
Not Diagnosed 235

These charts show data from Parkinson's patients who have completed their condition history
Last updated: