Systemic lupus erythematosus

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What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
592
Tried for
systemic lupus erythematosus (591) fatigue (2)
4 more
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
397
Tried for
systemic lupus erythematosus (393) joint pain (5)
3 more
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
159
Tried for
systemic lupus erythematosus (157) joint pain (3)
1 more
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
109
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
95
Tried for
systemic lupus erythematosus (95) pain (1)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
88
Tried for
systemic lupus erythematosus (88) pain (1)
Treatment name(s)

(Aleve)
Type
Over the Counter Drug
How many have tried
56
Tried for
systemic lupus erythematosus (55) headaches (1)
1 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
56
Tried for
pain (48) muscle pain (19)
3 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
51
Tried for
pain (46) systemic lupus erythematosus (5)
1 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
33
Tried for
pain (29) systemic lupus erythematosus (5)
2 more

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (266 evaluations)
Side effects
nausea headaches 105 more
Total evaluations
271
Tried for
systemic lupus erythematosus (591) fatigue (2)
4 more
Treatment name(s)

(Deltasone)
Perceived effectiveness
for systemic lupus erythematosus (142 evaluations)
Side effects
weight gain insomnia 107 more
Total evaluations
153
Tried for
systemic lupus erythematosus (393) joint pain (5)
3 more
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for systemic lupus erythematosus (81 evaluations)
Side effects
nausea fatigue 53 more
Total evaluations
85
Tried for
systemic lupus erythematosus (157) joint pain (3)
1 more
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (66 evaluations)
Side effects
headaches fatigue 48 more
Total evaluations
66
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (35 evaluations)
Side effects
nausea diarrhea 26 more
Total evaluations
38
Tried for
systemic lupus erythematosus (95) pain (1)
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (33 evaluations)
Side effects
nausea elevated liver enzymes 13 more
Total evaluations
38
Tried for
systemic lupus erythematosus (88) pain (1)
Treatment name(s)

(Aleve)
Perceived effectiveness
for systemic lupus erythematosus (29 evaluations)
Side effects
nausea stomach pain 3 more
Total evaluations
29
Tried for
systemic lupus erythematosus (55) headaches (1)
1 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (23 evaluations)
Side effects
constipation itching 14 more
Total evaluations
38
Tried for
pain (48) muscle pain (19)
3 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (14 evaluations)
Side effects
dizziness drowsiness 6 more
Total evaluations
17
Tried for
pain (46) systemic lupus erythematosus (5)
1 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for pain (17 evaluations)
Side effects
nausea stomach pain 6 more
Total evaluations
23
Tried for
pain (29) systemic lupus erythematosus (5)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 162
20s 1672
30s 5280
40s 10569
50s 9512
60s 4326
70+ 800
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2100
20-29 years 2524
30-39 years 2705
40-49 years 1689
50-59 years 563
60-69 years 111
70+ years 28

Distribution of sex

Sex
Sex Proportion # of patients
Male 1163
Female 31608

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 12394
Not Diagnosed 532

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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