What is primary lateral sclerosis?

Primary lateral sclerosis (PLS) is a rare neuromuscular disease characterized by progressive muscle weakness in the voluntary muscles. PLS belongs to a group of disorders known as motor neuron diseases.

How do members experience primary lateral sclerosis?

Top 5 symptoms reported by people with primary lateral sclerosis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for primary lateral sclerosis*

*Data from patients with primary lateral sclerosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with primary lateral sclerosis*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Mylan-Baclofen)
Perceived effectiveness
for primary lateral sclerosis (3 evaluations)
Side effects
urinary urgency
Total evaluations
3
Tried for
primary lateral sclerosis (4)
Treatment

(Rilutek)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
primary lateral sclerosis (3)

*Data from patients with primary lateral sclerosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has primary lateral sclerosis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 8
30s 15
40s 52
50s 154
60s 248
70+ 343

Distribution of sex

Sex

Sex Proportion # of patients
Male 336
Female 486