Parkinson's Disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
647
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
306
Tried for
Parkinson's Disease (305) Stiffness/Spasticity (8)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
256
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
223
Tried for
Parkinson's Disease (223)
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
211
Check to add this treatment to your profile
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
145
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
119
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
106
Tried for
Parkinson's Disease (106) Stiffness/Spasticity (4)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
101
Tried for
Parkinson's Disease (101)
Check to add this treatment to your profile
Treatment name(s)

(Zelapar)
Type
Prescription Drug
How many have tried
63
Tried for
Parkinson's Disease (63) Depressed mood (3)
1 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's Disease (414 evaluations)
Side effects
Nausea Dyskinesia 103 more
How many evaluations
419
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's Disease (173 evaluations)
Side effects
Headaches Frequent urination 53 more
How many evaluations
176
Tried for
Parkinson's Disease (305) Stiffness/Spasticity (8)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's Disease (132 evaluations)
Side effects
Dry mouth Swelling in legs, feet and ankles 47 more
How many evaluations
141
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's Disease (130 evaluations)
Side effects
Drowsiness Nausea 81 more
How many evaluations
136
Tried for
Parkinson's Disease (223)
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's Disease (133 evaluations)
Side effects
Nausea Sleepiness 69 more
How many evaluations
136
Check to add this treatment to your profile
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's Disease (86 evaluations)
Side effects
Skin irritation under patch Nausea 45 more
How many evaluations
88
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's Disease (48 evaluations)
Side effects
Dyskinesia Jerky movements (dyskinesia) 22 more
How many evaluations
49
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's Disease (42 evaluations)
Side effects
Hospitalization Headaches 23 more
How many evaluations
43
Tried for
Parkinson's Disease (106) Stiffness/Spasticity (4)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's Disease (40 evaluations)
Side effects
Diarrhea Dyskinesia 11 more
How many evaluations
42
Tried for
Parkinson's Disease (101)
Check to add this treatment to your profile
Treatment name(s)

(Zelapar)
Perceived effectiveness
for Parkinson's Disease (29 evaluations)
Side effects
Dizziness Insomnia 13 more
How many evaluations
30
Tried for
Parkinson's Disease (63) Depressed mood (3)
1 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 56
30s 201
40s 723
50s 2,151
60s 3,596
70+ 2,810

Sex

Distribution of sex

47% Female
53% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 55
20-29 years 203
30-39 years 704
40-49 years 1,500
50-59 years 1,983
60-69 years 1,262
70+ years 348

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 100
Inherited (genetic) Parkinson's disease 685
Parkinsonism (unknown cause) 1,864
Parkinson's disease 6,553
Vascular Parkinsonism 48
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,957
Not Diagnosed 252

These charts show data from Parkinson's patients who have completed their condition history
Last updated: