Systemic lupus erythematosus

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What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
555
Tried for
systemic lupus erythematosus (554) fatigue (2)
4 more
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
381
Tried for
systemic lupus erythematosus (378) joint pain (5)
2 more
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
132
Tried for
systemic lupus erythematosus (130) joint pain (3)
1 more
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
101
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
88
Tried for
systemic lupus erythematosus (88) pain (1)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
80
Tried for
systemic lupus erythematosus (80) pain (1)
Treatment name(s)

(Aleve)
Type
Over the Counter Drug
How many have tried
75
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
71
Tried for
pain (64) muscle pain (23)
2 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
43
Tried for
pain (38) systemic lupus erythematosus (4)
1 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
35
Tried for
pain (35) joint pain (1)
2 more

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (243 evaluations)
Side effects
nausea diarrhea 82 more
Total evaluations
247
Tried for
systemic lupus erythematosus (554) fatigue (2)
4 more
Treatment name(s)

(Deltasone)
Perceived effectiveness
for systemic lupus erythematosus (140 evaluations)
Side effects
weight gain insomnia 104 more
Total evaluations
150
Tried for
systemic lupus erythematosus (378) joint pain (5)
2 more
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for systemic lupus erythematosus (72 evaluations)
Side effects
nausea fatigue 46 more
Total evaluations
78
Tried for
systemic lupus erythematosus (130) joint pain (3)
1 more
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (58 evaluations)
Side effects
fatigue headaches 54 more
Total evaluations
58
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (27 evaluations)
Side effects
nausea fatigue 29 more
Total evaluations
32
Tried for
systemic lupus erythematosus (88) pain (1)
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (32 evaluations)
Side effects
nausea nausea and vomiting 15 more
Total evaluations
37
Tried for
systemic lupus erythematosus (80) pain (1)
Treatment name(s)

(Aleve)
Perceived effectiveness
for systemic lupus erythematosus (29 evaluations)
Side effects
stomach pain nausea 5 more
Total evaluations
29
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (26 evaluations)
Side effects
constipation nausea 17 more
Total evaluations
39
Tried for
pain (64) muscle pain (23)
2 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (12 evaluations)
Side effects
dizziness drowsiness 4 more
Total evaluations
12
Tried for
pain (38) systemic lupus erythematosus (4)
1 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (17 evaluations)
Side effects
drowsiness sleepiness 4 more
Total evaluations
17
Tried for
pain (35) joint pain (1)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 128
20s 1,425
30s 4,496
40s 8,538
50s 7,377
60s 3,126
70+ 525
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1,766
20-29 years 2,047
30-39 years 2,140
40-49 years 1,309
50-59 years 445
60-69 years 76
70+ years 18

Sex

Distribution of sex

97% Female
3% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8,832
Not Diagnosed 524

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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