Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with Epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
411
Tried for
Epilepsy (410) Anxious mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
251
Tried for
Epilepsy (250) Depressed mood (2)
5 more
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Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
180
Tried for
Epilepsy (178) Headaches (9)
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Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
169
Tried for
Epilepsy (169) Anxious mood (1)
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Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
129
Tried for
Epilepsy (117) Anxious mood (26)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
120
Tried for
Epilepsy (120)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
113
Tried for
Epilepsy (113) Depressed mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
96
Tried for
Epilepsy (96)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
76
Tried for
Epilepsy (76) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Type
Prescription Drug
How many have tried
70
Tried for
Epilepsy (70)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Perceived effectiveness
for Epilepsy (223 evaluations)
Side effects
Tiredness Mood swings 123 more
How many evaluations
231
Tried for
Epilepsy (410) Anxious mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Perceived effectiveness
for Epilepsy (122 evaluations)
Side effects
Tiredness Memory problems 88 more
How many evaluations
124
Tried for
Epilepsy (250) Depressed mood (2)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Perceived effectiveness
for Epilepsy (92 evaluations)
Side effects
Fatigue Weight loss 105 more
How many evaluations
104
Tried for
Epilepsy (178) Headaches (9)
Check to add this treatment to your profile
Treatment name(s)

(Vimpat)
Perceived effectiveness
for Epilepsy (79 evaluations)
Side effects
Dizziness Double vision (diplopia) 86 more
How many evaluations
93
Tried for
Epilepsy (169) Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Epilepsy (38 evaluations)
Side effects
Fatigue Sedation 17 more
How many evaluations
56
Tried for
Epilepsy (117) Anxious mood (26)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Perceived effectiveness
for Epilepsy (42 evaluations)
Side effects
Dizziness Balance problems 44 more
How many evaluations
46
Tried for
Epilepsy (120)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Perceived effectiveness
for Epilepsy (50 evaluations)
Side effects
Weight gain Excessive daytime sleepiness (somnolence) 39 more
How many evaluations
58
Tried for
Epilepsy (113) Depressed mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Perceived effectiveness
for Epilepsy (38 evaluations)
Side effects
Fatigue Anxious mood 43 more
How many evaluations
38
Tried for
Epilepsy (96)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Perceived effectiveness
for Epilepsy (27 evaluations)
Side effects
Dizziness Depressed mood 24 more
How many evaluations
29
Tried for
Epilepsy (76) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Perceived effectiveness
for Epilepsy (32 evaluations)
Side effects
Drowsiness Insomnia 18 more
How many evaluations
34
Tried for
Epilepsy (70)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 477
20s 1,425
30s 2,055
40s 2,112
50s 1,513
60s 555
70+ 114

Sex

Distribution of sex

67% Female
33% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,798
20-29 years 797
30-39 years 453
40-49 years 251
50-59 years 78
60-69 years 23
70+ years 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,367
Not Diagnosed 182

These charts show data from Epilepsy patients who have completed their condition history
Last updated: