What is Deanna Protocol?

Category: Supplements

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The Deanna protocol is a treatment for ALS. The main ingredient include Arginine alpha keto-glutarate, Nicotinamide Adenine Dinucleotide, GABA, glutathione, Idebenone, and Ubiquinol.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
amyotrophic lateral sclerosis 71 93
Improve flexibility/strength 5 11
primary lateral sclerosis 2 2
Degenerative neurological disorder 1 2
progressive muscular atrophy 1 0
Slowness (bradykinesia) 1 3

Show all 7 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 2
Moderate 5
Mild 22
None 72

Commonly reported side effects and conditions associated with Deanna Protocol

Side effect Patients
Diarrhea 8
Acidosis 1
Charlie horses in calves 1
Charlie horses in feet 1
Difficulty eating 1
Emotional breakdowns 1

Show all 20 reported side effects

Dosages

Based on patients currently taking Deanna Protocol

Dosage Patients
1 other daily 4
18 mg daily 2
1 daily 1
1 mg daily 1
2 mg daily 1
1 g three times daily 1
1 other three times daily 1
1 tbs. three times daily 1
2 g four times daily 1
10 daily 1

See all 18 dosages

Why patients stopped taking Deanna Protocol

Multiple reasons could be selected

Reason Patients
Did not seem to work 18
Other 3
Side effects too severe 3
Expense 2
Doctor's advice 1
See all 24 patients who've stopped taking Deanna Protocol

Duration

Currently taking Deanna Protocol

Duration Patients
1 - 6 months 3
6 months - 1 year 2
1 - 2 years 9
2 - 5 years 9

Stopped taking Deanna Protocol

Duration Patients
Less than 1 month 2
1 - 6 months 17
6 months - 1 year 4
1 - 2 years 1
Adherence
Adherence Evaluations
Always 81
Usually 15
Sometimes 4
Never taken as prescribed 1
Burden
Burden Evaluations
Very hard to take 3
Somewhat hard to take 38
A little hard to take 33
Not at all hard to take 27
Cost per month
Cost per month Evaluations
$200+ 69
$100-199 11
$50-99 6
$25-49 0
< $25 0
Not specified 15
Last updated:

3 patient evaluations for Deanna Protocol

Dec 15, 2014 (Started Sep 18, 2014)

  • Effectiveness
    Can’t tell (for Improve flexibility/strength)
  • Effectiveness
    Can’t tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 9 mg Daily
Cost: $200+ monthly

  • 0 helpful marks

May 12, 2013 (Started Feb 18, 2013)

  • Effectiveness
    Slight (for Improve flexibility/strength)
  • Effectiveness
    Slight (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (Soft bowel movements, Charlie horses in calves, Charlie horses in feet, Heartburn)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 1 other Daily
Advice & Tips: I travel 90+ miles/week and spend $140/week just for the 3000 mg Glutathione IV! The other items cost approx. $400/month and I buy from Amazon.com and PureFormulas.com (free shipping). Beware Klaire Labs AKG causes severe heartburn! The only brand of Creatine that comes in an 879 mg capsule is made by Life Extension. The hourly dose of AKG annoys my husband as do these costs.
Cost: $200+ monthly

Mar 10, 2013 (Started Feb 18, 2013)

  • Effectiveness
    Slight (for Improve flexibility/strength)
  • Effectiveness
    Slight (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (Soft bowel movements, Charlie horses in calves, Charlie horses in feet, Heartburn)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 1 other Daily
Advice & Tips: Struggling with the hourly doses of AKG due to heartburn.
Cost: $200+ monthly

Feb 27, 2013 (Started Feb 18, 2013)

  • Effectiveness
    Moderate (for Improve flexibility/strength)
  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (Soft bowel movements, Charlie horses in calves, Charlie horses in feet)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 1 other Daily
Advice & Tips: Increased libido, gained strength back in atrophying right hand/arm, gained some fine motor control of right thumb. Using my cane less and staying awake more. (Note: No glutathione IV nor coconut oil massage, yet.)
Cost: $200+ monthly

  • 0 helpful marks

Jan 25, 2013 (Started Dec 12, 2012)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 other Daily
Advice & Tips: Stopped because I had the Alabama Precision Stem Cell procedure.
Cost: $100-199 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 3 patient evaluations for Deanna Protocol