Myelodysplastic syndrome

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What is myelodysplastic syndrome?

Myelodysplastic syndrome describes a group of blood disorders characterized by ineffective production of certain blood cells within the bone marrow often leading to anemia. It has been called preleukemia because it may transform to acute myelogenous leukemia.

Common symptoms reported by people with myelodysplastic syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with myelodysplastic syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Procrit)
Type
Prescription Drug
How many have tried
3
Tried for
myelodysplastic syndrome (3)
Treatment name(s)

(Vidaza)
Type
Prescription Drug
How many have tried
2
Tried for
myelodysplastic syndrome (2)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Revlimid)
Type
Prescription Drug
How many have tried
1
Tried for
myelodysplastic syndrome (1)
Treatment name(s)

(Autologous Stem Cell Transplant)
Type
Procedures
How many have tried
1
Tried for
myelodysplastic syndrome (1)

Data from patients with myelodysplastic syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with myelodysplastic syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Procrit)
Perceived effectiveness
for myelodysplastic syndrome (2 evaluations)
Side effects
Total evaluations
2
Tried for
myelodysplastic syndrome (3)
Treatment name(s)

(Vidaza)
Perceived effectiveness
for myelodysplastic syndrome (1 evaluation)
Side effects
very low white blood cell count
Total evaluations
1
Tried for
myelodysplastic syndrome (2)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (8 evaluations)
Side effects
Total evaluations
8
Tried for
depressed mood (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (15 evaluations)
Side effects
excessive daytime sleepiness (somnolence)
Total evaluations
15
Tried for
pain (1)
Treatment name(s)

(Revlimid)
Perceived effectiveness
for myelodysplastic syndrome (1 evaluation)
Side effects
fatigue
Total evaluations
1
Tried for
myelodysplastic syndrome (1)
Treatment name(s)

(Autologous Stem Cell Transplant)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
myelodysplastic syndrome (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with myelodysplastic syndrome, who reported starting treatments within the last 5 years.
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Who has myelodysplastic syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 3
30s 4
40s 6
50s 20
60s 31
70+ 43
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 3
40-49 years 3
50-59 years 9
60-69 years 7
70+ years 6

Distribution of sex

Sex
Sex Proportion # of patients
Male 49
Female 61

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 46
Not Diagnosed 4

These charts show data from myelodysplastic syndrome patients who have completed their condition history
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