Systemic lupus erythematosus

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What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
564
Tried for
systemic lupus erythematosus (563) fatigue (2)
4 more
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
383
Tried for
systemic lupus erythematosus (380) joint pain (5)
2 more
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
138
Tried for
systemic lupus erythematosus (136) joint pain (3)
1 more
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
102
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
93
Tried for
systemic lupus erythematosus (93) Pain (1)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
82
Tried for
systemic lupus erythematosus (82) Pain (1)
Treatment name(s)

(Aleve)
Type
Over the Counter Drug
How many have tried
74
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
71
Tried for
Pain (64) muscle pain (24)
2 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
42
Tried for
Pain (38) systemic lupus erythematosus (4)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
35
Tried for
Pain (35) joint pain (2)
2 more

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (244 evaluations)
Side effects
nausea diarrhea 81 more
Total evaluations
248
Tried for
systemic lupus erythematosus (563) fatigue (2)
4 more
Treatment name(s)

(Deltasone)
Perceived effectiveness
for systemic lupus erythematosus (144 evaluations)
Side effects
weight gain insomnia 104 more
Total evaluations
154
Tried for
systemic lupus erythematosus (380) joint pain (5)
2 more
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for systemic lupus erythematosus (72 evaluations)
Side effects
nausea fatigue 49 more
Total evaluations
77
Tried for
systemic lupus erythematosus (136) joint pain (3)
1 more
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (58 evaluations)
Side effects
fatigue headaches 54 more
Total evaluations
58
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (28 evaluations)
Side effects
nausea fatigue 29 more
Total evaluations
33
Tried for
systemic lupus erythematosus (93) Pain (1)
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (33 evaluations)
Side effects
nausea nausea and vomiting 15 more
Total evaluations
38
Tried for
systemic lupus erythematosus (82) Pain (1)
Treatment name(s)

(Aleve)
Perceived effectiveness
for systemic lupus erythematosus (29 evaluations)
Side effects
stomach pain nausea 5 more
Total evaluations
29
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (27 evaluations)
Side effects
constipation nausea 18 more
Total evaluations
41
Tried for
Pain (64) muscle pain (24)
2 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (12 evaluations)
Side effects
dizziness drowsiness 4 more
Total evaluations
12
Tried for
Pain (38) systemic lupus erythematosus (4)
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (17 evaluations)
Side effects
drowsiness sleepiness 4 more
Total evaluations
17
Tried for
Pain (35) joint pain (2)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 134
20s 1,449
30s 4,568
40s 8,710
50s 7,572
60s 3,224
70+ 543
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1,811
20-29 years 2,101
30-39 years 2,232
40-49 years 1,360
50-59 years 458
60-69 years 81
70+ years 18

Sex

Distribution of sex

97% Female
3% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9,091
Not Diagnosed 531

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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