Systemic lupus erythematosus

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What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
620
Tried for
systemic lupus erythematosus (619) fatigue (2)
4 more
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
412
Tried for
systemic lupus erythematosus (408) joint pain (5)
3 more
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
160
Tried for
systemic lupus erythematosus (158) joint pain (3)
1 more
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
111
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
97
Tried for
systemic lupus erythematosus (97) pain (1)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
89
Tried for
systemic lupus erythematosus (89) pain (1)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
70
Tried for
pain (63) muscle pain (23)
2 more
Treatment name(s)

(Aleve)
Type
Over the Counter Drug
How many have tried
65
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
52
Tried for
pain (46) systemic lupus erythematosus (6)
1 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
34
Tried for
pain (31) systemic lupus erythematosus (6)
1 more

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (266 evaluations)
Side effects
nausea diarrhea 94 more
Total evaluations
271
Tried for
systemic lupus erythematosus (619) fatigue (2)
4 more
Treatment name(s)

(Deltasone)
Perceived effectiveness
for systemic lupus erythematosus (155 evaluations)
Side effects
weight gain insomnia 113 more
Total evaluations
167
Tried for
systemic lupus erythematosus (408) joint pain (5)
3 more
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for systemic lupus erythematosus (83 evaluations)
Side effects
nausea fatigue 51 more
Total evaluations
88
Tried for
systemic lupus erythematosus (158) joint pain (3)
1 more
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (65 evaluations)
Side effects
fatigue headaches 49 more
Total evaluations
65
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (30 evaluations)
Side effects
nausea fatigue 28 more
Total evaluations
35
Tried for
systemic lupus erythematosus (97) pain (1)
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (35 evaluations)
Side effects
nausea elevated liver enzymes 13 more
Total evaluations
40
Tried for
systemic lupus erythematosus (89) pain (1)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (26 evaluations)
Side effects
constipation itching 15 more
Total evaluations
40
Tried for
pain (63) muscle pain (23)
2 more
Treatment name(s)

(Aleve)
Perceived effectiveness
for systemic lupus erythematosus (31 evaluations)
Side effects
stomach pain nausea 5 more
Total evaluations
31
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (13 evaluations)
Side effects
dizziness drowsiness 6 more
Total evaluations
16
Tried for
pain (46) systemic lupus erythematosus (6)
1 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for pain (19 evaluations)
Side effects
nausea stomach pain 7 more
Total evaluations
24
Tried for
pain (31) systemic lupus erythematosus (6)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 168
20s 1,578
30s 4,899
40s 9,433
50s 8,325
60s 3,736
70+ 671
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1,972
20-29 years 2,335
30-39 years 2,465
40-49 years 1,517
50-59 years 502
60-69 years 103
70+ years 23

Distribution of sex

Sex
Sex Proportion # of patients
Male 1,041
Female 28,157

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 10,938
Not Diagnosed 506

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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