Parkinson's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
758
Tried for
Parkinson's disease (755) Stiffness/Spasticity (13)
3 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
279
Tried for
Parkinson's disease (277) Stiffness/Spasticity (7)
2 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
248
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
205
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
188
Tried for
Parkinson's disease (188) Stiffness/Spasticity (1)
1 more
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
155
Tried for
Parkinson's disease (155) Stiffness/Spasticity (7)
1 more
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
99
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
94
Tried for
Parkinson's disease (93) Stiffness/Spasticity (6)
2 more
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
84
Tried for
Parkinson's disease (84)
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
82

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (674 evaluations)
Side effects
Nausea Jerky movements (dyskinesia) 158 more
Total evaluations
686
Tried for
Parkinson's disease (755) Stiffness/Spasticity (13)
3 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (240 evaluations)
Side effects
Headaches Constipation 54 more
Total evaluations
244
Tried for
Parkinson's disease (277) Stiffness/Spasticity (7)
2 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (197 evaluations)
Side effects
Nausea Dry mouth 62 more
Total evaluations
208
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (152 evaluations)
Side effects
Nausea Drowsiness 71 more
Total evaluations
156
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (155 evaluations)
Side effects
Nausea Drowsiness 72 more
Total evaluations
156
Tried for
Parkinson's disease (188) Stiffness/Spasticity (1)
1 more
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (137 evaluations)
Side effects
Nausea Skin irritation under patch 56 more
Total evaluations
141
Tried for
Parkinson's disease (155) Stiffness/Spasticity (7)
1 more
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (56 evaluations)
Side effects
Hospitalization Balance problems 29 more
Total evaluations
58
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (141 evaluations)
Side effects
Jerky movements (dyskinesia) Nausea 33 more
Total evaluations
142
Tried for
Parkinson's disease (93) Stiffness/Spasticity (6)
2 more
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (53 evaluations)
Side effects
Fatigue Jerky movements (dyskinesia) 21 more
Total evaluations
55
Tried for
Parkinson's disease (84)
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (50 evaluations)
Side effects
Jerky movements (dyskinesia) Nausea 24 more
Total evaluations
51
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 69
30s 237
40s 935
50s 2,980
60s 5,641
70+ 5,422
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 65
20-29 years 243
30-39 years 803
40-49 years 1,782
50-59 years 2,508
60-69 years 1,760
70+ years 516

Sex

Distribution of sex

48% Female
52% Male

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 151
Inherited (genetic) Parkinson's disease 1,070
Parkinsonism (unknown cause) 2,682
Parkinson's disease 9,675
Vascular parkinsonism 69
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8,675
Not Diagnosed 321

These charts show data from Parkinson's disease patients who have completed their condition history
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