JC virus

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is JC virus?

The JC virus is a member of the polyomavirus family. It is thought to cause diseases such as Progressive Multifocal Leukoencephalopathy (PML) in immunosuppressed patients. The virus is carried by a majority of people and is harmless except to those with lowered immune defenses.

Common symptoms reported by people with JC virus


Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with JC virus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)

Data from patients with JC virus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with JC virus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Provigil)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
Total evaluations
1
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with JC virus, who reported starting treatments within the last 5 years.
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Who has JC virus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 5
30s 2
40s 7
50s 3
60s 4
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 0
40-49 years 1
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 7
Female 14

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9
Not Diagnosed 2

These charts show data from JC virus patients who have completed their condition history
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