Bladder cancer

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is bladder cancer?

Bladder cancer refers to any of several types of cancerous (malignant) growths of the urinary bladder. Transitional cell bladder cancer accounts for 90% of all bladder cancers.

Common symptoms reported by people with bladder cancer

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with bladder cancer

Treatment name(s)
Type
How many have tried
Tried for
Type
Surgery
How many have tried
10
Tried for
bladder cancer (10)
Treatment name(s)
Type
Prescription Drug
How many have tried
4
Tried for
bladder cancer (4)
Treatment name(s)
Type
Prescription Drug
How many have tried
4
Tried for
bladder cancer (4)
Treatment name(s)
Type
Surgery
How many have tried
3
Tried for
bladder cancer (3)
Treatment name(s)

(Tecentriq)
Type
Prescription Drug
How many have tried
2
Tried for
bladder cancer (2)
Treatment name(s)
Type
Procedures
How many have tried
2
Tried for
bladder cancer (2)
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
2
Tried for
pain (2) bladder cancer (1)
1 more
Treatment name(s)

(Intensity-Modulated Radiation)
Type
Procedures
How many have tried
2
Tried for
bladder cancer (2)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)

Data from patients with bladder cancer, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with bladder cancer

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for bladder cancer (4 evaluations)
Side effects
urinary leakage blood in urine (hematuria) 1 more
Total evaluations
4
Tried for
bladder cancer (10)
Treatment name(s)
Perceived effectiveness
for bladder cancer (4 evaluations)
Side effects
fatigue lower abdominal discomfort 1 more
Total evaluations
4
Tried for
bladder cancer (4)
Treatment name(s)
Perceived effectiveness
for bladder cancer (1 evaluation)
Side effects
nausea
Total evaluations
1
Tried for
bladder cancer (4)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
bladder cancer (3)
Treatment name(s)

(Tecentriq)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
bladder cancer (2)
Treatment name(s)
Perceived effectiveness
for bladder cancer (3 evaluations)
Side effects
Total evaluations
3
Tried for
bladder cancer (2)
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for pain (1 evaluation)
Side effects
increased insomnia increased spasticity in early morning 1 more
Total evaluations
1
Tried for
pain (2) bladder cancer (1)
1 more
Treatment name(s)

(Intensity-Modulated Radiation)
Perceived effectiveness
for bladder cancer (1 evaluation)
Side effects
Total evaluations
1
Tried for
bladder cancer (2)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
hangover effect in morning
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Elavil)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with bladder cancer, who reported starting treatments within the last 5 years.
Last updated:

Who has bladder cancer on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 3
30s 6
40s 13
50s 31
60s 54
70+ 63
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 3
30-39 years 6
40-49 years 6
50-59 years 18
60-69 years 13
70+ years 14

Sex

Distribution of sex

38% Female
62% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 126
Not Diagnosed 6

These charts show data from bladder cancer patients who have completed their condition history
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