Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with Epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
382
Tried for
Epilepsy (381) Anxious mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
222
Tried for
Epilepsy (221) Anxious mood (1)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
165
Tried for
Epilepsy (163) Headaches (9)
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Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
159
Tried for
Epilepsy (159) Anxious mood (1)
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Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
123
Tried for
Epilepsy (111) Anxious mood (24)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
106
Tried for
Epilepsy (106)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
101
Tried for
Epilepsy (101) Depressed mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
86
Tried for
Epilepsy (86)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
70
Tried for
Epilepsy (70) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Type
Prescription Drug
How many have tried
65
Tried for
Epilepsy (65)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Perceived effectiveness
for Epilepsy (216 evaluations)
Side effects
Tiredness Mood swings 118 more
How many evaluations
224
Tried for
Epilepsy (381) Anxious mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Perceived effectiveness
for Epilepsy (106 evaluations)
Side effects
Tiredness Memory problems 73 more
How many evaluations
108
Tried for
Epilepsy (221) Anxious mood (1)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Perceived effectiveness
for Epilepsy (86 evaluations)
Side effects
Loss of appetite Fatigue 104 more
How many evaluations
98
Tried for
Epilepsy (163) Headaches (9)
Check to add this treatment to your profile
Treatment name(s)

(Vimpat)
Perceived effectiveness
for Epilepsy (77 evaluations)
Side effects
Dizziness Double vision (diplopia) 85 more
How many evaluations
89
Tried for
Epilepsy (159) Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Epilepsy (36 evaluations)
Side effects
Fatigue Sedation 17 more
How many evaluations
54
Tried for
Epilepsy (111) Anxious mood (24)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Perceived effectiveness
for Epilepsy (35 evaluations)
Side effects
Dizziness Balance problems 38 more
How many evaluations
37
Tried for
Epilepsy (106)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Perceived effectiveness
for Epilepsy (45 evaluations)
Side effects
Weight gain Excessive daytime sleepiness (somnolence) 38 more
How many evaluations
53
Tried for
Epilepsy (101) Depressed mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Perceived effectiveness
for Epilepsy (35 evaluations)
Side effects
Fatigue Anxious mood 42 more
How many evaluations
35
Tried for
Epilepsy (86)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Perceived effectiveness
for Epilepsy (23 evaluations)
Side effects
Dizziness Depressed mood 24 more
How many evaluations
25
Tried for
Epilepsy (70) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Perceived effectiveness
for Epilepsy (30 evaluations)
Side effects
Drowsiness Insomnia 17 more
How many evaluations
32
Tried for
Epilepsy (65)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 474
20s 1,430
30s 2,062
40s 2,126
50s 1,518
60s 562
70+ 115

Sex

Distribution of sex

67% Female
33% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,799
20-29 years 797
30-39 years 453
40-49 years 251
50-59 years 78
60-69 years 23
70+ years 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,390
Not Diagnosed 181

These charts show data from Epilepsy patients who have completed their condition history
Last updated: