Epilepsy
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as member Letitia explains in this video.
What is epilepsy?
A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.
Common symptoms reported by people with epilepsy
Common symptoms
How bad it is
What people are taking for it
Common symptom
Numbness and tingling with pins and needles
How bad it is
What people are taking for it
Common symptom
Excessive daytime sleepiness (somnolence)
How bad it is
What people are taking for it
Common symptom
Jacksonian march seizures
How bad it is
What people are taking for it
Nothing reported yet
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for epilepsy
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with epilepsy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with epilepsy
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for epilepsy (2 evaluations)
Side effects
difficulty sleeping
Total evaluations
2
Tried for
epilepsy
(5)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
epilepsy
(3)
Perceived effectiveness
for epilepsy (4 evaluations)
Side effects
balance problems
stiffness/spasticity
Total evaluations
4
Tried for
epilepsy
(2)
Perceived effectiveness
for epilepsy (1 evaluation)
Side effects
Total evaluations
1
Tried for
epilepsy
(2)
Perceived effectiveness
for epilepsy (1 evaluation)
Side effects
osteopenia
vision changes
Total evaluations
1
Tried for
epilepsy
(2)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with epilepsy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has epilepsy on PatientsLikeMe?
- 17 new patients joined this month
- 10,297 say epilepsy is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 272 | |
| 20s | 707 | |
| 30s | 2,132 | |
| 40s | 2,684 | |
| 50s | 2,546 | |
| 60s | 1,668 | |
| 70+ | 600 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 2,803 | |
| 20-29 years | 817 | |
| 30-39 years | 464 | |
| 40-49 years | 270 | |
| 50-59 years | 78 | |
| 60-69 years | 28 | |
| 70+ years | 7 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 3,342 | |
| Female | 7,314 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 6,051 | |
| Not Diagnosed | 181 |
These charts show data from epilepsy patients who have completed their condition history
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