Hemochromatosis

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  • help each other live better and uncover the best ways to manage your health today
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What is hemochromatosis?

Primary hemochromatosis is a genetic disorder that is characterized by excessive iron accumulation that results in damage to tissues. It can lead to liver disorders, diabetes, and heart disease. Secondary hemochromatosis may be related to excess iron intake, anemia, alcoholism, and other disorders.

Common symptoms reported by people with hemochromatosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with hemochromatosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Procedures
How many have tried
8
Tried for
hemochromatosis (8)
Treatment name(s)

(Nature's Bounty Melatonin)
Type
Supplement
How many have tried
2
Tried for
Insomnia (2)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(5 HTP TR)
Type
Supplement
How many have tried
1
Tried for
Anxious mood (1) Depressed mood (1)
1 more
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Type
Procedures
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1) Pain (1)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
Fatigue (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)
Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)

Data from patients with hemochromatosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with hemochromatosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for hemochromatosis (3 evaluations)
Side effects
Fatigue Tiredness
Total evaluations
3
Tried for
hemochromatosis (8)
Treatment name(s)

(Nature's Bounty Melatonin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Insomnia (2)
Treatment name(s)

(Ultram)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (2)
Treatment name(s)

(5 HTP TR)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Anxious mood (1) Depressed mood (1)
1 more
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Treatment name(s)

(Elavil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Insomnia (1) Pain (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Fatigue (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Depressed mood (1)
Treatment name(s)

(Celebrex)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Constipation Loss of appetite
Total evaluations
1
Tried for
Pain (1)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
Anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hemochromatosis, who reported starting treatments within the last 5 years.
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Who has hemochromatosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 8
30s 26
40s 49
50s 76
60s 38
70+ 14
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 9
30-39 years 26
40-49 years 26
50-59 years 13
60-69 years 1
70+ years 0

Sex

Distribution of sex

63% Female
37% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 119
Not Diagnosed 15

These charts show data from hemochromatosis patients who have completed their condition history
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