Systemic lupus erythematosus

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What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
587
Tried for
systemic lupus erythematosus (586) fatigue (2)
4 more
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
394
Tried for
systemic lupus erythematosus (390) joint pain (5)
3 more
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
158
Tried for
systemic lupus erythematosus (156) joint pain (3)
1 more
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
103
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
95
Tried for
systemic lupus erythematosus (95) pain (1)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
86
Tried for
systemic lupus erythematosus (86) pain (1)
Treatment name(s)

(Aleve)
Type
Over the Counter Drug
How many have tried
58
Tried for
systemic lupus erythematosus (57) headaches (1)
1 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
58
Tried for
pain (50) muscle pain (20)
3 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
53
Tried for
pain (48) systemic lupus erythematosus (5)
1 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
34
Tried for
pain (30) systemic lupus erythematosus (6)
2 more

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (263 evaluations)
Side effects
nausea headaches 103 more
Total evaluations
268
Tried for
systemic lupus erythematosus (586) fatigue (2)
4 more
Treatment name(s)

(Deltasone)
Perceived effectiveness
for systemic lupus erythematosus (142 evaluations)
Side effects
weight gain insomnia 111 more
Total evaluations
153
Tried for
systemic lupus erythematosus (390) joint pain (5)
3 more
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for systemic lupus erythematosus (81 evaluations)
Side effects
nausea fatigue 53 more
Total evaluations
85
Tried for
systemic lupus erythematosus (156) joint pain (3)
1 more
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (62 evaluations)
Side effects
fatigue headaches 47 more
Total evaluations
62
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (33 evaluations)
Side effects
nausea diarrhea 29 more
Total evaluations
36
Tried for
systemic lupus erythematosus (95) pain (1)
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (33 evaluations)
Side effects
nausea elevated liver enzymes 13 more
Total evaluations
38
Tried for
systemic lupus erythematosus (86) pain (1)
Treatment name(s)

(Aleve)
Perceived effectiveness
for systemic lupus erythematosus (29 evaluations)
Side effects
nausea stomach pain 3 more
Total evaluations
29
Tried for
systemic lupus erythematosus (57) headaches (1)
1 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (23 evaluations)
Side effects
constipation itching 14 more
Total evaluations
38
Tried for
pain (50) muscle pain (20)
3 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (14 evaluations)
Side effects
dizziness drowsiness 6 more
Total evaluations
17
Tried for
pain (48) systemic lupus erythematosus (5)
1 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for pain (17 evaluations)
Side effects
nausea stomach pain 6 more
Total evaluations
23
Tried for
pain (30) systemic lupus erythematosus (6)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 156
20s 1616
30s 5125
40s 10210
50s 9211
60s 4184
70+ 763
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2044
20-29 years 2455
30-39 years 2630
40-49 years 1645
50-59 years 542
60-69 years 108
70+ years 28

Distribution of sex

Sex
Sex Proportion # of patients
Male 1109
Female 30605

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 11948
Not Diagnosed 525

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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