Primary lateral sclerosis
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is primary lateral sclerosis?
Primary lateral sclerosis (PLS) is a rare neuromuscular disease characterized by progressive muscle weakness in the voluntary muscles. PLS belongs to a group of disorders known as motor neuron diseases.
Common symptoms reported by people with primary lateral sclerosis
Common symptoms
How bad it is
What people are taking for it
Common symptom
Slow speech (bradyarthria)
How bad it is
What people are taking for it
Nothing reported yet
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for primary lateral sclerosis
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with primary lateral sclerosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with primary lateral sclerosis
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for primary lateral sclerosis (5 evaluations)
Side effects
drowsiness
urinary urgency
Total evaluations
5
Tried for
primary lateral sclerosis
(9)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
primary lateral sclerosis
(4)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with primary lateral sclerosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has primary lateral sclerosis on PatientsLikeMe?
- 2 new patients joined this month
- 870 say PLS is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 5 | |
| 30s | 16 | |
| 40s | 55 | |
| 50s | 150 | |
| 60s | 257 | |
| 70+ | 308 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 11 | |
| 20-29 years | 19 | |
| 30-39 years | 64 | |
| 40-49 years | 110 | |
| 50-59 years | 134 | |
| 60-69 years | 53 | |
| 70+ years | 8 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 319 | |
| Female | 478 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 383 | |
| Not Diagnosed | 82 |
These charts show data from PLS patients who have completed their condition history
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