Hemiplegic migraine

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is hemiplegic migraine?

Hemiplegic migraine is a very rare but well-described form of migraine variant consisting of recurrent headaches associated with temporary one-sided paralysis (hemiplegia), at times accompanied by numbness or tingling, with or without a disturbance in speech.

Common symptoms reported by people with hemiplegic migraine

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with hemiplegic migraine

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
6
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
5
Tried for
pain (3) hemiplegic migraine (2)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
4
Tried for
depressed mood (4)
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (3)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (2) depressed mood (1)
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
3
Tried for
hemiplegic migraine (2) pain (2)
Treatment name(s)

(Verapamil ER)
Type
Prescription Drug
How many have tried
3

Data from patients with hemiplegic migraine, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with hemiplegic migraine

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Topamax)
Perceived effectiveness
for hemiplegic migraine (5 evaluations)
Side effects
disorientation dysphasia 6 more
Total evaluations
6
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (2 evaluations)
Side effects
increased sleepiness weight gain
Total evaluations
2
Tried for
pain (3) hemiplegic migraine (2)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
chronic constipation
Total evaluations
2
Tried for
depressed mood (4)
Treatment name(s)

(Celexa)
Perceived effectiveness
No evaluations
Side effects
dry mouth
Total evaluations
1
Tried for
depressed mood (3)
Treatment name(s)

(Klonopin)
Perceived effectiveness
No evaluations
Side effects
dry mouth
Total evaluations
1
Tried for
anxious mood (3)
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (3)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
diarrhea
Total evaluations
4
Tried for
anxious mood (2) depressed mood (1)
Treatment name(s)

(Advil)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (3)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for hemiplegic migraine (1 evaluation)
Side effects
anxious mood weight gain
Total evaluations
3
Tried for
hemiplegic migraine (2) pain (2)
Treatment name(s)

(Verapamil ER)
Perceived effectiveness
for hemiplegic migraine (2 evaluations)
Side effects
aphasia constipation 2 more
Total evaluations
2
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hemiplegic migraine, who reported starting treatments within the last 5 years.
Last updated:

Who has hemiplegic migraine on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 14
30s 40
40s 55
50s 47
60s 24
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 16
20-29 years 20
30-39 years 21
40-49 years 30
50-59 years 9
60-69 years 2
70+ years 0

Sex

Distribution of sex

88% Female
12% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 102
Not Diagnosed 13

These charts show data from hemiplegic migraine patients who have completed their condition history
Last updated: