What is Primidone?

Category: Prescription Drugs

Most popular types: Mysoline

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Primidone is a barbituate anticonvulsant used for the management of grand mal, psychomotor, and focal seizures. It may be used for benign familial tremor, also known as essential tremor.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Essential Tremor 62 38
Tremor(s) 35 13
Epilepsy 34 17
Seizures (grand mal or tonic-clonic) 11 5
Parkinson's Disease 6 4
Tremor in hands 6 2

Show all 35 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 17
Moderate 17
Mild 16
None 34

Commonly reported side effects and conditions associated with Primidone

Side effect Patients
Dizziness 6
Grogginess 5
Fatigue 4
Drowsiness 3
Tiredness 3
Depressed mood 2

Show all 35 reported side effects

Dosages

Based on patients currently taking Primidone

Dosage Patients
50 mg daily 9
100 mg daily 4
250 mg three times daily 4
250 mg daily 2
250 mg twice daily 2
750 mg daily 2
1 mg daily 1
12.5 mg daily 1
50 mg twice daily 1
200 mg daily 1

See all 15 dosages

Why patients stopped taking Primidone

Multiple reasons could be selected

Reason Patients
Did not seem to work 22
Side effects too severe 21
Doctor's advice 11
Other 4
Expense 3
Personal research 2
Change in health plan coverage 1
Course of treatment ended 1
See all 44 patients who’ve stopped taking Primidone

Duration

Currently taking Primidone

Duration Patients
1 - 6 months 2
6 months - 1 year 2
1 - 2 years 6
2 - 5 years 9
5 - 10 years 8
10 years or more 5

Stopped taking Primidone

Duration Patients
Less than 1 month 9
1 - 6 months 15
6 months - 1 year 2
1 - 2 years 5
2 - 5 years 5
5 - 10 years 3
10 years or more 5
Adherence
Adherence Evaluations
Always 67
Usually 8
Sometimes 3
Never taken as prescribed 6
Burden
Burden Evaluations
Very hard to take 6
Somewhat hard to take 7
A little hard to take 15
Not at all hard to take 56
Cost per month
Cost per month Evaluations
$200+ 0
$100-199 0
$50-99 1
$25-49 5
< $25 58
Not specified 20

What people switch to and from

Patients started taking Primidone after stopping:

Treatment Patients
Propranolol (Inderal) 4
Phenytoin (Dilantin) 2
Baclofen (Mylan-Baclofen) 1
Carbidopa-Levodopa (Sinemet) 1
Clonazepam (Klonopin) 1

Show all 9 treatments patients report switching from

Patients stopped taking Primidone and switched to:

Treatment Patients
Propranolol (Inderal) 2
Rasagiline (Azilect) 1
Last updated:

14 patient evaluations for Primidone

69 members have decided to share their profiles only with other members of PatientsLikeMe.

sherriebaby20
22749 thumb
sherriebaby20
Gender: F
Data Quality: 1 star
Pain: All
Fatigue: All
Sleep: All
Stiffness: All
function: None
external_stress: Most
Stickman: all
Description:F55y
CFS:6y Dx
FM:9y Dx
I am: b
I have:
Fibromyalgia

See sherriebaby20's full Primidone history

Jun 24, 2015 (Started Jul 01, 2013)

  • Effectiveness
    Can’t tell (for Essential Tremor)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
shayla034
62060 thumb
shayla034
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: moderate
I am: n
I have:
MS

See shayla034's full Primidone history

Aug 15, 2013 (Started Jul 01, 2011)

  • Effectiveness
    Moderate (for Essential Tremor)
  • Side effects
    Severe (Dizziness/walking like I'm drunk)
  • Adherence
    Sometimes
  • Burden
    A little hard to take
Dosage: 150 mg Daily
Cost: $25-49 monthly

  • 0 helpful marks
trice
16081 thumb
trice
Data Quality: 2 stars
  • Gender: M
  • Age: 47y
  • Duration: 34 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: None
  • Physical: None
Surgery type: Vagus Nerve Stimulation (VNS)
0 seizures
4 weeks ago
I am: g
I have:
Epilepsy

See trice's full Primidone history

Jan 21, 2013 (Started Nov 10, 2010)

  • Effectiveness
    Slight (for Epilepsy)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg Daily
Cost: < $25 monthly
Side effects: Fatigue

Nov 23, 2009 (Started Nov 10, 2010)

  • Effectiveness
    Moderate (for Epilepsy)
  • Side effects
    Moderate (Fatigue)
  • Adherence
    Always
  • Burden
    A little hard to take
Side effects: Fatigue

  • 1 helpful mark
Last updated:
Showing 3 of 14 patient evaluations for Primidone