Hypocomplementemic urticarial vasculitis syndrome

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What is hypocomplementemic urticarial vasculitis syndrome?

Hypocomplementemic urticarial vasculitis syndrome is characterized as the chronic inflammation of blood vessels, with painful, itchy, burning skin lesions (urticarial), and may involve other organs.

Common symptoms reported by people with hypocomplementemic urticarial vasculitis syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with hypocomplementemic urticarial vasculitis syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Colcrys)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Aczone)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)

Data from patients with hypocomplementemic urticarial vasculitis syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with hypocomplementemic urticarial vasculitis syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for hypocomplementemic urticarial vasculitis syndrome (1 evaluation)
Side effects
diarrhea
Total evaluations
1
Treatment name(s)

(Imuran)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Colcrys)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Aczone)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Prozac)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Mobic)
Perceived effectiveness
for pain (1 evaluation)
Side effects
headaches ringing in ears (tinnitus)
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for hypocomplementemic urticarial vasculitis syndrome (1 evaluation)
Side effects
loss of energy nausea 1 more
Total evaluations
1
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Deltasone)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hypocomplementemic urticarial vasculitis syndrome, who reported starting treatments within the last 5 years.
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Who has hypocomplementemic urticarial vasculitis syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 4
30s 6
40s 11
50s 18
60s 5
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 0
30-39 years 6
40-49 years 4
50-59 years 2
60-69 years 1
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 9
Female 41

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 23
Not Diagnosed 4

These charts show data from HUVS patients who have completed their condition history
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