Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Letitia explains in this video.

What is Epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with Epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
286
Tried for
Epilepsy (286)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
183
Tried for
Epilepsy (182) Anxious mood (1)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
132
Tried for
Epilepsy (130) Headaches (7)
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Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
113
Tried for
Epilepsy (113)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
103
Tried for
Epilepsy (92) Anxious mood (26)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
81
Tried for
Epilepsy (81)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
73
Tried for
Epilepsy (73) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
59
Tried for
Epilepsy (59)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
56
Tried for
Epilepsy (56) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Type
Prescription Drug
How many have tried
51
Tried for
Epilepsy (51)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Perceived effectiveness
for Epilepsy (165 evaluations)
Side effects
Tiredness Depressed mood 96 more
How many evaluations
169
Tried for
Epilepsy (286)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Perceived effectiveness
for Epilepsy (93 evaluations)
Side effects
Tiredness Fatigue 62 more
How many evaluations
96
Tried for
Epilepsy (182) Anxious mood (1)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Perceived effectiveness
for Epilepsy (69 evaluations)
Side effects
Loss of appetite Fatigue 77 more
How many evaluations
74
Tried for
Epilepsy (130) Headaches (7)
Check to add this treatment to your profile
Treatment name(s)

(Vimpat)
Perceived effectiveness
for Epilepsy (52 evaluations)
Side effects
Dizziness Double vision (diplopia) 62 more
How many evaluations
55
Tried for
Epilepsy (113)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Epilepsy (34 evaluations)
Side effects
Sedation Sleepiness 13 more
How many evaluations
41
Tried for
Epilepsy (92) Anxious mood (26)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Perceived effectiveness
for Epilepsy (29 evaluations)
Side effects
Dizziness Sleepiness 33 more
How many evaluations
29
Tried for
Epilepsy (81)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Perceived effectiveness
for Epilepsy (36 evaluations)
Side effects
Weight gain Drowsy in a.m. 35 more
How many evaluations
39
Tried for
Epilepsy (73) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Perceived effectiveness
for Epilepsy (22 evaluations)
Side effects
Fatigue Headaches 27 more
How many evaluations
22
Tried for
Epilepsy (59)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Perceived effectiveness
for Epilepsy (18 evaluations)
Side effects
Dizziness Depressed mood 27 more
How many evaluations
20
Tried for
Epilepsy (56) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Perceived effectiveness
for Epilepsy (28 evaluations)
Side effects
Drowsiness Insomnia 19 more
How many evaluations
30
Tried for
Epilepsy (51)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 481
20s 1,401
30s 2,167
40s 2,215
50s 1,605
60s 641
70+ 124

Sex

Distribution of sex

68% Female
32% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,783
20-29 years 793
30-39 years 451
40-49 years 251
50-59 years 78
60-69 years 23
70+ years 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,579
Not Diagnosed 179

These charts show data from Epilepsy patients who have completed their condition history
Last updated: