Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with Epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
362
Tried for
Epilepsy (361) Anxious mood (2)
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Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
216
Tried for
Epilepsy (215) Anxious mood (1)
5 more
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Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
153
Tried for
Epilepsy (151) Headaches (9)
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Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
147
Tried for
Epilepsy (147) Anxious mood (1)
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Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
117
Tried for
Epilepsy (107) Anxious mood (24)
1 more
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Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
103
Tried for
Epilepsy (103)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
94
Tried for
Epilepsy (94) Depressed mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
82
Tried for
Epilepsy (82)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
69
Tried for
Epilepsy (69) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Type
Prescription Drug
How many have tried
62
Tried for
Epilepsy (62)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Perceived effectiveness
for Epilepsy (204 evaluations)
Side effects
Tiredness Mood swings 115 more
How many evaluations
212
Tried for
Epilepsy (361) Anxious mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Perceived effectiveness
for Epilepsy (104 evaluations)
Side effects
Tiredness Fatigue 72 more
How many evaluations
106
Tried for
Epilepsy (215) Anxious mood (1)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Perceived effectiveness
for Epilepsy (82 evaluations)
Side effects
Fatigue Loss of appetite 100 more
How many evaluations
92
Tried for
Epilepsy (151) Headaches (9)
Check to add this treatment to your profile
Treatment name(s)

(Vimpat)
Perceived effectiveness
for Epilepsy (66 evaluations)
Side effects
Dizziness Double vision (diplopia) 71 more
How many evaluations
76
Tried for
Epilepsy (147) Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Epilepsy (35 evaluations)
Side effects
Fatigue Sedation 15 more
How many evaluations
50
Tried for
Epilepsy (107) Anxious mood (24)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Perceived effectiveness
for Epilepsy (33 evaluations)
Side effects
Dizziness Balance problems 39 more
How many evaluations
34
Tried for
Epilepsy (103)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Perceived effectiveness
for Epilepsy (42 evaluations)
Side effects
Weight gain Excessive daytime sleepiness (somnolence) 37 more
How many evaluations
48
Tried for
Epilepsy (94) Depressed mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Perceived effectiveness
for Epilepsy (30 evaluations)
Side effects
Anxious mood Diarrhea 38 more
How many evaluations
30
Tried for
Epilepsy (82)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Perceived effectiveness
for Epilepsy (23 evaluations)
Side effects
Dizziness Depressed mood 24 more
How many evaluations
25
Tried for
Epilepsy (69) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Perceived effectiveness
for Epilepsy (29 evaluations)
Side effects
Drowsiness Insomnia 17 more
How many evaluations
31
Tried for
Epilepsy (62)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 472
20s 1,425
30s 2,084
40s 2,140
50s 1,534
60s 568
70+ 116

Sex

Distribution of sex

67% Female
33% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,799
20-29 years 796
30-39 years 453
40-49 years 251
50-59 years 78
60-69 years 23
70+ years 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,413
Not Diagnosed 181

These charts show data from Epilepsy patients who have completed their condition history
Last updated: