Central pain syndrome

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What is central pain syndrome?

Central pain syndrome is a neurological condition caused by damage to or dysfunction of the central nervous system (CNS), which includes the brain, brainstem, and spinal cord. The character of the pain differs widely among individuals partly because of the variety of potential causes.

Common symptoms reported by people with central pain syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with central pain syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
10
Tried for
central pain syndrome (10) Pain (2)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
5
Tried for
central pain syndrome (5) Pain (1)
Treatment name(s)

(Dilaudid)
Type
Prescription Drug
How many have tried
3
Tried for
central pain syndrome (2) Pain (1)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
2
Tried for
Pain (2) stress (1)
Treatment name(s)

(Tylenol with Codeine #3)
Type
Prescription Drug
How many have tried
2
Tried for
central pain syndrome (1) Pain (1)
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2) central pain syndrome (1)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Type
Procedures
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)

Data from patients with central pain syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with central pain syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for central pain syndrome (5 evaluations)
Side effects
brain fog confusion 5 more
Total evaluations
8
Tried for
central pain syndrome (10) Pain (2)
Treatment name(s)

(Elavil)
Perceived effectiveness
for central pain syndrome (3 evaluations)
Side effects
brain fog drowsiness 4 more
Total evaluations
5
Tried for
central pain syndrome (5) Pain (1)
Treatment name(s)

(Dilaudid)
Perceived effectiveness
for central pain syndrome (3 evaluations)
Side effects
drugged feeling fatigue 1 more
Total evaluations
3
Tried for
central pain syndrome (2) Pain (1)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
hunger at night
Total evaluations
2
Tried for
Pain (2) stress (1)
Treatment name(s)

(Tylenol with Codeine #3)
Perceived effectiveness
for central pain syndrome (1 evaluation)
Side effects
constipation
Total evaluations
2
Tried for
central pain syndrome (1) Pain (1)
Treatment name(s)

(Mobic)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
gastric ulcer
Total evaluations
3
Tried for
Pain (2)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
excessive daytime sleepiness (somnolence)
Total evaluations
2
Tried for
Pain (2) central pain syndrome (1)
Treatment name(s)

(Tylenol)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
Pain (1)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Treatment name(s)

(Celebrex)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with central pain syndrome, who reported starting treatments within the last 5 years.
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Who has central pain syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 4
30s 9
40s 28
50s 41
60s 28
70+ 8
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 6
30-39 years 14
40-49 years 19
50-59 years 15
60-69 years 2
70+ years 0

Sex

Distribution of sex

72% Female
28% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 67
Not Diagnosed 7

These charts show data from central pain syndrome patients who have completed their condition history
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