Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Letitia explains in this video.

What is Epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with Epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
306
Tried for
Epilepsy (306)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
194
Tried for
Epilepsy (193) Anxious mood (1)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
136
Tried for
Epilepsy (134) Headaches (7)
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Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
120
Tried for
Epilepsy (120)
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Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
106
Tried for
Epilepsy (93) Anxious mood (28)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
93
Tried for
Epilepsy (93)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
84
Tried for
Epilepsy (84) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
66
Tried for
Epilepsy (66)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Type
Prescription Drug
How many have tried
57
Tried for
Epilepsy (57)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
56
Tried for
Epilepsy (56) Pain (1)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Perceived effectiveness
for Epilepsy (179 evaluations)
Side effects
Tiredness Depressed mood 106 more
How many evaluations
183
Tried for
Epilepsy (306)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Perceived effectiveness
for Epilepsy (103 evaluations)
Side effects
Rashes (redness, swelling) Tiredness 67 more
How many evaluations
105
Tried for
Epilepsy (193) Anxious mood (1)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Perceived effectiveness
for Epilepsy (66 evaluations)
Side effects
Loss of appetite Fatigue 75 more
How many evaluations
71
Tried for
Epilepsy (134) Headaches (7)
Check to add this treatment to your profile
Treatment name(s)

(Vimpat)
Perceived effectiveness
for Epilepsy (54 evaluations)
Side effects
Dizziness Excessive daytime sleepiness (somnolence) 71 more
How many evaluations
60
Tried for
Epilepsy (120)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Epilepsy (33 evaluations)
Side effects
Sedation Sleepiness 13 more
How many evaluations
43
Tried for
Epilepsy (93) Anxious mood (28)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Perceived effectiveness
for Epilepsy (32 evaluations)
Side effects
Dizziness Sleepiness 38 more
How many evaluations
32
Tried for
Epilepsy (93)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Perceived effectiveness
for Epilepsy (39 evaluations)
Side effects
Weight gain Drowsy in a.m. 34 more
How many evaluations
42
Tried for
Epilepsy (84) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Perceived effectiveness
for Epilepsy (25 evaluations)
Side effects
Anxious mood Fatigue 35 more
How many evaluations
25
Tried for
Epilepsy (66)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Perceived effectiveness
for Epilepsy (30 evaluations)
Side effects
Drowsiness Insomnia 23 more
How many evaluations
32
Tried for
Epilepsy (57)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Perceived effectiveness
for Epilepsy (20 evaluations)
Side effects
Dizziness Depressed mood 28 more
How many evaluations
22
Tried for
Epilepsy (56) Pain (1)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 479
20s 1,401
30s 2,138
40s 2,195
50s 1,575
60s 614
70+ 121

Sex

Distribution of sex

67% Female
33% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,790
20-29 years 793
30-39 years 452
40-49 years 251
50-59 years 78
60-69 years 23
70+ years 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,512
Not Diagnosed 181

These charts show data from Epilepsy patients who have completed their condition history
Last updated: