Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Letitia explains in this video.

What is epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with epilepsy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
132
Tried for
epilepsy (132)
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
120
Tried for
epilepsy (119) Insomnia (1)
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
87
Tried for
epilepsy (85) Headaches (5)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
58
Tried for
epilepsy (50) Anxious mood (20)
2 more
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
57
Tried for
epilepsy (57)
Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
55
Tried for
epilepsy (55)
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
39
Tried for
epilepsy (39)
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
31
Tried for
epilepsy (31)
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
30
Tried for
epilepsy (30) Pain (1)
Treatment name(s)

(Dilantin)
Type
Prescription Drug
How many have tried
29
Tried for
epilepsy (29)

Data from patients with epilepsy, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with epilepsy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Keppra)
Perceived effectiveness
for epilepsy (92 evaluations)
Side effects
Headaches Tiredness 93 more
Total evaluations
94
Tried for
epilepsy (132)
Treatment name(s)

(Lamictal)
Perceived effectiveness
for epilepsy (79 evaluations)
Side effects
Headaches Rash 59 more
Total evaluations
88
Tried for
epilepsy (119) Insomnia (1)
Treatment name(s)

(Topamax)
Perceived effectiveness
for epilepsy (44 evaluations)
Side effects
Weight loss Confusion 49 more
Total evaluations
53
Tried for
epilepsy (85) Headaches (5)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for epilepsy (21 evaluations)
Side effects
Drowsiness Fatigue 11 more
Total evaluations
26
Tried for
epilepsy (50) Anxious mood (20)
2 more
Treatment name(s)

(Depakote)
Perceived effectiveness
for epilepsy (32 evaluations)
Side effects
Weight gain Dizziness 28 more
Total evaluations
32
Tried for
epilepsy (57)
Treatment name(s)

(Vimpat)
Perceived effectiveness
for epilepsy (28 evaluations)
Side effects
Dizziness Double vision (diplopia) 21 more
Total evaluations
30
Tried for
epilepsy (55)
Treatment name(s)

(Tegretol)
Perceived effectiveness
for epilepsy (13 evaluations)
Side effects
Change in body smell Depressed mood 14 more
Total evaluations
13
Tried for
epilepsy (39)
Treatment name(s)

(Zonegran)
Perceived effectiveness
for epilepsy (17 evaluations)
Side effects
Headaches Loss of appetite 25 more
Total evaluations
18
Tried for
epilepsy (31)
Treatment name(s)

(Trileptal)
Perceived effectiveness
for epilepsy (12 evaluations)
Side effects
Depressed mood acne 15 more
Total evaluations
13
Tried for
epilepsy (30) Pain (1)
Treatment name(s)

(Dilantin)
Perceived effectiveness
for epilepsy (15 evaluations)
Side effects
Drowsiness Insomnia 12 more
Total evaluations
18
Tried for
epilepsy (29)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with epilepsy, who reported starting treatments within the last 5 years.
Last updated:

Who has epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 461
20s 1,389
30s 2,309
40s 2,512
50s 1,918
60s 840
70+ 196
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,768
20-29 years 793
30-39 years 448
40-49 years 250
50-59 years 76
60-69 years 23
70+ years 6

Sex

Distribution of sex

68% Female
32% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,822
Not Diagnosed 178

These charts show data from epilepsy patients who have completed their condition history
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