Systemic lupus erythematosus

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What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
553
Tried for
systemic lupus erythematosus (552) Fatigue (2)
4 more
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
379
Tried for
systemic lupus erythematosus (376) Joint pain (5)
2 more
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
128
Tried for
systemic lupus erythematosus (126) Joint pain (3)
1 more
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
100
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
81
Tried for
systemic lupus erythematosus (81) Pain (1)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
77
Tried for
systemic lupus erythematosus (77) Pain (1)
Treatment name(s)

(Aleve)
Type
Over the Counter Drug
How many have tried
77
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
70
Tried for
Pain (64) Muscle pain (21)
2 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
41
Tried for
Pain (36) systemic lupus erythematosus (4)
1 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
37
Tried for
Pain (37) systemic lupus erythematosus (2)
2 more

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (242 evaluations)
Side effects
Nausea Diarrhea 81 more
Total evaluations
246
Tried for
systemic lupus erythematosus (552) Fatigue (2)
4 more
Treatment name(s)

(Deltasone)
Perceived effectiveness
for systemic lupus erythematosus (137 evaluations)
Side effects
Weight gain insomnia 102 more
Total evaluations
146
Tried for
systemic lupus erythematosus (376) Joint pain (5)
2 more
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for systemic lupus erythematosus (74 evaluations)
Side effects
Nausea Fatigue 46 more
Total evaluations
80
Tried for
systemic lupus erythematosus (126) Joint pain (3)
1 more
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (56 evaluations)
Side effects
Fatigue Headaches 55 more
Total evaluations
56
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (27 evaluations)
Side effects
Nausea Fatigue 29 more
Total evaluations
32
Tried for
systemic lupus erythematosus (81) Pain (1)
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (31 evaluations)
Side effects
Nausea Nausea and vomiting 15 more
Total evaluations
36
Tried for
systemic lupus erythematosus (77) Pain (1)
Treatment name(s)

(Aleve)
Perceived effectiveness
for systemic lupus erythematosus (29 evaluations)
Side effects
Stomach pain Nausea 5 more
Total evaluations
29
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (28 evaluations)
Side effects
Constipation Nausea 18 more
Total evaluations
40
Tried for
Pain (64) Muscle pain (21)
2 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (12 evaluations)
Side effects
Dizziness Drowsiness 4 more
Total evaluations
12
Tried for
Pain (36) systemic lupus erythematosus (4)
1 more
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (19 evaluations)
Side effects
Drowsiness Constipation 4 more
Total evaluations
19
Tried for
Pain (37) systemic lupus erythematosus (2)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 128
20s 1,395
30s 4,425
40s 8,391
50s 7,244
60s 3,058
70+ 507
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1,724
20-29 years 2,001
30-39 years 2,071
40-49 years 1,269
50-59 years 429
60-69 years 73
70+ years 17

Sex

Distribution of sex

97% Female
3% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8,614
Not Diagnosed 512

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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