Crohn's disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Crohn's disease?

Crohn's disease is a type of inflammatory bowel disease that may affect any part of the gastrointestinal tract from mouth to anus. It often involves a chronic cycle featuring episodes of worsening symptoms (including abdominal pain and diarrhea) followed by asymptomatic periods (i.e. remission).

Common symptoms reported by people with Crohn's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for Crohn's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Humira)
Type
Prescription Drug
How many have tried
993
Tried for
Crohn's disease (25)
Treatment name(s)

(Pentasa)
Type
Prescription Drug
How many have tried
2535
Tried for
Crohn's disease (13)
Treatment name(s)

(Pulmicort)
Type
Prescription Drug
How many have tried
870
Tried for
Crohn's disease (12)
Treatment name(s)

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
632
Tried for
Crohn's disease (11)
Treatment name(s)

(Stelara)
Type
Prescription Drug
How many have tried
4
Tried for
Crohn's disease (10)
Treatment name(s)

(Remicade)
Type
Prescription Drug
How many have tried
1215
Tried for
Crohn's disease (8)
Treatment name(s)

(Entyvio)
Type
Prescription Drug
How many have tried
3
Tried for
Crohn's disease (7)
Treatment name(s)

(Cimzia)
Type
Prescription Drug
How many have tried
10
Tried for
Crohn's disease (4)
Treatment name(s)

(Purinethol)
Type
Prescription Drug
How many have tried
403
Tried for
Crohn's disease (4)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
792
Tried for
Crohn's disease (3)

Data from patients with Crohn's disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Compare treatments taken by people with Crohn's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Humira)
Perceived effectiveness
for Crohn's disease (21 evaluations)
Side effects
slow wound healing heart palpitations 8 more
Total evaluations
21
Tried for
Crohn's disease (25)
Treatment name(s)

(Pentasa)
Perceived effectiveness
for Crohn's disease (8 evaluations)
Side effects
constipation headaches 2 more
Total evaluations
8
Tried for
Crohn's disease (13)
Treatment name(s)

(Pulmicort)
Perceived effectiveness
for Crohn's disease (13 evaluations)
Side effects
insomnia mood swings
Total evaluations
13
Tried for
Crohn's disease (12)
Treatment name(s)

(Prednisone Intensol)
Perceived effectiveness
for Crohn's disease (7 evaluations)
Side effects
excessive sweating hunger 14 more
Total evaluations
7
Tried for
Crohn's disease (11)
Treatment name(s)

(Stelara)
Perceived effectiveness
for Crohn's disease (7 evaluations)
Side effects
chronic fatigue migraine headaches 1 more
Total evaluations
7
Tried for
Crohn's disease (10)
Treatment name(s)

(Remicade)
Perceived effectiveness
for Crohn's disease (3 evaluations)
Side effects
anaphylaxis overwhelming fatigue 1 more
Total evaluations
3
Tried for
Crohn's disease (8)
Treatment name(s)

(Entyvio)
Perceived effectiveness
for Crohn's disease (7 evaluations)
Side effects
abdominal cramps hair loss 4 more
Total evaluations
7
Tried for
Crohn's disease (7)
Treatment name(s)

(Cimzia)
Perceived effectiveness
for Crohn's disease (2 evaluations)
Side effects
diarrhea fatigue 1 more
Total evaluations
2
Tried for
Crohn's disease (4)
Treatment name(s)

(Purinethol)
Perceived effectiveness
for Crohn's disease (2 evaluations)
Side effects
fatigue change in taste 5 more
Total evaluations
2
Tried for
Crohn's disease (4)
Treatment name(s)

(Imuran)
Perceived effectiveness
for Crohn's disease (1 evaluation)
Side effects
nausea
Total evaluations
1
Tried for
Crohn's disease (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Crohn's disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Who has Crohn's disease on PatientsLikeMe?

  • 6 new patients joined this month
  • 5120 say Crohn's disease is their primary condition

Age
Age Proportion # of patients
<20 55
20s 462
30s 971
40s 1342
50s 1577
60s 953
70+ 297
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 756
20-29 years 579
30-39 years 269
40-49 years 188
50-59 years 93
60-69 years 25
70+ years 6

Distribution of sex

Sex
Sex Proportion # of patients
Male 1423
Female 4273

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2310
Not Diagnosed 60

These charts show data from Crohn's disease patients who have completed their condition history
Last updated: