Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with Epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
425
Tried for
Epilepsy (424) Anxious mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
265
Tried for
Epilepsy (264) Depressed mood (2)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
190
Tried for
Epilepsy (187) Headaches (10)
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Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
178
Tried for
Epilepsy (178) Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
131
Tried for
Epilepsy (119) Anxious mood (27)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
123
Tried for
Epilepsy (123)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
122
Tried for
Epilepsy (122) Depressed mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
98
Tried for
Epilepsy (98)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
80
Tried for
Epilepsy (80) Depressed mood (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Type
Prescription Drug
How many have tried
75
Tried for
Epilepsy (75)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Perceived effectiveness
for Epilepsy (237 evaluations)
Side effects
Tiredness Mood swings 126 more
How many evaluations
245
Tried for
Epilepsy (424) Anxious mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Perceived effectiveness
for Epilepsy (128 evaluations)
Side effects
Tiredness Memory problems 94 more
How many evaluations
131
Tried for
Epilepsy (264) Depressed mood (2)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Perceived effectiveness
for Epilepsy (101 evaluations)
Side effects
Fatigue Memory problems 108 more
How many evaluations
113
Tried for
Epilepsy (187) Headaches (10)
Check to add this treatment to your profile
Treatment name(s)

(Vimpat)
Perceived effectiveness
for Epilepsy (87 evaluations)
Side effects
Dizziness Double vision (diplopia) 90 more
How many evaluations
102
Tried for
Epilepsy (178) Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Epilepsy (37 evaluations)
Side effects
Fatigue Sedation 17 more
How many evaluations
55
Tried for
Epilepsy (119) Anxious mood (27)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Perceived effectiveness
for Epilepsy (42 evaluations)
Side effects
Dizziness Balance problems 44 more
How many evaluations
46
Tried for
Epilepsy (123)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Perceived effectiveness
for Epilepsy (56 evaluations)
Side effects
Weight gain Excessive daytime sleepiness (somnolence) 41 more
How many evaluations
64
Tried for
Epilepsy (122) Depressed mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Perceived effectiveness
for Epilepsy (41 evaluations)
Side effects
Fatigue Anxious mood 44 more
How many evaluations
41
Tried for
Epilepsy (98)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Perceived effectiveness
for Epilepsy (28 evaluations)
Side effects
Dizziness Depressed mood 26 more
How many evaluations
31
Tried for
Epilepsy (80) Depressed mood (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Perceived effectiveness
for Epilepsy (40 evaluations)
Side effects
Drowsiness Insomnia 28 more
How many evaluations
42
Tried for
Epilepsy (75)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 494
20s 1,445
30s 2,064
40s 2,092
50s 1,472
60s 534
70+ 107

Sex

Distribution of sex

67% Female
33% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,799
20-29 years 798
30-39 years 453
40-49 years 251
50-59 years 78
60-69 years 23
70+ years 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,354
Not Diagnosed 182

These charts show data from Epilepsy patients who have completed their condition history
Last updated: