Primary progressive aphasia

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What is primary progressive aphasia?

Primary Progressive Aphasia (PPA) is a type of dementia that may occur in individuals under the age of 65, it is a deficit of language functions. Due to brain cell degeneration, PPA affects speaking, comprehension of conversational speech, reading and writing.

Common symptoms reported by people with primary progressive aphasia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with primary progressive aphasia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Remeron)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)

Data from patients with primary progressive aphasia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with primary progressive aphasia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Ativan)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (2)
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
fatigue
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)

(Elavil)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
weight gain
Total evaluations
1
Tried for
Pain (1)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
weight loss
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Remeron)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with primary progressive aphasia, who reported starting treatments within the last 5 years.
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Who has primary progressive aphasia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 7
30s 3
40s 14
50s 17
60s 19
70+ 12
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 0
30-39 years 6
40-49 years 3
50-59 years 2
60-69 years 4
70+ years 2

Sex

Distribution of sex

49% Female
51% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 25
Not Diagnosed 8

These charts show data from primary progressive aphasia patients who have completed their condition history
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