Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Letitia explains in this video.

What is Epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with Epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
235
Tried for
Epilepsy (235)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
156
Tried for
Epilepsy (156) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
111
Tried for
Epilepsy (109) Headaches (7)
Check to add this treatment to your profile
Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
89
Tried for
Epilepsy (89)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
82
Tried for
Epilepsy (73) Anxious mood (24)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
69
Tried for
Epilepsy (69)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
63
Tried for
Epilepsy (63)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
49
Tried for
Epilepsy (49) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
49
Tried for
Epilepsy (49)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Type
Prescription Drug
How many have tried
43
Tried for
Epilepsy (43)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Perceived effectiveness
for Epilepsy (148 evaluations)
Side effects
Tiredness Depressed mood 87 more
How many evaluations
150
Tried for
Epilepsy (235)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Perceived effectiveness
for Epilepsy (81 evaluations)
Side effects
Tiredness Fatigue 57 more
How many evaluations
83
Tried for
Epilepsy (156) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Perceived effectiveness
for Epilepsy (56 evaluations)
Side effects
Loss of appetite Weight loss 54 more
How many evaluations
61
Tried for
Epilepsy (109) Headaches (7)
Check to add this treatment to your profile
Treatment name(s)

(Vimpat)
Perceived effectiveness
for Epilepsy (37 evaluations)
Side effects
Dizziness Double vision (diplopia) 51 more
How many evaluations
40
Tried for
Epilepsy (89)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Epilepsy (30 evaluations)
Side effects
Drowsiness Sedation 10 more
How many evaluations
37
Tried for
Epilepsy (73) Anxious mood (24)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Perceived effectiveness
for Epilepsy (24 evaluations)
Side effects
Dizziness Sleepiness 30 more
How many evaluations
24
Tried for
Epilepsy (69)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Perceived effectiveness
for Epilepsy (34 evaluations)
Side effects
Weight gain Depressed mood 30 more
How many evaluations
37
Tried for
Epilepsy (63)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Perceived effectiveness
for Epilepsy (15 evaluations)
Side effects
Dizziness Depressed mood 21 more
How many evaluations
17
Tried for
Epilepsy (49) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Perceived effectiveness
for Epilepsy (19 evaluations)
Side effects
Headaches Anxiety and frustration 24 more
How many evaluations
19
Tried for
Epilepsy (49)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Perceived effectiveness
for Epilepsy (19 evaluations)
Side effects
Insomnia Bumping into things (clumsiness) 14 more
How many evaluations
21
Tried for
Epilepsy (43)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 441
20s 1,380
30s 2,159
40s 2,245
50s 1,655
60s 688
70+ 143

Sex

Distribution of sex

68% Female
32% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,777
20-29 years 793
30-39 years 450
40-49 years 251
50-59 years 77
60-69 years 23
70+ years 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,605
Not Diagnosed 178

These charts show data from Epilepsy patients who have completed their condition history
Last updated: