Parkinson's disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
778
Tried for
Parkinson's disease (774) stiffness/spasticity (12)
4 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
283
Tried for
Parkinson's disease (280) stiffness/spasticity (7)
3 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
244
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
203
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
181
Tried for
Parkinson's disease (181) stiffness/spasticity (1)
1 more
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
147
Tried for
Parkinson's disease (147) stiffness/spasticity (7)
1 more
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
101
Tried for
Parkinson's disease (100) stiffness/spasticity (7)
2 more
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
96
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
87
Tried for
Parkinson's disease (87)
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
81

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (693 evaluations)
Side effects
nausea jerky movements (dyskinesia) 163 more
Total evaluations
706
Tried for
Parkinson's disease (774) stiffness/spasticity (12)
4 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (244 evaluations)
Side effects
headaches jerky movements (dyskinesia) 53 more
Total evaluations
248
Tried for
Parkinson's disease (280) stiffness/spasticity (7)
3 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (182 evaluations)
Side effects
nausea dry mouth 65 more
Total evaluations
193
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (155 evaluations)
Side effects
nausea drowsiness 75 more
Total evaluations
159
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (149 evaluations)
Side effects
nausea drowsiness 71 more
Total evaluations
150
Tried for
Parkinson's disease (181) stiffness/spasticity (1)
1 more
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (132 evaluations)
Side effects
nausea skin irritation under patch 50 more
Total evaluations
135
Tried for
Parkinson's disease (147) stiffness/spasticity (7)
1 more
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (146 evaluations)
Side effects
jerky movements (dyskinesia) nausea 35 more
Total evaluations
147
Tried for
Parkinson's disease (100) stiffness/spasticity (7)
2 more
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (56 evaluations)
Side effects
Hospitalization balance problems 27 more
Total evaluations
58
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (55 evaluations)
Side effects
fatigue jerky movements (dyskinesia) 21 more
Total evaluations
57
Tried for
Parkinson's disease (87)
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (49 evaluations)
Side effects
jerky movements (dyskinesia) nausea 23 more
Total evaluations
51
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 70
30s 241
40s 963
50s 3,077
60s 5,919
70+ 5,853
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 67
20-29 years 243
30-39 years 815
40-49 years 1,823
50-59 years 2,600
60-69 years 1,860
70+ years 558

Sex

Distribution of sex

48% Female
52% Male

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 160
Inherited (genetic) Parkinson's disease 1,118
Parkinsonism (unknown cause) 2,797
Parkinson's disease 10,107
Vascular parkinsonism 73
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8,963
Not Diagnosed 327

These charts show data from Parkinson's disease patients who have completed their condition history
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