Parkinson's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
790
Tried for
Parkinson's disease (785) stiffness/spasticity (12)
4 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
280
Tried for
Parkinson's disease (277) stiffness/spasticity (7)
3 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
241
Tried for
Parkinson's disease (237) jerky movements (11)
4 more
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
205
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
176
Tried for
Parkinson's disease (176) stiffness/spasticity (1)
1 more
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
147
Tried for
Parkinson's disease (147) stiffness/spasticity (7)
1 more
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
104
Tried for
Parkinson's disease (103) stiffness/spasticity (8)
2 more
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
96
Tried for
Parkinson's disease (93) jerky movements (8)
4 more
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
84
Tried for
Parkinson's disease (84)
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
83

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (702 evaluations)
Side effects
nausea jerky movements 169 more
Total evaluations
715
Tried for
Parkinson's disease (784) stiffness/spasticity (12)
4 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (243 evaluations)
Side effects
headaches jerky movements 53 more
Total evaluations
248
Tried for
Parkinson's disease (277) stiffness/spasticity (7)
3 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (187 evaluations)
Side effects
nausea dry mouth 62 more
Total evaluations
196
Tried for
Parkinson's disease (237) jerky movements (11)
4 more
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (157 evaluations)
Side effects
nausea drowsiness 75 more
Total evaluations
161
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (141 evaluations)
Side effects
nausea drowsiness 69 more
Total evaluations
142
Tried for
Parkinson's disease (176) stiffness/spasticity (1)
1 more
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (138 evaluations)
Side effects
nausea skin irritation under patch 51 more
Total evaluations
141
Tried for
Parkinson's disease (147) stiffness/spasticity (7)
1 more
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (150 evaluations)
Side effects
jerky movements nausea 36 more
Total evaluations
151
Tried for
Parkinson's disease (103) stiffness/spasticity (8)
2 more
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (58 evaluations)
Side effects
Hospitalization balance problems 26 more
Total evaluations
60
Tried for
Parkinson's disease (93) jerky movements (8)
4 more
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (52 evaluations)
Side effects
jerky movements loose bowel movements 20 more
Total evaluations
54
Tried for
Parkinson's disease (84)
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (50 evaluations)
Side effects
nausea insomnia 23 more
Total evaluations
52
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
Last updated:

Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 69
30s 238
40s 982
50s 3,139
60s 6,096
70+ 6,077
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 69
20-29 years 244
30-39 years 826
40-49 years 1,850
50-59 years 2,656
60-69 years 1,940
70+ years 582

Sex

Distribution of sex

48% Female
52% Male

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 164
Inherited (genetic) Parkinson's disease 1,153
Parkinsonism (unknown cause) 2,889
Parkinson's disease 10,340
Vascular parkinsonism 76
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9,165
Not Diagnosed 334

These charts show data from Parkinson's disease patients who have completed their condition history
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