Essential myoclonus

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What is essential myoclonus?

Myoclonus refers to sudden, brief, shock-like movements. Type of myoclonus depends on the underlying cause or type of movements. When there is no known cause or when it is a familial (inherited) condition it is called Essential myoclonus.

Common symptoms reported by people with essential myoclonus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with essential myoclonus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
4
Tried for
essential myoclonus (4) anxious mood (1)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
1
Tried for
essential myoclonus (1)
Treatment name(s)

(Calcium 600 plus D)
Type
Supplement
How many have tried
1
Tried for
essential myoclonus (1)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
depressed mood (1) pain (1)
Treatment name(s)

(Soma)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Spinal Chiropractic Therapy)
Type
Physical Therapy
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Dilaudid)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with essential myoclonus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with essential myoclonus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Klonopin)
Perceived effectiveness
for essential myoclonus (2 evaluations)
Side effects
drowsy in a.m.
Total evaluations
3
Tried for
essential myoclonus (4) anxious mood (1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for essential myoclonus (1 evaluation)
Side effects
Total evaluations
1
Tried for
essential myoclonus (1)
Treatment name(s)

(Calcium 600 plus D)
Perceived effectiveness
for essential myoclonus (5 evaluations)
Side effects
Total evaluations
5
Tried for
essential myoclonus (1)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
headaches increased appetite 2 more
Total evaluations
1
Tried for
depressed mood (1) pain (1)
Treatment name(s)

(Soma)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Spinal Chiropractic Therapy)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Valium)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Dilaudid)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
for pain (1 evaluation)
Side effects
feeling out of body Hospitalization
Total evaluations
1
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with essential myoclonus, who reported starting treatments within the last 5 years.
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Who has essential myoclonus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 12
30s 8
40s 16
50s 13
60s 21
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 11
20-29 years 8
30-39 years 7
40-49 years 9
50-59 years 10
60-69 years 1
70+ years 1

Sex

Distribution of sex

77% Female
23% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 51
Not Diagnosed 7

These charts show data from essential myoclonus patients who have completed their condition history
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