Schizophrenia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is schizophrenia?

Schizophrenia is a psychiatric disorder characteristically marked by a retreat from reality with delusion formation, hallucinations, emotional disharmony, and regressive behavior.

Common symptoms reported by people with schizophrenia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with schizophrenia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Seroquel)
Type
Prescription Drug
How many have tried
12
Tried for
schizophrenia (10) Insomnia (3)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
11
Tried for
Anxious mood (10) Insomnia (1)
1 more
Treatment name(s)

(Risperdal)
Type
Prescription Drug
How many have tried
11
Tried for
schizophrenia (11) Auditory hallucinations (1)
1 more
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
10
Tried for
schizophrenia (10)
Treatment name(s)

(Zyprexa)
Type
Prescription Drug
How many have tried
9
Tried for
schizophrenia (9) Auditory hallucinations (1)
1 more
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
7
Tried for
Anxious mood (7) Insomnia (1)
1 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
6
Tried for
Anxious mood (3) Pain (2)
1 more
Treatment name(s)

(Latuda)
Type
Prescription Drug
How many have tried
6
Tried for
Auditory hallucinations (3) schizophrenia (3)
1 more
Treatment name(s)

(Haldol)
Type
Prescription Drug
How many have tried
5
Tried for
schizophrenia (5)
Treatment name(s)

(Talk therapy)
Type
Psychotherapy
How many have tried
5
Tried for
schizophrenia (5) Depressed mood (2)
1 more

Data from patients with schizophrenia, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with schizophrenia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Seroquel)
Perceived effectiveness
for schizophrenia (2 evaluations)
Side effects
Drowsiness Anxiety attacks 7 more
Total evaluations
7
Tried for
schizophrenia (10) Insomnia (3)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (11 evaluations)
Side effects
Drooling especially at night Headaches 1 more
Total evaluations
11
Tried for
Anxious mood (10) Insomnia (1)
1 more
Treatment name(s)

(Risperdal)
Perceived effectiveness
for schizophrenia (7 evaluations)
Side effects
Muscle weakness psychogenic non-epileptic seizures 2 more
Total evaluations
7
Tried for
schizophrenia (11) Auditory hallucinations (1)
1 more
Treatment name(s)

(Abilify)
Perceived effectiveness
for schizophrenia (7 evaluations)
Side effects
Blurry vision Brain fog 6 more
Total evaluations
7
Tried for
schizophrenia (10)
Treatment name(s)

(Zyprexa)
Perceived effectiveness
for schizophrenia (12 evaluations)
Side effects
Restlessness (akathisia) Dry mouth 5 more
Total evaluations
12
Tried for
schizophrenia (9) Auditory hallucinations (1)
1 more
Treatment name(s)

(Vistaril)
Perceived effectiveness
for Anxious mood (2 evaluations)
Side effects
Total evaluations
3
Tried for
Anxious mood (7) Insomnia (1)
1 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Anxious mood (1 evaluation)
Side effects
Low Testosterone Oversleeping (too much sleep) 1 more
Total evaluations
5
Tried for
Anxious mood (3) Pain (2)
1 more
Treatment name(s)

(Latuda)
Perceived effectiveness
for Auditory hallucinations (6 evaluations)
Side effects
Abdominal cramps Difficulty sleeping through night 13 more
Total evaluations
22
Tried for
Auditory hallucinations (3) schizophrenia (3)
1 more
Treatment name(s)

(Haldol)
Perceived effectiveness
for schizophrenia (4 evaluations)
Side effects
Excessive daytime sleepiness (somnolence) Nausea and vomiting 1 more
Total evaluations
4
Tried for
schizophrenia (5)
Treatment name(s)

(Talk therapy)
Perceived effectiveness
for schizophrenia (1 evaluation)
Side effects
Total evaluations
1
Tried for
schizophrenia (5) Depressed mood (2)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with schizophrenia, who reported starting treatments within the last 5 years.
Last updated:

Who has schizophrenia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 18
20s 194
30s 235
40s 211
50s 124
60s 58
70+ 9
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 156
20-29 years 74
30-39 years 32
40-49 years 22
50-59 years 8
60-69 years 1
70+ years 1

Sex

Distribution of sex

59% Female
41% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 459
Not Diagnosed 245

These charts show data from schizophrenia patients who have completed their condition history
Last updated: