Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Letitia explains in this video.

What is Epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with Epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
226
Tried for
Epilepsy (226)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
152
Tried for
Epilepsy (152) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
111
Tried for
Epilepsy (109) Headaches (7)
Check to add this treatment to your profile
Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
84
Tried for
Epilepsy (84)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
81
Tried for
Epilepsy (74) Anxious mood (22)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
67
Tried for
Epilepsy (67)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
62
Tried for
Epilepsy (62)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
51
Tried for
Epilepsy (51) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
48
Tried for
Epilepsy (48)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Type
Prescription Drug
How many have tried
38
Tried for
Epilepsy (38)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Perceived effectiveness
for Epilepsy (140 evaluations)
Side effects
Tiredness Headaches 94 more
How many evaluations
142
Tried for
Epilepsy (226)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Perceived effectiveness
for Epilepsy (82 evaluations)
Side effects
Tiredness Fatigue 58 more
How many evaluations
84
Tried for
Epilepsy (152) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Perceived effectiveness
for Epilepsy (56 evaluations)
Side effects
Loss of appetite Weight loss 54 more
How many evaluations
61
Tried for
Epilepsy (109) Headaches (7)
Check to add this treatment to your profile
Treatment name(s)

(Vimpat)
Perceived effectiveness
for Epilepsy (33 evaluations)
Side effects
Dizziness Double vision (diplopia) 46 more
How many evaluations
36
Tried for
Epilepsy (84)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Epilepsy (30 evaluations)
Side effects
Drowsiness Sedation 10 more
How many evaluations
37
Tried for
Epilepsy (74) Anxious mood (22)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Perceived effectiveness
for Epilepsy (24 evaluations)
Side effects
Dizziness Sleepiness 30 more
How many evaluations
24
Tried for
Epilepsy (67)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Perceived effectiveness
for Epilepsy (34 evaluations)
Side effects
Weight gain Depressed mood 30 more
How many evaluations
37
Tried for
Epilepsy (62)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Perceived effectiveness
for Epilepsy (16 evaluations)
Side effects
Dizziness Depressed mood 22 more
How many evaluations
18
Tried for
Epilepsy (51) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Perceived effectiveness
for Epilepsy (19 evaluations)
Side effects
Headaches Anxiety and frustration 24 more
How many evaluations
19
Tried for
Epilepsy (48)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Perceived effectiveness
for Epilepsy (19 evaluations)
Side effects
Insomnia Cognitive confusion 12 more
How many evaluations
21
Tried for
Epilepsy (38)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 444
20s 1,383
30s 2,165
40s 2,241
50s 1,652
60s 698
70+ 144

Sex

Distribution of sex

68% Female
32% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,775
20-29 years 793
30-39 years 449
40-49 years 251
50-59 years 77
60-69 years 23
70+ years 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,614
Not Diagnosed 178

These charts show data from Epilepsy patients who have completed their condition history
Last updated: