Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Letitia explains in this video.

What is Epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with Epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
189
Tried for
Epilepsy (189)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
148
Tried for
Epilepsy (148) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
103
Tried for
Epilepsy (101) Headaches (7)
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Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
72
Tried for
Epilepsy (72)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
70
Tried for
Epilepsy (61) Anxious mood (20)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
60
Tried for
Epilepsy (60)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
60
Tried for
Epilepsy (60)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
42
Tried for
Epilepsy (42) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
39
Tried for
Epilepsy (39)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Type
Prescription Drug
How many have tried
38
Tried for
Epilepsy (38)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Perceived effectiveness
for Epilepsy (119 evaluations)
Side effects
Tiredness Headaches 98 more
How many evaluations
122
Tried for
Epilepsy (189)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Perceived effectiveness
for Epilepsy (87 evaluations)
Side effects
Tiredness Fatigue 63 more
How many evaluations
94
Tried for
Epilepsy (148) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Perceived effectiveness
for Epilepsy (50 evaluations)
Side effects
Loss of appetite Weight loss 53 more
How many evaluations
57
Tried for
Epilepsy (101) Headaches (7)
Check to add this treatment to your profile
Treatment name(s)

(Vimpat)
Perceived effectiveness
for Epilepsy (33 evaluations)
Side effects
Dizziness Double vision (diplopia) 45 more
How many evaluations
36
Tried for
Epilepsy (72)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Epilepsy (23 evaluations)
Side effects
Drowsiness Sedation 8 more
How many evaluations
28
Tried for
Epilepsy (61) Anxious mood (20)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Perceived effectiveness
for Epilepsy (26 evaluations)
Side effects
Sleepiness Balance problems 32 more
How many evaluations
26
Tried for
Epilepsy (60)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Perceived effectiveness
for Epilepsy (37 evaluations)
Side effects
Weight gain Depressed mood 30 more
How many evaluations
40
Tried for
Epilepsy (60)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Perceived effectiveness
for Epilepsy (14 evaluations)
Side effects
Depressed mood Dizziness 20 more
How many evaluations
16
Tried for
Epilepsy (42) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Perceived effectiveness
for Epilepsy (18 evaluations)
Side effects
Headaches Loss of appetite 26 more
How many evaluations
19
Tried for
Epilepsy (39)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Perceived effectiveness
for Epilepsy (22 evaluations)
Side effects
Drowsiness Insomnia 17 more
How many evaluations
25
Tried for
Epilepsy (38)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 446
20s 1,358
30s 2,179
40s 2,274
50s 1,720
60s 731
70+ 164

Sex

Distribution of sex

68% Female
32% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,770
20-29 years 793
30-39 years 449
40-49 years 250
50-59 years 76
60-69 years 23
70+ years 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,678
Not Diagnosed 178

These charts show data from Epilepsy patients who have completed their condition history
Last updated: