Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Letitia explains in this video.

What is epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with epilepsy

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
154
Tried for
epilepsy (154)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
132
Tried for
epilepsy (132) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
89
Tried for
epilepsy (87) Headaches (6)
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Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
66
Tried for
epilepsy (57) Anxious mood (22)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
64
Tried for
epilepsy (64)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
60
Tried for
epilepsy (60)
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
49
Tried for
epilepsy (49)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
36
Tried for
epilepsy (36)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
33
Tried for
epilepsy (33) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Type
Prescription Drug
How many have tried
32
Tried for
epilepsy (32)

Data from patients with epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with epilepsy

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Perceived effectiveness
for epilepsy (105 evaluations)
Side effects
Headaches Tiredness 97 more
Total evaluations
108
Tried for
epilepsy (154)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Perceived effectiveness
for epilepsy (84 evaluations)
Side effects
Tiredness Headaches 58 more
Total evaluations
91
Tried for
epilepsy (132) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Perceived effectiveness
for epilepsy (44 evaluations)
Side effects
Confusion Fatigue 49 more
Total evaluations
52
Tried for
epilepsy (87) Headaches (6)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for epilepsy (25 evaluations)
Side effects
Drowsiness Fatigue 11 more
Total evaluations
31
Tried for
epilepsy (57) Anxious mood (22)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Vimpat)
Perceived effectiveness
for epilepsy (35 evaluations)
Side effects
Dizziness Aggression 46 more
Total evaluations
38
Tried for
epilepsy (64)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Perceived effectiveness
for epilepsy (33 evaluations)
Side effects
Dizziness Weight gain 33 more
Total evaluations
37
Tried for
epilepsy (60)
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Perceived effectiveness
for epilepsy (18 evaluations)
Side effects
Depressed mood Sleepiness 24 more
Total evaluations
18
Tried for
epilepsy (49)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Perceived effectiveness
for epilepsy (19 evaluations)
Side effects
Headaches Loss of appetite 26 more
Total evaluations
20
Tried for
epilepsy (36)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Perceived effectiveness
for epilepsy (13 evaluations)
Side effects
Depressed mood Dizziness 17 more
Total evaluations
14
Tried for
epilepsy (33) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Perceived effectiveness
for epilepsy (16 evaluations)
Side effects
Drowsiness Insomnia 12 more
Total evaluations
19
Tried for
epilepsy (32)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 433
20s 1,354
30s 2,198
40s 2,321
50s 1,782
60s 763
70+ 182
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,768
20-29 years 793
30-39 years 449
40-49 years 250
50-59 years 76
60-69 years 23
70+ years 6

Sex

Distribution of sex

68% Female
32% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,757
Not Diagnosed 178

These charts show data from epilepsy patients who have completed their condition history
Last updated: