What is Deanna Protocol?

Category: Supplements

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The Deanna protocol is an investigational treatment for ALS. The main ingredient include Arginine alpha keto-glutarate, Nicotinamide Adenine Dinucleotide, GABA, glutathione, Idebenone, and Ubiquinol.

Purpose
Patients
Patients with evaluations
Perceived effectiveness
Patients
Patients with evaluations
Patients
Patients with evaluations
0
Perceived effectiveness
Purpose
Patients
Patients with evaluations
0
Perceived effectiveness
Patients
Patients with evaluations
0
Perceived effectiveness

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects of Deanna Protocol

Severe
2
Moderate
1
Mild
9
None
22

Commonly reported side effects, conditions, and hospitalizations associated with Deanna Protocol

Patients
5
Hospitalization
Patients
2
Patients
1
Patients
1
Patients
1

Show all 17 reported side effects

Dosages

Most common dosages (by patients currently taking Deanna Protocol)
Dosage
1 other daily
Patients
12
Dosage
1 daily
Patients
3
Dosage
2 mg daily
Patients
2
Dosage
18 other daily
Patients
2
Dosage
18 g daily
Patients
2
Dosage
1 hr daily
Patients
1
Dosage
1 mg twice daily
Patients
1
Dosage
3 transplant daily
Patients
1
Dosage
1 tsp. three times daily
Patients
1
Dosage
2 mg twice daily
Patients
1

Dosages based on patients currently taking Deanna Protocol.

Why Patients Stopped Taking Deanna Protocol (multiple reasons could be selected)
Reason
Did not seem to work
Patients
10
Reason
Side effects too severe
Patients
2
Reason
Other
Patients
2
Reason
Expense
Patients
1
Reason
Not indicated
Patients
1
See all 16 patients who’ve stopped taking Deanna Protocol

Duration

Currently Taking Deanna Protocol
Duration
Patients
Duration
0-1 month
Patients
1
Duration
1-3 months
Patients
2
Duration
3-6 months
Patients
1
Duration
6 months-1 year
Patients
7
Duration
1-2 years
Patients
1
Duration
2 years or more
Patients
8
Stopped Taking Deanna Protocol
Duration
Patients
Duration
0-1 month
Patients
0
Duration
1-3 months
Patients
7
Duration
3-6 months
Patients
4
Duration
6 months-1 year
Patients
2
Duration
1-2 years
Patients
1
Duration
2 years or more
Patients
0

Adherence


Always
Patients
27
79%
Usually
Patients
5
15%
Sometimes
Patients
1
3%
Never
Patients
1
3%

Burden


Very
Patients
2
6%
Somewhat
Patients
14
41%
A little
Patients
13
38%
Not at all
Patients
5
15%

Cost per month


Cost per month
$200+
Patients
10
42%
Cost per month
$100-199
Patients
20
83%
Cost per month
$50-99
Patients
3
13%
Cost per month
$25-49
Patients
1
4%
Cost per month
< $25
Patients
0
0%
Cost per month
Not specified
Patients
0
0%
Last updated:

1 patient evaluation for Deanna Protocol

HappyPhysicist
31836 thumb
HappyPhysicist
Sex: M
Data Quality: 2 stars
Bulbar: moderate
Arms: mild
Chest: mild
Legs: moderate
I am: vg
I have:
ALS

See HappyPhysicist's full Deanna Protocol history

Jan 25, 2013 (Started Dec 12, 2012)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): None
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1 other Daily
Advice & Tips: Stopped because I had the Alabama Precision Stem Cell procedure.
Cost: $50-99 monthly

  • 0 helpful marks
Last updated:
Showing 1 of 1 patient evaluation for Deanna Protocol