Branchiootorenal syndrome

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What is branchiootorenal syndrome?

Branchiootorenal (BOR) syndrome is a combination of genetic disorders that generally disrupts the development of tissue and causes malformations in the neck, ears and kidneys. The symptoms and treatments will vary in individuals.

Common symptoms reported by people with branchiootorenal syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with branchiootorenal syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tylenol with Codeine #3)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with branchiootorenal syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with branchiootorenal syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tylenol with Codeine #3)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with branchiootorenal syndrome, who reported starting treatments within the last 5 years.
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Who has branchiootorenal syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 1
30s 1
40s 0
50s 1
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

75% Female
25% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1
Not Diagnosed 0

These charts show data from branchiootorenal syndrome patients who have completed their condition history
Last updated:
No data

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