Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Letitia explains in this video.

What is epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with epilepsy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
97
Tried for
epilepsy (97)
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
92
Tried for
epilepsy (92)
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
62
Tried for
epilepsy (60) headaches (3)
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
47
Tried for
epilepsy (47)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
43
Tried for
epilepsy (38) anxious mood (15)
Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
37
Tried for
epilepsy (37)
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
29
Tried for
epilepsy (29) pain (1)
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
23
Tried for
epilepsy (23)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
20
Tried for
pain (11) epilepsy (8)
1 more
Treatment name(s)

(Dilantin)
Type
Prescription Drug
How many have tried
20
Tried for
epilepsy (20)

Data from patients with epilepsy, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with epilepsy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Keppra)
Perceived effectiveness
for epilepsy (70 evaluations)
Side effects
headaches tiredness 75 more
Total evaluations
72
Tried for
epilepsy (97)
Treatment name(s)

(Lamictal)
Perceived effectiveness
for epilepsy (66 evaluations)
Side effects
headaches memory and cognition problems 50 more
Total evaluations
70
Tried for
epilepsy (92)
Treatment name(s)

(Topamax)
Perceived effectiveness
for epilepsy (24 evaluations)
Side effects
fatigue weight loss 31 more
Total evaluations
33
Tried for
epilepsy (60) headaches (3)
Treatment name(s)

(Depakote)
Perceived effectiveness
for epilepsy (26 evaluations)
Side effects
weight gain dizziness 20 more
Total evaluations
26
Tried for
epilepsy (47)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for epilepsy (21 evaluations)
Side effects
drowsiness fatigue 10 more
Total evaluations
25
Tried for
epilepsy (38) anxious mood (15)
Treatment name(s)

(Vimpat)
Perceived effectiveness
for epilepsy (21 evaluations)
Side effects
dizziness double vision (diplopia) 21 more
Total evaluations
23
Tried for
epilepsy (37)
Treatment name(s)

(Trileptal)
Perceived effectiveness
for epilepsy (16 evaluations)
Side effects
dry mouth acne 18 more
Total evaluations
16
Tried for
epilepsy (29) pain (1)
Treatment name(s)

(Tegretol)
Perceived effectiveness
for epilepsy (11 evaluations)
Side effects
ataxia (lack of coordination) decreased appetite 14 more
Total evaluations
11
Tried for
epilepsy (23)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (4 evaluations)
Side effects
constipation dizziness 2 more
Total evaluations
11
Tried for
pain (11) epilepsy (8)
1 more
Treatment name(s)

(Dilantin)
Perceived effectiveness
for epilepsy (11 evaluations)
Side effects
drowsiness cognitive confusion 7 more
Total evaluations
14
Tried for
epilepsy (20)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with epilepsy, who reported starting treatments within the last 5 years.
Last updated:

Who has epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 437
20s 1,305
30s 2,318
40s 2,605
50s 2,033
60s 946
70+ 230
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,772
20-29 years 798
30-39 years 451
40-49 years 252
50-59 years 77
60-69 years 24
70+ years 6

Distribution of sex

Sex
Sex Proportion # of patients
Male 3,118
Female 6,820

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,951
Not Diagnosed 178

These charts show data from epilepsy patients who have completed their condition history
Last updated: