Systemic lupus erythematosus

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What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
602
Tried for
systemic lupus erythematosus (601) fatigue (2)
4 more
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
393
Tried for
systemic lupus erythematosus (389) joint pain (5)
3 more
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
147
Tried for
systemic lupus erythematosus (145) joint pain (3)
1 more
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
103
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
94
Tried for
systemic lupus erythematosus (94) pain (1)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
89
Tried for
systemic lupus erythematosus (89) pain (1)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
73
Tried for
pain (66) muscle pain (24)
2 more
Treatment name(s)

(Aleve)
Type
Over the Counter Drug
How many have tried
72
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
47
Tried for
pain (42) systemic lupus erythematosus (5)
1 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
34
Tried for
pain (34) joint pain (2)
2 more

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (260 evaluations)
Side effects
nausea diarrhea 94 more
Total evaluations
265
Tried for
systemic lupus erythematosus (601) fatigue (2)
4 more
Treatment name(s)

(Deltasone)
Perceived effectiveness
for systemic lupus erythematosus (148 evaluations)
Side effects
weight gain insomnia 104 more
Total evaluations
159
Tried for
systemic lupus erythematosus (389) joint pain (5)
3 more
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for systemic lupus erythematosus (74 evaluations)
Side effects
nausea fatigue 47 more
Total evaluations
80
Tried for
systemic lupus erythematosus (145) joint pain (3)
1 more
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (59 evaluations)
Side effects
fatigue headaches 47 more
Total evaluations
59
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (28 evaluations)
Side effects
nausea fatigue 29 more
Total evaluations
33
Tried for
systemic lupus erythematosus (94) pain (1)
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (34 evaluations)
Side effects
nausea elevated liver enzymes 15 more
Total evaluations
39
Tried for
systemic lupus erythematosus (89) pain (1)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (29 evaluations)
Side effects
constipation nausea 18 more
Total evaluations
42
Tried for
pain (66) muscle pain (24)
2 more
Treatment name(s)

(Aleve)
Perceived effectiveness
for systemic lupus erythematosus (32 evaluations)
Side effects
stomach pain nausea 5 more
Total evaluations
32
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (13 evaluations)
Side effects
drowsiness weight gain 5 more
Total evaluations
15
Tried for
pain (42) systemic lupus erythematosus (5)
1 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (18 evaluations)
Side effects
drowsiness sleepiness 4 more
Total evaluations
18
Tried for
pain (34) joint pain (2)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 149
20s 1,530
30s 4,759
40s 9,031
50s 7,915
60s 3,412
70+ 588
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1,895
20-29 years 2,219
30-39 years 2,356
40-49 years 1,444
50-59 years 483
60-69 years 95
70+ years 20

Sex

Distribution of sex

97% Female
3% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9,585
Not Diagnosed 540

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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