What is Deanna Protocol?

Category: Supplements

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The Deanna protocol is an investigational treatment for ALS. The main ingredient include Arginine alpha keto-glutarate, Nicotinamide Adenine Dinucleotide, GABA, glutathione, Idebenone, and Ubiquinol.

Reported purpose & perceived effectiveness

Purpose
Patients
Patients with evaluations
Perceived effectiveness
Patients
Patients with evaluations
Patients
Patients with evaluations
0
Perceived effectiveness
Purpose
Patients
Patients with evaluations
0
Perceived effectiveness
Patients
Patients with evaluations
0
Perceived effectiveness

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 2
Moderate 1
Mild 9
None 26

Commonly reported side effects and conditions associated with Deanna Protocol

Side effect Patients
Diarrhea 5
Charlie horses in calves 1
Charlie horses in feet 1
Diarrhea intermittent 1
Difficulty eating 1
Emotional breakdowns 1

Show all 17 reported side effects

Dosages

Based on patients currently taking Deanna Protocol

Dosage Patients
1 other daily 5
18 g daily 3
1 daily 2
1 mg daily 1
2 mg daily 1
1 other three times daily 1
7 other daily 1
2 g four times daily 1
18 other daily 1
50 capsule(s) daily 1

See all 13 dosages

Why patients stopped taking Deanna Protocol

Multiple reasons could be selected

Reason Patients
Did not seem to work 14
Side effects too severe 3
Other 2
Expense 1
See all 18 patients who’ve stopped taking Deanna Protocol

Duration

Currently taking Deanna Protocol

Duration Patients
3-6 months 3
6 months-1 year 3
1-2 years 6
2 years or more 8

Stopped taking Deanna Protocol

Duration Patients
0-1 month 1
1-3 months 8
3-6 months 5
6 months-1 year 3
1-2 years 1

Adherence


Always
Patients
32
84%
Usually
Patients
4
11%
Sometimes
Patients
1
3%
Never taken as prescribed
Patients
1
3%

Burden


Very hard to take
Patients
2
5%
Somewhat hard to take
Patients
17
45%
A little hard to take
Patients
13
34%
Not at all hard to take
Patients
6
16%

Cost per month


Cost per month
$200+
Patients
22
58%
Cost per month
$100-199
Patients
4
11%
Cost per month
$50-99
Patients
1
3%
Cost per month
$25-49
Patients
0
0%
Cost per month
< $25
Patients
0
0%
Cost per month
Not specified
Patients
11
29%
Last updated:

3 patient evaluations for Deanna Protocol

jennikb
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jennikb
Sex: F
Data Quality: 2 stars
Bulbar: mild
Arms: severe
Chest: mild
Legs: severe
I am: n
I have:
ALS

See jennikb's full Deanna Protocol history

Dec 15, 2014 (Started Sep 18, 2014)

  • Effectiveness
    Can’t tell (for Improve flexibility/strength)
  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 9 mg Daily
Cost: $200+ monthly

  • 0 helpful marks
TinaLuvsLife
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TinaLuvsLife
Sex: F
Data Quality: 3 stars
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
I am: vg
I have:
ALS

See TinaLuvsLife's full Deanna Protocol history

May 12, 2013 (Started Feb 18, 2013)

  • Effectiveness
    Slight (for Improve flexibility/strength)
  • Effectiveness
    Slight (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    Moderate (Charlie horses in calves, Charlie horses in feet, Soft stools, Heartburn)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 1 other Daily
Advice & Tips: I travel 90+ miles/week and spend $140/week just for the 3000 mg Glutathione IV! The other items cost approx. $400/month and I buy from Amazon.com and PureFormulas.com (free shipping). Beware Klaire Labs AKG causes severe heartburn! The only brand of Creatine that comes in an 879 mg capsule is made by Life Extension. The hourly dose of AKG annoys my husband as do these costs.
Cost: $200+ monthly

Mar 10, 2013 (Started Feb 18, 2013)

  • Effectiveness
    Slight (for Improve flexibility/strength)
  • Effectiveness
    Slight (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    Moderate (Charlie horses in calves, Charlie horses in feet, Soft stools, Heartburn)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 1 other Daily
Advice & Tips: Struggling with the hourly doses of AKG due to heartburn.
Cost: $200+ monthly

Feb 27, 2013 (Started Feb 18, 2013)

  • Effectiveness
    Moderate (for Improve flexibility/strength)
  • Effectiveness
    Moderate (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    Mild (Charlie horses in calves, Charlie horses in feet, Soft stools)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 1 other Daily
Advice & Tips: Increased libido, gained strength back in atrophying right hand/arm, gained some fine motor control of right thumb. Using my cane less and staying awake more. (Note: No glutathione IV nor coconut oil massage, yet.)
Cost: $200+ monthly

  • 0 helpful marks
HappyPhysicist
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HappyPhysicist
Sex: M
Data Quality: 2 stars
Bulbar: moderate
Arms: mild
Chest: mild
Legs: moderate
I am: vg
I have:
ALS

See HappyPhysicist's full Deanna Protocol history

Jan 25, 2013 (Started Dec 12, 2012)

  • Effectiveness
    None (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 other Daily
Advice & Tips: Stopped because I had the Alabama Precision Stem Cell procedure.
Cost: $100-199 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 3 patient evaluations for Deanna Protocol