Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Letitia explains in this video.

What is Epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with Epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
176
Tried for
Epilepsy (176)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
135
Tried for
Epilepsy (135) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
96
Tried for
Epilepsy (94) Headaches (7)
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Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
66
Tried for
Epilepsy (57) Anxious mood (21)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
64
Tried for
Epilepsy (64)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
59
Tried for
Epilepsy (59)
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
53
Tried for
Epilepsy (53)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
39
Tried for
Epilepsy (39)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
38
Tried for
Epilepsy (38) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Type
Prescription Drug
How many have tried
35
Tried for
Epilepsy (35)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Perceived effectiveness
for Epilepsy (113 evaluations)
Side effects
Tiredness Headaches 103 more
Total evaluations
116
Tried for
Epilepsy (176)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Perceived effectiveness
for Epilepsy (82 evaluations)
Side effects
Tiredness Headaches 54 more
Total evaluations
89
Tried for
Epilepsy (135) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Perceived effectiveness
for Epilepsy (48 evaluations)
Side effects
Loss of appetite Weight loss 51 more
Total evaluations
56
Tried for
Epilepsy (94) Headaches (7)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Epilepsy (22 evaluations)
Side effects
Drowsiness Sedation 9 more
Total evaluations
27
Tried for
Epilepsy (57) Anxious mood (21)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Vimpat)
Perceived effectiveness
for Epilepsy (31 evaluations)
Side effects
Dizziness Aggression 46 more
Total evaluations
34
Tried for
Epilepsy (64)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Perceived effectiveness
for Epilepsy (33 evaluations)
Side effects
Weight gain Depressed mood 30 more
Total evaluations
37
Tried for
Epilepsy (59)
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Perceived effectiveness
for Epilepsy (22 evaluations)
Side effects
Sleepiness Balance problems 27 more
Total evaluations
22
Tried for
Epilepsy (53)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Perceived effectiveness
for Epilepsy (19 evaluations)
Side effects
Headaches Loss of appetite 26 more
Total evaluations
20
Tried for
Epilepsy (39)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Perceived effectiveness
for Epilepsy (14 evaluations)
Side effects
Depressed mood Dizziness 20 more
Total evaluations
15
Tried for
Epilepsy (38) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Perceived effectiveness
for Epilepsy (18 evaluations)
Side effects
Drowsiness Insomnia 15 more
Total evaluations
21
Tried for
Epilepsy (35)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has Epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 438
20s 1,361
30s 2,192
40s 2,304
50s 1,761
60s 745
70+ 174
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,769
20-29 years 793
30-39 years 449
40-49 years 250
50-59 years 76
60-69 years 23
70+ years 6

Sex

Distribution of sex

68% Female
32% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,731
Not Diagnosed 178

These charts show data from Epilepsy patients who have completed their condition history
Last updated: